HopeSprings Posted September 4, 2011 Report Share Posted September 4, 2011 Did I get all the major forms of dysautonomia? - I drew a blank after the 1st three. Should be interesting to see our results all grouped together like this (if lots of people answer - I hope, I hope). Quote Link to comment Share on other sites More sharing options...
sue1234 Posted September 4, 2011 Report Share Posted September 4, 2011 Naomi, I don't mean to be nosy, but I thought I voted wrong here on gender, so I deleted and voted again. I see one male and one female, and I am voting female. If you are male and have the name Naomi, that is okay! Otherwise, your vote did wrong. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 4, 2011 Author Report Share Posted September 4, 2011 Sue- I didn't vote. So I think that means your delete didn't take. I am a female, by the way. LOL. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted September 4, 2011 Report Share Posted September 4, 2011 Since you didn't vote, I was probably assuming it was you. We must have then had a guy vote ahead of me, voter #2. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 4, 2011 Author Report Share Posted September 4, 2011 Ohhh- gotcha. Gonna vote right now. Quote Link to comment Share on other sites More sharing options...
andersondebra Posted September 4, 2011 Report Share Posted September 4, 2011 Naomi,you forgot the hyper forms of POTS and dysautonomia. I am the hyperadrenergic dysautonomia type, sorry I have to be the difficult one in the group, LOL! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 5, 2011 Author Report Share Posted September 5, 2011 True, I didn't break POTS up into subcategories, but whether hyper or not, I'd still put it under POTS. That's fine though if you want to make this distinction. Quote Link to comment Share on other sites More sharing options...
Rachel Posted September 5, 2011 Report Share Posted September 5, 2011 I voted "other" for diagnosis. 16 years ago I was given the diagnosis of NCS, and then a year later POTS was added to that. However, as time goes on I fit the NCS and POTS criteria less and less. Most recently my doctors have said, "severe dysautonomia," "almost autonomic failure," and "mitochondrial disease."Rachel Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted September 5, 2011 Report Share Posted September 5, 2011 Two excellent polls, I'm going to be watching these as more members vote. Thank you they're a great idea. Quote Link to comment Share on other sites More sharing options...
Ernie Posted September 5, 2011 Report Share Posted September 5, 2011 Hi,You did not mention 'genetic' as a trigger (it's not the trigger but it'a the reason). Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted September 5, 2011 Report Share Posted September 5, 2011 I voted POTS but I have both POTS and orthostatic intolerance Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 5, 2011 Author Report Share Posted September 5, 2011 Thanks Ernie - I will add. As well as NCS. Quote Link to comment Share on other sites More sharing options...
jbenz1772 Posted September 5, 2011 Report Share Posted September 5, 2011 Hi,I voted other for triggor. I have small fiber neuropathy that my neuro believes is the cause of my POTS. But the SFN is of unknown etiology so far.Jennifer Quote Link to comment Share on other sites More sharing options...
brethor9 Posted September 5, 2011 Report Share Posted September 5, 2011 Like Dani, I also have orthostatic intolerance and hyperadrenergic POTS.....kinda a couple of different things under the whole Dysautonomia umbrella BrenIt will be interesting to see the final results...thanks Naomi for starting this! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 5, 2011 Author Report Share Posted September 5, 2011 I enabled "vote for more than one answer" under diagnosis, in case you have more than one of these going on. Quote Link to comment Share on other sites More sharing options...
Ernie Posted September 5, 2011 Report Share Posted September 5, 2011 Hi Naomi,Thanks for making the corrections. It was also a good idea to enable many answers in the diagnosis as I have more than one. Quote Link to comment Share on other sites More sharing options...
DoozlyGirl Posted September 6, 2011 Report Share Posted September 6, 2011 Interested to see responses ot this poll. Can you add autonomic neuropathy as a form of dysautonomia? Thanks. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 6, 2011 Author Report Share Posted September 6, 2011 Done! Quote Link to comment Share on other sites More sharing options...
potsgirl Posted September 6, 2011 Report Share Posted September 6, 2011 I voted "other" and OH/POTS - the "other" is my diagnosis of small fiber neuropathy. Lots o' pain. I also voted "other" for possible causes, because many doctors believe that a virus can cause dysautonomia/POTS. They think I became ill after I got sick with a virus common to the southwest area. Quote Link to comment Share on other sites More sharing options...
akavella Posted September 6, 2011 Report Share Posted September 6, 2011 i believe my TRIGGER was the GARDASIL vaccine. my symptoms all began after my first vaccine. Quote Link to comment Share on other sites More sharing options...
lgtaylor100 Posted September 7, 2011 Report Share Posted September 7, 2011 It's amazing to see that so may had no known trigger. It's frustrating to me that I can't point to an identifiable trigger for this illness. What does everyone think about particular demographic. Quote Link to comment Share on other sites More sharing options...
misstraci Posted September 7, 2011 Report Share Posted September 7, 2011 I marked my "trigger" as pregnancy because it's very ironic that it just came on right afterwards and after my complicated delivery. The other ladies who have POTS/dysautonomia as their trigger. Did you have complicated deliveries, large blood loss, etc?Thanks, I was just curious about your situations and was wondering if it was anything like my own! Quote Link to comment Share on other sites More sharing options...
Chaos Posted September 8, 2011 Report Share Posted September 8, 2011 ... The other ladies who have POTS/dysautonomia as their trigger. Did you have complicated deliveries, large blood loss, etc?I had three very complicated pregnancies and premature deliveries. I've had weird symptoms for a long time (probably a genetic predisposition toward POTS etc), including after the pregnancies, but it was a surgery that really set off the storm of symptoms that knocked me out of life for a long time. Quote Link to comment Share on other sites More sharing options...
Libby Posted September 8, 2011 Report Share Posted September 8, 2011 Could puberty be added to the 'trigger' list? I can't remember having any symptoms before then... Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 16, 2011 Author Report Share Posted September 16, 2011 Sorry Libby - I just saw your post. I added "puberty" as a trigger, if you still want to vote. Quote Link to comment Share on other sites More sharing options...
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