bttrflyamby1981

I was just wondering is anyone else is on this or has tried it. I was scared to try it when I read about it, but I'm doing ok on it so far.

Don't feel bad about venting.....it's affecting you and that's all that matters. (((HUGS))) I do wonder how you do it though. I hope you feel better soon!

thanks everyone.....the prayers must have done good, thank you for putting in a good word. Cardiactec...I'm not sure if that 179 was with Nitro or not? He just mentioned that number and I asked him if it actually went that high. lol I'll have to get a copy of the TTT. Tessa...I don't think I'm as bad as you were? The worst part was the headache which has passed now. I'm really tired and feel like I've been swimming all day (that's the only way I can describe it). My hand where they put the IV is sore and even typing is irritating. Flop your right....I'm lucky to know and understand POTS. Again big thanks!

It could always be both? At least your headed in the right way. Hope someone has moe helpful info to share. (((HUGS)))

I'm sorry your having a rough day...(((HUGS)))

Ok...I know my highest heartrate was 179. I don't have the copy of the TTT so can't give many details. But as soon as I was tilted up my heartrate went to 148. The nitro made me feel heavy and tired but I didn't faint. He's changing my meds...instead of Toprol I will be taking Norpace. He's also increasing the florinef. Has anyone used Norpace? I'm very happy I finally have a diagnoses!!!! Now I can adjust my life without confusion....knowing what I have can let me go on with my life.

I will go into more detail later...don't feel up to it right now. Good news is I didn't faint. Thanks for all your support!

My Dr mentioned that dehydration is a big problem and it can make symptoms worse, but I don't have any idea as to when IV should be given. I know that I'm always struggling to keep hydrated. (I'm sure living in AZ doesn't help)

I'm glad you found someone willing to work with you even though he doesn't understand that much right now. I hope whatever treatment they go with works for you.

Oh...well I hope they can get you in soon and your wait is min. Is he busy? Is that why he didn't give you an appointment? Or are they going to have a nurse go over the results with you? ( I got the NP most of the time with my old office ) I know you mentioned wanting the results of your TTT and they should give you the readings if that's what you ask for. I have mine for the first TTT I had.

So what is the symptoms to look for for it not to be POTS related? Because I have IBS I blame a lot of my problems there. I know at times I can get pretty sick and don't know what end it's going to come from. Sorry...

I'm sorry for your loss...it's never easy. (((HUGS)))

I'm sorry for your loss ((HUGS))

I agree with OLL, uless you can't move at all even from foot to foot in that line of work? I know I have side affects from my meds that sometimes seem worse then not taking them? I didn't realize this until I went off them for the TTT.

Hi Tessa, What time is your appointment tomorrow? Wishing you luck!

I would have to say I feel it in my head more then anything, but when I'm up and on my feet for a good length of time I will get the heavy weak feelings in my legs.

Ami, I too have done this same thing and I understand how frustrating it is. It's brought me to tears I was so besides myself. (((HUGS)))

That makes sense Tearose. My first TTT I felt ok that day and it came back normal. That's why I'm doing this next one early in the morning. I always feel awful in mornings....I don't remember a morning that I felt good. Jacquie please do let us know how your empting study goes. Can anyone tell me what's involved with this test? I really had a hard time getting out of bed, and if it wasn't for the fact that my kids were up and fighting, I don't think I would be out of bed right now. My whole body is so sore, and weak! I am thankful I don't have to do things like this very often.

No I haven't had the study done...I'll have to look into it pretty soon. I know the DR I saw about blood in my bowels said they wanted to do a test if they found blood in the samples I was supposed to take, but I can't remember right now what they called it.( I think it had something to do with a scope?) We both think the blood is just from the IBS and having really bad constipation at times. I do recall nausea being my first symptom that I paid attention to. I was pregnant though so placed the blame on that. After that I placed the blame on breastfeeding and thinking I wasn't getting enough vit or something. I had my tubes tied, but I kept thinking I was pregnant because of the nausea. Thanks for your help.... BTW I feel awful and over did it, I don't know if I will be able to get out of bed tomorrow. I don't even know how I'm still going right now? I did take a nap earlier though when we got home. Take care

sending big hugs your way!!

Now that I'm off meds, I have noticed that if I do too much I feel sick to my stomach. Could it be related to POTS/NCS? I guess I forgot how sick I got without the meds? Not that I actually vomit or anything....I will if I have a migraine, but usually I can keep it from happening. I really over did it today and I'm feeling pretty bad......but I'm trying so hard not to let others down. My daughter is in brownies and I help out whenever they ask, but today was too much. I know without the meds I shouldn't have even tried..but dang it, I want my daughter to have something to look forward to! The scary thing is I have a BUSY day tomorrow too. My husband did talk some sence into me however...thank goodness! I was going to walk in the parade tomorrow to help sell girl scout cookies! How dumb can I be!? lol My honey pointed out how busy we will be though and I know as it is I'll be really over doing it. So now I'm helping instead with the yard sale (to help pay for the girls party). My husband has plans too...he wanted to take the kids to the carnival after the parade. We might be meeting up with an old friend of his from highschool (who I have never met....but I think she is great from talking with her online). BUSY BUSY! I know you guys understand how hard this will be on me......thanks for listening. I've made myself so sick my limbs are shaking! And I still have tomorrow? I think I dug myself too deep. Anyway, hope everyone has a great weekend! Amber

How you have been feeling Tessa is how I feel now. I really hope I don't become worse after the TTT. I always wondered if you feel worse after the TTT because your body goes so out of wack (normaly we can adjust enough to tolorate) and it now has a hard time recovering.....so I agree with flop. Do you know why they made you wait for the results? Is it because he's not very informed or something? The reason I'm asking is because I was told I will have my results right then and they would change or adjust my meds at that time. It's great we will have our results on the same day though!!

It would be easier to get a kitten who has been around dogs..if you don't that's ok, but a kitten is much easier to introduce to dogs. The important thing is to let them introduce themselves. Have a place the kitten can go that the dogs can't follow. It can take a good week before they want anything to do with eachother. I lost my dog christmas eve and I'm depressed not only because I miss her, but because the house is empty without a dog. My husband and I both want to get another one, but with my health it's a hard choice. I want to get a full grown dog who doesn't need to be house trained and that sort of thing...I don't have the energy for it. But a full grown dog may not take to kindly to my cats....I have 3 but only one is an indoor cat. Good luck!

Hi CJ, welome....I know having support makes all the difference. Best wishes.

I have IBS and I get the same symptoms as you.....is it anything alike? I don't lose weight from it though although you think I would with how sick I get sometimes.