Jump to content

RecipeForDisaster

Members
 View Profile  See their activity

  • Posts

    803

  • Joined

  • Last visited

 Content Type 

Topics posted by RecipeForDisaster

  1.  

    SFN not a good enough diagnosis to get IVIG ? 1 2 3

    By RecipeForDisaster, in Dysautonomia Discussion

    • 57 replies
    • 1,530 views
  2.  

    Tips for first rheumatologist visit? 1 2

    By RecipeForDisaster, in Dysautonomia Discussion

    • 25 replies
    • 1,231 views
  3.  

    Ideas for things to get now that I met my out of pocket max?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 24 replies
    • 822 views
  4.  

    Finally a bit of a diagnosis

    By RecipeForDisaster, in Dysautonomia Discussion

    • 21 replies
    • 890 views
  5.  

    TTT results back, no follow up? And update

    By RecipeForDisaster, in Dysautonomia Discussion

    • 16 replies
    • 1,444 views
  6.  

    Doing worse. Ideas?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 16 replies
    • 1,421 views
  7.  

    Need Christmas ideas for me - health or comfort gadgets?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 15 replies
    • 375 views
  8.  

    Starting home fluids and lupus question

    By RecipeForDisaster, in Dysautonomia Discussion

    • 14 replies
    • 822 views
  9.  

    Mail order IV hydration

    By RecipeForDisaster, in Dysautonomia Discussion

    • 12 replies
    • 685 views
  10.  

    Misleading TTT? Now positive ANA

    By RecipeForDisaster, in Dysautonomia Discussion

    • 11 replies
    • 795 views
  11.  

    New meds (LDN and Adderall), tracheomalacia...

    By RecipeForDisaster, in Dysautonomia Discussion

    • 11 replies
    • 1,530 views
  12.  

    Finally scared.... or is this from too much blood drawn?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 11 replies
    • 831 views
  13.  

    Pounding heart... what has worked?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 11 replies
    • 2,148 views
  14.  

    Acebutolol?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 10 replies
    • 976 views
  15.  

    Galantamine?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 9 replies
    • 844 views
  16.  

    HYCH, anyone?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 9 replies
    • 578 views
  17.  

    Alternative compression-SCDs, EECP?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 8 replies
    • 524 views
  18.  

    Gene sequencing

    By RecipeForDisaster, in Dysautonomia Discussion

    • 8 replies
    • 366 views
  19.  

    Getting access to care

    By RecipeForDisaster, in Dysautonomia Discussion

    • 8 replies
    • 1,428 views
  20.  

    Weird one! Cervical collar causing dizziness , weird vision...?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 7 replies
    • 564 views
  21.  

    Lots of testing--others' experiences?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 7 replies
    • 1,072 views
  22.  

    Portable ottoman?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 7 replies
    • 377 views
  23.  

    Good thoughts, please... possible clot

    By RecipeForDisaster, in Dysautonomia Discussion

    • 6 replies
    • 343 views
  24.  

    OMG. $2k surprise bill for TTT which wasn't even done right!

    By RecipeForDisaster, in Dysautonomia Discussion

    • 6 replies
    • 984 views
  25.  

    New and looking for diagnosis/treatment

    By RecipeForDisaster, in Dysautonomia Discussion

    • 5 replies
    • 1,319 views
×
×
  • Create New...