mom4cem

Wow Linda,,hope you get better very soon. Glad to hear you rescheduled your test..and yeah!! to being able to swallow..I hate that feeling when you it hurts so much to swallow. Sleep and fluids the best you can do to help get over this. Would not be any wonder that the pots is acting up. ((hugs))

Glad you went and had a great time, its inspirational!!!

Hi, I don't know if this will make you feel any better but here goes. I have been dealing with pac, pvc's, a bout of psvt,tachycardia, few runs of pvc's and pacs. I have had echos, echo/stress test done. Get them every two years. Have worn an even monitor for over 1 year,,that's right one year and caught many things on them. I have always been told by my cardiologist, in the absence of any structrual abnormality, (not a little billowing of the valve as MVP which I have also) these pac, pvc's are benign. Most of the population have them, some daily and most are not aware of it. Our overly sensitive nervous systems make sure that we do though. I have been checked by other cardiologists and specialists and told the same. When I was pregnant with my 3rd child 3 years ago, I was shoveling in the winter and all of a sudden I was getting pvc's and pac's, but they were coming and going every time I moved, and I mean every time I moved I had a regular beat, a pvc or pac then a regular beat and so on. I was wearing a monitor also. As frightening as it was and I was, I was told that it was harmless and would pass. It did. 3 years later I have had 2 subsequent echos and no changes have been found since the first one I had 13 years ago and every one since then. I think you just have to remember that sure people may die of an arrythmia but what else was going on with them. Previous heart attack, stroke, heart disease, things that make your heart more suseptible to dangerous arrythmias. From what I was told ventricular tachycardias like ventricual fibrillation when they are sustained can be damaging, but this is not pvc's. And the above is not always the case, I know of someone who had two episodes of it and was told since their heart was structrual normal, she is fine. If you check out www.medhelp.org and search on pvc or pac you will probably out of the hundreds of posts, find 98% of the answers by the cardiologists pretty much say these pvc and pacs are annoying but not life threatening. The other % and I am just guessing that there is a leftover % are probably replies to people that they can't say what is happening to them unless they get some testing. Our anxiety every time we feel one can bring us right back to square one, I know it does for me. I have had these things since 1991, 14 years worth of this junk and lately I have had tachcyardia that gradually starts and stays high and lasts for about 1hr and gradually slows down. I have worn a monitor and caught this too and was told it is benign and don't worry. New echo and stress/echo shows nothing changed. Sure it worries me every time it happens, waiting for the next time,wondering what it is doing to my heart, but my dr. assures me and my hubby that my heart is strong and as long as it is not in constant, and he meant constantly a disturbing arrythmia, nothing would happen to my heart. Even people with a-fib can stay that way for years. I know this is long winded, but I just wanted to tell you I know where you are coming from with these fears, I still have them, but I try to remember the reassurance I get from my dr. and try really hard to not let this control my life. You let this get the better of you, it wins...Hang in there it will pass!!! *Just my opinion on it and what my dr's have personally told me.* ((hugs))

I would not have gotten that one, but I love M*A*S*H. Every once in a while I catch one of the cable stations that will play it a few hours every day...

Persephone, Wishing you an uneventful, peaceful evening and weekend!!! Glad you reached your doc and got that bit of reassurance. It can make such a difference! That dang adrenaline just does not know when to quit!! lol..

Hi Kathy, Sorry you have that nast infection. Been there and done that. I can tell you I have taken the Z-pack several times, and depending on how sick I was to begin with, certain times it completely knocked me out, like I could sleep for days. I always took it that it meant it was doing its job. Stopping the medication is not always the best to do without talking to your doc. Only for the reason that you need something to get rid of the infection and they can switch you to something else then before your next dose. Hope you can get a switch in meds and get to feeling better soon.

Persephone, I was worried the last you posted and now this. Hopefully when you are reading these posts it will be AFTER you have been thoroughly checked out!!! Even just for your piece of mind and ours!!!

Congrats, that is quite an accomplishment!! Celebrate!

Wow, Morgan. I know this will be taxing on you, but I would definately go after them on this, especially with the help of your dr.. Legally they are in BIG trouble for fudging notes. I was in the medical field (med biller for a practice) for 12 years,,I know the risk they take by omitting or changing info. Request a full, detailed copy of your hospital chart. Hopefully someone in your area can recommend an attorney who deals in medical malpractice/legal cases. Glad you have a caring primary dr., thank goodness for that. Hope you are feeling better!

Sorry you are going through this now, especially after feeling so well. That is some high b/p, but did you say you have had this high b/p before? I'm sure that your b/p being that high could give you symptoms like you were experiencing. How long did the high b/p last? Maybe a call to your dr. would at least put your mind at ease. I know sometimes I get pressure in my chest , can feel that my b/p is up but my pulse is not very high but it pounds. I don't know what it is but it is disturbing. How is your b/p now? Have you been off the meds long, and did you taper off them. Wondering if it could be from going of all the meds. Hope you re feeling better now ((hugs)).

Hi, Welcome! I am farily new around here also. I have dysautonomia and am going through a long *storm* as other members call it. Hoping you get relief from the meds you are taking!

maybe time to move my stuff down. I was just wondering how often you all experience your symptoms, I guess at its worst. Daily? Weekly? Dependent on circumstances? I thought I was seeing a connection with my cycle and my symptoms but just had another bout yesterday afternoon and I was only at day 9 of my cycle. So much of the theory. It seems to be happening several times during each month. My visit at the Autonomic Disorder Center in Ala. was to change some meds and keep the fluids going. Guess I will try the change to Toprol from tenormin, anything to try to decrease these symptoms. I'm soooo tired and now have to try to muster up the energy and go to work. It's only two hours, but it wipes me out. Then the kids are back home from school and you all know how the story goes from there. Well I am going to drag myself around and get through this day. Need the sunglassess today, it's bright out there!

O.k. I dug this post up and have come down to join you all. I just came back from a trip down South. Visited a different Dr. at the MVP/Autonomic Dysfunction Center in Ala. My usual physician(long story) is no longer with them and on her own but I could not see her, she was out ill. The other Dr. was o.k., not very compassionate but did say my symptoms were from Dysautonomia. These tachycardic episodes are bringing me down. My head feels like it will burst, my eyes hurt, my knees are like jello and the constant feeling of each heartbeat, sweating, chills, headache, flunctuating b/p and feeling every single internal sensation is making me nuts!! The episodes have been happening at least 3-4 times a month usually cycle related but todays was not. It made shopping at Costco a fast one. My rate was probably about 110-120, and did not go back down until 1hr later,,gradually. The after effects linger for days. Tomorrow is back to work and the kids back to school after Spring break. I'm sitting down here with my water bottle and catching up on some magazine reading, got to at least be somewhat productive while I am down here. Maybe do my nails, there are a bit grungy from the last time I was digging myself out...lol... No more whining,,have not any good cheese to go along with it!! Sorry to see you all down here, but I will enjoy the company though..

I can only add that I too am sinking in to my hole. You will get through this, try not to let it get you down or pull you down!!! Hang in there.

Oh Morgan, you poor thing. I am sooo sorry. That sounds horrible. I can only relate in the way when I was in the hospital during labor with my 2nd child, my daughter, they gave my IV Vancomycin(antiboitic) because I have MVP, a slight murmur. Well my hubby swears that they gave me an extra bag plus they opened the drip wide and it was running in quick and all of a sudden I was on fire from my scalp to my toes. I was burning, itching thought I would go nuts. Told hubby to get someone in there quick. No one knew what to do, though I kept saying that I am sure it's the IV, Anesthesiologist comes in and she looks and says WoW, and has them drip me Benadryl, which for me helped, but she was pissed at the nurses because they opened the line up to much, it came to fast and was given more than I needed. I itched though for a good day and 1/2 before it calmed down. Now another thing I am allergic too. Thank goodness the rest of labor and delivery was uneventfull!! Hang in there!!

Kare, I have a list of questions, and added yours to the list. I certainly want to know the answer to that one too!

Wow, thank goodness he is o.k. That angel was looking out for him!

Morgan, since your ablation you have felt worse? Why did they opt to do the ablation. Forgive me if you have answered this a 100 times before. My cardio says no to ablation at this point. Said I would probably be worse off than I am now. Sorry you are feeling bad with rushes. I'll bring a bottle of white and red and plenty of cheese. Do you like it on a ritz or a triscit?

I'm headed with my hubby and kids in tow to the mvp center to see Dr. Watkins. I have been there before and that is where I was told I had dysautonomia. Unfortunately it is so far away that we make the trip every other year by car but it usually gives me the reassurance to push on. This is the first time I will be seeing Dr. Watkins. He is one of the founders and has also written and studied dysautonomia. Hopefully he can give validate some of the symptoms I have been having. Everyday my heart feels like it will take off and race. Yesterday it sat in the high 90's and my gi doc was not happy,(though he is not a big believer in the dysautonomia), I told him it was very warm outside and I work outside with kids in the school and I drank nothing more than 1 bottle of water all day..had nothing to say other than to take more beta blockers.Especially since my b /p was not bad. Seems if you don't fit into a textbook case they don't always tend to believe one. He is a nice guy but it is frustrating that not many dr's understand dysautonomia. If I did not take matters into my own hands, they would probably have put me in the rubber room by now If the trip down does not do me in, then part of the battle will be over. Heading to Nashville before to check it out and then work our way back up and home w/a stop in VA to visit relatives. Have to get my questions in order too. I hate this tachy!!! Waiting for the next race to start...

((hugs)), so sorry that you have to go through this.It is so frustrating dealing with some dr's. Just went to my gi doc yesterday and he took my pulse and it was 96. He said it was not acceptable. I told him it was very warm outside, I work outside with kids in the school and I did not drink much and I was pretty sure it was just the dysautonomia kicking in. Did not seem interested in that. Pushed me to take more beta blocker and called my cardio., who I know exactly what he will say too. Hang in there!!

Ernie, So sorry for the horrible way you were treated. I've been told, like so many others on here also I am sure, that it is physcological problem with me, though no one can directly relate the symptoms to any type of mental disorder with me. Surely in my case anxiety worsens some symptoms and may possible bring on some other symptoms but not all, and not what initially sends me into an episode! I am so glad for those who have found dr.s who are knowledgeable and willing to help and hopefully for the rest of us, we will at some point, find someone for us also. I think it took a lot of courage to not admit defeat right then and there, and kudos to you!!

What a cutie !!! Somedays I really miss them being that small again. Enjoy!! and take care of yourself too!!

Many hugs and prayers your way! Stay strong!

Hi Roselover, Welcome. I am new here also, but have found this site very informative and supportive. I am still also trying to find a dr. who understands all the symptoms etc. My tilt table test was many years ago and was considered blunted. These past two years have been troublesome with more symptoms popping up often. Hoping by being supportive and reading supportive posts we can help and be helped.

Does this sound like a symptom of dysautonomia? I felt the anxiety building up, felt like the dam opened up and the adrenaline was beginning to run. I tried not to get uptight, my heartrate went up, I don't know exactly how high, but I took a reading a few minutes into it and it was 110. I will have a tachy rate for quite a while after, hours, not at a high rate always bit it will hover in the low 100's or 90's. Almost feels like the dam has to close back before it will completely go away. It happened at about 4:00 p.m. and now at 7:30 it is about 95-100 when normally it would be in the 70's or 80's. I was at my kids baseball games and I think if I would have let myself get really freaky it would have been higher. I took the reading with a event monitor and sent it over, all they would tell me was my heartrate. I'll have to call my m.d. in the a.m. to see what it showed. Anyone experience this type of feeling and long lasting, is it common for dysautonomia? Thanks for listening!