gertie Posted September 27, 2011 Report Share Posted September 27, 2011 The discussion on age got me wondering about how long are most of you up & being productive during the day. I push myself to stay up a lot when I really need to be resting. I would love to hear your comments. Thanks. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted September 27, 2011 Report Share Posted September 27, 2011 I am up and mobile maybe for one hour a day, maybe a little more. It's broken up into about 5 minutes upright time an hour. I have rare days where I'll be upright for 10-12 minutes if I'm trying to clean a space. Quote Link to comment Share on other sites More sharing options...
lgtaylor100 Posted September 27, 2011 Report Share Posted September 27, 2011 I am actually standing or walking for very little time during the day. Maybe about an hour broken up into shorter intervals. Once during the summer I went to the art museum and was upright for about 55 minutes. I went to a small zoo with my grandson and was probably up for about 20 minute intervals. Does driving count? I am able to drive for about 45 minutes and that is mobile but sitting.(So I guess that doesn't count.) Quote Link to comment Share on other sites More sharing options...
Frugalmama Posted September 28, 2011 Report Share Posted September 28, 2011 Not very much . Today I was up just after 11:30 and sat wedged into my comfy chair for about an hour and a bit, then had to lay down on the couch. I was able to sit up for about a half hour or so in the afternoon, and then had a 2.5 hour nap. This evening I sat at a Bible study at a friend's house for an hour and a half, but my hubby had to drive me and pick me up since I couldn't make it home myself last week . I can stand long enough to make myself a bowl of cereal, or to go to the bathroom or sometimes to quickly sweep the kitchen floor, but that's about it. Even then I start having symptoms, but I can usually get back to sitting/lying before I'm on the verge of blacking out. Quote Link to comment Share on other sites More sharing options...
Chaos Posted September 28, 2011 Report Share Posted September 28, 2011 On my good days, I can work a 9 hour day, most of which is on my feet. On my bad days now, I can be up enough to keep loads of laundry moving along and do my basic self care ADL's. On my worst days, before being diagnosed, it was an all day project to get up, shower and get dressed. Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted September 28, 2011 Report Share Posted September 28, 2011 I'm alot like Sue, my standing is broken into 5 minute spurts. My big outburst each week is to go grocery shopping, I can get through the store in about 20 minutes. I'm a little better being able to lean on a cart. Other than that I live in reclinerville 24/7 Quote Link to comment Share on other sites More sharing options...
potsgirl Posted September 28, 2011 Report Share Posted September 28, 2011 I'm up from about 6 am until 12:30, then I lay in bed and read for an hour before turning out the light and trying to take a nap. I'm up again about 3 pm until 5:30 pm, and then I'm back in bed reading until about 7-7:30. Lights out and the next day starts the same way....This is my main pattern, but I'm usually sitting most of the time I'm "up" - on the computer, reading, watching t.v.On good days I can leave the house for about 2-3 hours, sometimes more. All depends on the day, of course. Quote Link to comment Share on other sites More sharing options...
sandymbme Posted September 29, 2011 Report Share Posted September 29, 2011 I have seen a huge decline in my ability to be "up", even in just the past few months. I woke up today at about 9pm, having slept almost 24 hours. I also just got out of the hospital after a 3 day stay. I usually am "up" only in bits in pieces, to make something to eat (although that hasn't happened much lately) and then I go back to the couch. Needing far more help with my adl's than I used to. Sigh. I no longer drive at all, I am too afraid of what I might do to someone else. I just couldn't live with hurting someone else because I was too reluctant to admit that I just can't do it anymore.Sandy Quote Link to comment Share on other sites More sharing options...
ladyt Posted September 29, 2011 Report Share Posted September 29, 2011 Mobil as doing stuff or mobile as walking?Right now , being pregnant, i tolerate more standing and walking. But still I doupt it gett to be more than 30 min a day, if even that much. Some days maby more, other less. But whit my wheels i can gett around for lots longer, ofcourse still depending on the day...=) Quote Link to comment Share on other sites More sharing options...
jesse1919 Posted October 1, 2011 Report Share Posted October 1, 2011 I'm able to work full time. Mostly I'm sitting, not a very physically demanding job. Although it's stressful at times. I sleep about 7-10 hours on week days. Friday nights I'm drained and usually pass out early. I usually take a 3 hour late afternoon nap Sat and/ or Sun. and sleep about 9-11 hours at night. I leave the apt about 1/2 the weekends depending on how I'm feeling. Maybe go for a walk. Do some laundry. Often think about going shopping but rarely go. Mostly sitting in front of the computer. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted October 1, 2011 Report Share Posted October 1, 2011 I'm up and about for most of the day 8 to 10 hours. Sometimes more sometimes less...and when it's hot, much less. Quote Link to comment Share on other sites More sharing options...
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