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brethor9

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  1. Hi Julie! I know this is an old post but wondering how you made out *** HRT and the comb patch currently? Are you still doing HRT etc? I went into early menopause over the last year and it has been an absolute train wreck for my Dysautonomia to the point of being bedridden. I am currently on the estradot 50 patch and 100mg pill of Progesterone. I am wondering if I would fare better with a combined patch. Are they transdermal and safe like just the estrogen re clotting and cancer etc? Thanks so much and hope you are doing well! Brenda
  2. redpenny11 did you ever get any answers about the Florinef? Since early menopause I am wondering in the Florinef that I have been in for 12 years is now interacting negatively with my Estrogen HRT. No matter what I do I can't seem to stabalize. I'm now as sick as I was 12 years ago before diagnosis. It would seem Menopause has crashed the system...
  3. Hi All My HyperPOTS/Dysautonomia has decided to completely go haywire since entering early Menopause in the last year due to ovary removal. The problem is I'm dealing with Bradycardia (Hrs in the 40s) and Tachycardia now. Sick Sinus Syndrome has been ruled out and my specialists say my heart structurally is fine. I honestly believe that my hormone changes are at play somehow but can't figure it out. None of my 5 specialists have answers either. I am currently on just an estrogen patch. My endo refuses to try any other hormones and here in Canada it's next to impossible to find hormone specialists. So I'm looking to my fellow POTsies for any help, recommendations and insight you may have on this topic. I'm bedridden and desperate.
  4. @MomtoGiuliana are you on any HRT? I just started early menopause due to ovary removal and have had such a severe relapse I am.almost bedridden again. I am currently on just an estrogen patch and florinef. I have no idea how meno affects POTs hormone wise. Any insight? Bren
  5. Oddly enough my body behaved itself more with Omicron and I can't for the live of me figure out why. On the other hand I just got ove a bad respiratory virus and it kicked my a**. Menopause has crashed me harder than any virus put together however.
  6. Picklesquish any updates on your battle with POTS and Menopause? I have become completely disabled by it despite trying several doses of estrogen. My specialist will not give me progesterone or testosterone as she feels it isn't required. I disagree but here in Canada hormone specialists are almost impossible to find
  7. Pattie curious to know what was the lowest dose HRT you were on and how are you faring now?
  8. Thanks Rama! Good to hear from you btw. I would love to call it total remission more of a learning to live with it decade. 😉
  9. redpenny11 did you ever get any answers about the Florinef? Since early menopause I am wondering in the Florinef that I have been in for 12 years is now interacting negatively with my Estrogen HRT. No matter what I do I can't seem to stabalize. I'm now as sick as I was 12 years ago before diagnosis. It would seem Menopause has crashed the system...
  10. Hi Pistol:) I don't have a Gynecologist unfortunately. Due to hysterectomy and ovarian cancer I haven't really had the need to see one. I do have an endocrinologist but she deals mostly with my thyroid issues and not hormonal.
  11. Hi All I have been on Florinef for almost 12 years Recently hit surgical menopause and find that my POTS/Dysautonomia is all over the place. In just 7 months I have gained about 30 pounds. I haven't been this big since carrying an 8 pound baby! I'm thinking the HRT and Florinef are not playing well together as both make you retain fluids and sodium. I had zero weight issues prior to Meno and HRT. I'm thinking at this point of stopping my Florinef but have no idea how to taper. Since the Pandemic my specialists have basically been MIA so no help there. Have any of you weaned off Florinef? Gone through Meno with the same issues? Any of your specialists mention Estrogen and Florinef issues? Help please!!
  12. Hi All Haven't been on for many years now and like many of you had just gotten used to and into a rhythm of living with my hyperadrenergic POTS and Dysautonomia symptoms. To say life has been awesome would be an understatement as many of us know but I was functioning. Cue early menopause and now I have crashed so hard I can barely move some days. Wondering if there are any other members on here who have hit meno and crashed? Are you on HRT? Low dose? High dose? Does anyone have an idea of what Estrogen has on blood volume etc? My understanding is it's a vasodilator so in turn would it not make POTS symptoms worse? especially if you have low blood volume and problems with vascular constriction? I would appreciate any kind of insight any may have. Bren
  13. Thanks ladies! Katie I am so happy to hear from you also ? not glad that you are still struggling though.. hang in there girl! I would love those reference articles when you are feeling up to it.. have you come across anything mentioning pelvic surgeries etc affecting POTS. . I am so sure there is a correlation somehow and I need ammo for my docs ha ha Bren
  14. Hi Trish ? Thanks for replying! I also have EDS and mast cell illness. I have noticed everytime I had pelvic surgery that my symptoms would get worse but I eventually would pop back. I only have 1 remaining ovary that has another cyst on it and I do wonder if it is causing some hormonal upheaval. I also have endo... none of the docs think its related but I really wonder since it all hit at the same time... its so frustrating Bren
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