tinkerbella

yep, I'm a choker too. I should have known when I was chocking the last time and my ex just sat there and his sister the nurse pract. sat there and the 76 year old woman beside me, did the heimlich manoeuvre and she saved my life. WHAT SHOULD I have known? That he was a loser, a nice loser but not for me. I find if I'm sitting and if I have a lot of food I feel like I just can't breathe and feel so uncomfortable I must lay down. I think it's because I bloat. Always have had to since I was a child after meals because I'd feel sick. And once I start choking it's hard to stop. May all our throats be Blessed and safe always~ BellaMia~

That is so Cool. love sisters. Now I love seeing my sis, plus she going to be moving and we tried it when she went to visit her daughter in Colorado and I got to see my niece's new baby. Boy what a neat world we live in! BellaMia~

Hey buddy, I hope you're feeling better. Honestly we should all be on gmail and then we can see who is up in the middle of the night and IM each other or free voice mail or video chat. It's one more way to not feel so lonely out there. Think about it friends! Then you down load jabber and a bunch of us can chat all at once. At least 3. I love it when I'm awake and my son see me on line and IMs me and says, "what are you doing up?" and then he calls or we do a late night video chat. I might scare some of you in the middle of the night. LOL IT'S FREE EVERYONE! NEXT BEST THING TO A LIVE SUPPORT GROUP! :) I do need to get a new camera for my lap top and they are only 17 dollars for a cheap one. Bluesman remember I'm only a click of the keyboard away and I'm usually awake or as the doctor tells it awake dreaming. LOL right to the fridge and back to bed again. I used to draw in my sleep. LOL! Oh yeah and write that was real funny. Take care my friend, cause your one of the best! Blessings and to all, BellaMia~

Hi Summer and Gayla, http://home.att.net/~potsweb/POTS.html I must get your book as soon as my money situation settles down or when my ship comes in. That's what my mom used to say. Then my dad would say, but you live to far from the ocean. lol! I'm trying to hold on to my home with this economy. it's hard being disabled and living alone, well, my dog won't go get a job, I think he's lazy. Anyway, I sent the above article to my doctor as it was a patient's view. You may have already seen it it came up in a google search one day. Has lots of links at the end. Hope it helps. Blessings and Love~ BellaMia~

jana my sweet friend, As I continue to pray nightly for you and your boyfriend, I just thought of this for you. Think POSITIVE! When I had my car I used to picture a parking places before I would pull into the parking lot, once I starting doing this I always found one easily and it would always work. You have a lot of power in you mind, use it together. Illness can bring couples closer together if you plan it out together. Your journey is just beginning with your boyfriend's illness, and I want to fill your hearts, souls, and minds with healthy, positive thoughts and affimerations. Post them all around the house, the bathroom mirror, in the car, tuck them in his wallet, fill positive thoughts everywhere and keep the cancer away! You can make this a little love game for both for you and show your support this way. Now I just woke up and my BP is usually low, so I hope I,m not repeating myself. Something inside me said post this and it may help jana and others also. I know you are bust right now, and we will be in touch soon. Just know I'm praying you both for you, while you both get things in order. >>>>--------Sending my Blessings and Love across the country--------->>>> BellaMia "Your regrets aren't what you did, but what you didn't do. So I take every Opportunity." Cammeron Diaz

You did a great job on that Earth Mother! Blessings and Love~ BellaMia~

Rene, We'll all be here for you. Nothing is going to go wrong. We are all her for you. I know this will help. We will all be waiting to hear from you. I'll leave my computer on all night for you. xxxxx BellaMia~

Rene, take it the way you were told and don't be afraid it takes a few days to adjust usually your doc rechecks you in a week. When do you see yours again? Mine would also joke with me and say did it also tell you you's see pink spots or get purple hair on your face? LOL! He would make me laugh and make me understand that they have to list the side effects and most of them are rare, but they have to list them all. Sometimes it best not to read them if you are anxious. The Clonidine was the best thing I ever took Rene. I got some sleep for the first time in my life. It's still fragmented, but I get some. If I went from a whole pill to a half a pill, Yes I had rebound tachy and we treated it with a bit a tiny piece of a bb which I am allergic to. I would do that over the phone with my doc rather than go to the er and be treated by a staff of Doctors who still do no know how to handle POTS. They treat me every time like I'm having a heart attack or it's anxiety and My doctors know me better. I have my meds and we micro manage any emergency for Pots except dehydration over the phone every 2 hours till safe. Sweetheart, we can't tell you how or what to do. I also understand being alone. I would always tell my son when I was starting a new med and he setup Gmail video chat and phone on my computer by my bed so I was never alone. When he was out he would get me on his Ipod/internet if I was in trouble, and call me back on his phone. You need to set up some safety nets with your family or friends. This has been real helpful also he can video chat me once he is home and see what is actually up with me. We are starting to get the whole family doing this and it's a wonderful way to see each other a stay connected to talk and video chat all for free all you need is a camera. Be well my friend. Blessings and Love, BellaMia~

jana, You are both in my thoughts and prayers. I know you are overwhelmed right now, but try to make a plan together. See what you can do together with your boyfriend. Then take advantage of severices online that you order your groceries and have them delivered. Hire teens to come in to clean and do yard work to earn some money in the summer months or you may qualify for help through your insurance. Try to make things as easy as possible for both of you right now. Take advantage of any offers from family or friends who offer to help. Live for today, till you know what the action plan is. Stress will only make things worse for both of you. You will make it through this. THEY SAY touch is what keeps people with illness going. You'll be there for him to hold him and let him know you love him. PEOPLE WHO HAVE LOVE in their life do much better fighting off illness. You boyfriend, loves you jana. Everything will work out, YOU MAY HAVE TO be a little creative, slipping a love note of support on days you can't go with him. Sometimes, when one in a relationship get weak the other gets extra energy as did with me when my ex got cancer just after my dx. with pots. We'd be in two different hospitals on the same day. I don't know how I cared for him as look back, but I did it and saved his life. It's amazing what love can make you do jana. Remember, you have wonderful friends here that love you. Just make sure you take care of you at the same time. I forgot to do that part. Learned that lesson now and live life differently. I send you BLESSINGS, LOVE, PRAYERS, AND MY FRIENDSHIP ALWAYS! (((((((HUGS TOO!)))))) BellaMia~

CONGRATS to you! I wish you the best of luck with your book. BellaMia~

always my left. are we right handed? everything started on my left side of body. blessings~ bellamia~

Medicare won't pay for compression hose for Pots they will only if its for a wound. I can't afford them at 70 dollars a pair. might save them some money in the long run if they did. DOESN'T MAKE SENSE! you become disabled, and can't afford to buy the products you need, after working 70 plus hours a week for most of your life. BEST BET IS ASK YOUR INSURANCE COMPANY FIRST BEFORE YOU BUY! Blessings and love~ bellamia~

Rene, you must trust what the doctor tell you. clonidine was a mircle drug for me. suddendly all the crazy anxiety i had been feeling went away, only 1 pill am and pm. It was too much for my sensitive system. I lost my memory quickly, we reduced the dose to 1/2 a tab am and pm. i still went on cartia xt because of my raynauds and mesinton. along with weekly inpatient hospital imfusions. it all takes fine tunning, so when do you go back to see how things are working out. "We cannot heal without being willing to being to be hurt." from Different DRUM, Scott Peck, md blessings and love, bellamia~

Nothing ever seems easy for us, as i told potsgirl the other night, "i often feel like damaged goods." Sorry, for all of us, as when i went in for my last surgery to remove precancerous cells in my uterus, the preop dr said, "do you have a kidney problem?" then he added. "usually we don't like to put people under with the #'s so high." that was in november. i was a bit dazed and confused back then. i'm alwalys showing protien in my urine now and my doc has some reason for me not to worry. i had two aunts who died from kidney diease. sending a round of prayers and hugs to all~ bellamia~

May the lord hand pick a team of Doctors to take special care of you. May you have a speedy recovery! And Praise the Lord for your sister's kindness and intervention. Blessings on all of you! Amen~ BellaMia~

i take it 60 mg 60 mg 30 mg last night i took 60 mg as my heart was out of control. 171 i had tried to rake soil and throw seeds in garden. it was nothing. i came in and got it down to 143 resting. my face was so red i thought i was going to be found on the floor with a head injury. bellamia~ blessings & xxxx's to all

oh, don't you hate it when your kids say you just told me that or you asked me that ? i feel like i'm trapped in someone else's older body. someone please set me free! i wonder if that is why I've struggled with so much sleep paralysis? I wonder if it is fighting to break out of this body of mine? wonder how many others of you get this when you do get some sleep at all? this morning the fog was so bad i thought i been knocked out, which makes me wonder am i passing out in my sleep. my waking pressure is 85/60 standing. in the night i have waking dreams and can't remember much, usually I'm starved. find bowls around my bed, i forget to eat all the time in the day, I'd rather drink and take shakes. "One extends one's limits only by exceeding them." by scott peck m.d. the road less traveled pg. 83 blessings and love~ bellamia

MORGAN, my heart goes out to you and i have just prayed for you. i just don't understand something, when ever I'm scheduled to have surgery they ask to you have any financial concerns or worries. all hospital have set aside money for people who have hit rock bottom, they have so much per year . you talk to the hospital social worker, this is serious do you want your son to lose his mom, and your husband to lose his wife. stop all the drama and direct it towards help sweetheart. everything can be worked out, do you belong to a church, an elks club and even many other organizations help people receive free care when they need it. out here it was called HILL BURTON, at the hospitals or was in the past. THEY STILL ASK EVERY TIME. I haven't had to use it in 15 years. It's as application for additional help. I have had to let go of my ego a long time ago, and ask for help even when I had insurance and could no longer pay. You are not talking to the right people. I'm saddened to say this sweetheart, you need to take charge now. a long time ago, when i was dealing with lymphoma and had no money and a huge bill came. one kind man took me aside and said, "Bella, everything is fixable, you never have to worry about things like this." I said, "I wish I had met him years ago." I live with that attitude now. Please go talk to the right people before it's too late morgan. people love you here, but our hands are tied. I was so sick after mine came out, I wrote my story earlier and didn't know I had pots. thought for months I'd never leave the house again and ended right back in again. Blessing that you find the right guidence and help at this difficult time. Bella~

my script is in the mail any suggestions on what I should get? my cardio had said he never wrote one for any cardio pts, before but fully agreeded I needed one. Thanks. BellaMia~

i don't like it. my doc decided to put me back on it again after reviewing my bp's and then when the infusion clinic called in my postural signs. of course i'm always low right after. i 1/2 hours later sitting in a wheel chair at the spine clinic i'm 140/70 . so i don't get it today sitting i'm 140/70 then i stand and i drop to 115/60 with a bounding hr. i feel like fainting. i haven't gotten the meds yet as the doc hasn't called me. if i add the med to 140/70 if i remember my bp were getting as high as 180/100 on the med the last time. I'm very tired from being played with like a yo-yo, as it never ends. BellaMia~

I got the top of the line model that comes with computer soft wear program to take all your readings to your doctor or email pdf files to the doc. the cuff seems to work on all sizes of arms and auto inflates. i got mine at amazom.com for a great deal I first got there pump model at the drug store as my blood pressure monitor broke. I wasn't happy with that but they said i could return it within 30 days. It cost me about 15 dollars more for the best model on amazon with free shipping. I love it and it's the only one my doctor trusts. it has two users and i use 1 for standing and 2 for sitting. holds 88 readings complete i think my son told me when he set it for me. my last one was a waste of money and a piece of crap. good luck

i am, and i don't know what i was but the cardio at one point wouldn't allow my PC to go higher as this would make my fast heart beat ever faster. i have to be careful not to take anything extra to cause my heart to beat extra fast.

mine was 34 (H) i also have a high ana that was over a year ago.

Dear Sweet Rene, OH SWEETHEART, i wish i could give a great big hug right now as I can relate completely. All of the above is true as in the advice everyone has given you. I really dislike the ER for the reason they never understand and forget it if it's a week end. I'm labeled as a hyperventilater when I can't breathe, and of course you know they think they know everything. I'm allergic to the dyes also. Predisone makes me high feel great or feel so anxious the next moment as it screws you all up. It also is crazy when they tell you that the bb can't make you cough because it can. My kid's called me, "typhoid Nannie," as I could not breathe and kept coughing. I was short of breath and I didn't know I had pots yet. My doctor PC said she was sorry that she hadn't seen the signs sooner. I was also getting little bumps on my fingers and elbows which were execma another sign of an allergic reaction. had to go one the predisone pack, nebulizer 3 times a day, what a night mare. Rene another thing you need to look at is your brother just passed away your grieving and all of this is also taking is taking it's tole on your body emotionally. You have a lot on your plate and underneath all of this there may be a bigger issue of being worried of what happened to him is going to happen to you. Sometimes we can get ourselves so worked up we can make our selfs sicker. I'm trying really hard in the past year not to go down that road any more and live my life in, "No Fear." I learned this from my neighbor's little girl when she was just two. Her Mom brought her and her dog to my back yard and my dog was a jumper( stil la pup) and I was training him to stay down as I had recently adopted him. He's a small dog but like a German Shepard to a small toddler. Rene, this little friend of mine walked in my back yard with my dog nearly knocking her over like a bolt of lighting and out of her little mouth she said, "No Fear." She said it over and over again and I asked her mom did I hear her say no fear? Her mom said yes it's from Timothy in the Bible, where he teaches us not to live our life in fear. Something changed in me that day Rene. Do I still worry, of course I'm a mother but now I have more Faith and I hand more things over to God. When that crazy feeling starts I say, No Fear and think of the little girl in my back yard who taught me a lesson to let go and let God. I hope this little story can help you start to live in No Fear Rene. We have only so much precious planet time left. I'm trying to do as many things I love with this challenged body of mine. It's not easy, but we are all here for you sweetheart. I know you are going to be alright . Please know this too shall pass. I will say some prayers that you find some peace and your body calms itself down. take care my friend. may blessings rain on your parade~ BellaMia~