Our Demographics Part 2

[HopeSprings]

Did I get all the major forms of dysautonomia? - I drew a blank after the 1st three. Should be interesting to see our results all grouped together like this (if lots of people answer - I hope, I hope).

[sue1234]

Naomi, I don't mean to be nosy, but I thought I voted wrong here on gender, so I deleted and voted again. I see one male and one female, and I am voting female. If you are male and have the name Naomi, that is okay! Otherwise, your vote did wrong.

[HopeSprings]

Sue- I didn't vote. So I think that means your delete didn't take. I am a female, by the way. LOL.

[sue1234]

Since you didn't vote, I was probably assuming it was you. We must have then had a guy vote ahead of me, voter #2.

[HopeSprings]

Ohhh- gotcha. Gonna vote right now.

[andersondebra]

Naomi,

you forgot the hyper forms of POTS and dysautonomia. I am the hyperadrenergic dysautonomia type, sorry I have to be the difficult one in the group, LOL!

[HopeSprings]

True, I didn't break POTS up into subcategories, but whether hyper or not, I'd still put it under POTS. That's fine though if you want to make this distinction.

[Rachel]

I voted "other" for diagnosis. 16 years ago I was given the diagnosis of NCS, and then a year later POTS was added to that. However, as time goes on I fit the NCS and POTS criteria less and less. Most recently my doctors have said, "severe dysautonomia," "almost autonomic failure," and "mitochondrial disease."

Rachel

[toddm1960]

Two excellent polls, I'm going to be watching these as more members vote. Thank you they're a great idea.

[Ernie]

Hi,

You did not mention 'genetic' as a trigger (it's not the trigger but it'a the reason).

[icesktr189]

I voted POTS but I have both POTS and orthostatic intolerance

[HopeSprings]

Thanks Ernie - I will add. As well as NCS.

[jbenz1772]

Hi,

I voted other for triggor. I have small fiber neuropathy that my neuro believes is the cause of my POTS. But the SFN is of unknown etiology so far.

Jennifer

[brethor9]

Like Dani, I also have orthostatic intolerance and hyperadrenergic POTS.....kinda a couple of different things under the whole Dysautonomia umbrella

Bren

It will be interesting to see the final results...thanks Naomi for starting this!

[HopeSprings]

I enabled "vote for more than one answer" under diagnosis, in case you have more than one of these going on.

[Ernie]

Hi Naomi,

Thanks for making the corrections. It was also a good idea to enable many answers in the diagnosis as I have more than one.

[DoozlyGirl]

Interested to see responses ot this poll. Can you add autonomic neuropathy as a form of dysautonomia? Thanks.

[HopeSprings]

Done!

[potsgirl]

I voted "other" and OH/POTS - the "other" is my diagnosis of small fiber neuropathy. Lots o' pain. I also voted "other" for possible causes, because many doctors believe that a virus can cause dysautonomia/POTS. They think I became ill after I got sick with a virus common to the southwest area.

[akavella]

i believe my TRIGGER was the GARDASIL vaccine. my symptoms all began after my first vaccine.

[lgtaylor100]

It's amazing to see that so may had no known trigger. It's frustrating to me that I can't point to an identifiable trigger for this illness. What does everyone think about particular demographic.

[misstraci]

I marked my "trigger" as pregnancy because it's very ironic that it just came on right afterwards and after my complicated delivery. The other ladies who have POTS/dysautonomia as their trigger. Did you have complicated deliveries, large blood loss, etc?

Thanks, I was just curious about your situations and was wondering if it was anything like my own!

[Chaos]

... The other ladies who have POTS/dysautonomia as their trigger. Did you have complicated deliveries, large blood loss, etc?

I had three very complicated pregnancies and premature deliveries. I've had weird symptoms for a long time (probably a genetic predisposition toward POTS etc), including after the pregnancies, but it was a surgery that really set off the storm of symptoms that knocked me out of life for a long time.

[Libby]

Could puberty be added to the 'trigger' list?

I can't remember having any symptoms before then...

[HopeSprings]

Sorry Libby - I just saw your post. I added "puberty" as a trigger, if you still want to vote.