amanda

Hi and welcome!!!! We are all here for you in the pots world. Hope you find this forum infromational.

welcome to our group, you will surely find all the support and comfort you need right here, I did. WELCOME ABOARD!!!!!!!!!!!

This might be a silly question and i don't mean to sound so depressing but , Does this disease in any way shape or form get worse or shorten your life span, cause thats one thing the docs never seem tell. Ive done reasearch on the dysautonomias, haven't been fully diagnoised yet but its never metioned. Can you die from it?

I get tachy anytime anyday any position whenever it feels like it, it goes. Yes it is very strange, sometimes it seems there doesn't have to be a reason at all for it come on.

I get out of breath and my heart pounds sometimes just walking up the stairs. I hope there is something they can do for you.

Corina, do u have pots disease? If so what are your symptoms

I was just wondering if anyone besides me gets cold when everyone else around you at work or wherever that are not sick, aren't? Could that have to do with the low bp? Also, there are days when i am so slow at doing things, even simple things, I get tired. Does this sound familiar to anyone?

so your on the florienef too? That makes me feel better to know that your doing just fine on it, Im only 5'1 and approx 110 pounds. So you don't exactely have pots but your similar to it? Do your symptoms come out of nowhere?

How come i was getting your responses in my msn e-mail? This whole forum thing is quite different.

sure which ever you would like to do I was just wondering what you or others do on the medication and what side effects if any the obtain.

thankyou, did i do this right. lol

My name is Amanda and I was diagnosed with pots disease this past summer, but the funny thing is is that i was missed diagnosed for 3 yrs with a particular disease called supervantricular sinus attackacardia, the electrical pathways of my heart were thought to be not working in a way the should to control a consistant heart rate, there for causing me to have pulpatations and lightheadeness. After my diagnoses of supervantricular sinus attackacardia, i was schedualed for surgery of April 2005. Waiting on the gerney preped for surgery, I waited for my doctor. After 3 hrs of waiting nervously, she called head of staff to tell them she couldn't make it for my surgery. I was mortified that she didn't show but it was kind of a blessing in disquise. The only test that surgon didn't do was the tilt table test, which proved to my new doctor now that i have pots. Im just hoping and praying that i could please talk to someone to help me comprehend better and cope with what im going through. No one has ever heard of pots and i feel alone.