RecipeForDisaster Posted November 18, 2020 Report Share Posted November 18, 2020 I have not heard from the doctor after my repeated TTT, but I did get the report, and it sounds like I have HYCH. I’m glad I might be on my way to a diagnosis (although it doesn’t explain half my issues including super low BP at home), but it kind of blows that it would be something so unusual that even I hadn’t heard of it. It doesn’t sound as legitimate as I’d like, you know? I know it’s real, but man, I don’t think it sounds that serious to the average person. I don’t know that there is any treatment, particularly that I’m not already doing, but I know for a fact that I can’t breathe less. I was breathing at 6 per minute for most of the test!! I’m always fighting with my body because it wants me to gasp (air hunger) and so I control it and do square breathing or other exercises ALL the time. The doctor came in to argue with me about redoing painful biopsies that weren’t going to be covered by insurance, and which I know wouldn’t be valuable, so my BP was literally twice what it was earlier at home. Plus, I had to go into the hospital alone, and I was a bit lost, and also had to travel into a scary city. If my BP was at its usual, and I had the 37% decrease in cerebral perfusion that I did during the test... I can’t imagine. I’m hoping someone else here is familiar with this! It’s not too different from OCHOS but it’s not the same, either. https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjewJKFl4ztAhXIxFkKHQDjDoQQFjAAegQIBxAC&url=https%3A%2F%2Fwww.ncbi.nlm.nih.gov%2Fpmc%2Farticles%2FPMC6157889%2F&usg=AOvVaw0GQx8Xb-c2Dutxgidr_7Ba Quote Link to comment Share on other sites More sharing options...
Muon Posted November 18, 2020 Report Share Posted November 18, 2020 2 hours ago, RecipeForDisaster said: I was breathing at 6 per minute for most of the test!! https://www.dinet.org/forums/topic/31630-low-respiratory-rate-anyone/ Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted November 18, 2020 Author Report Share Posted November 18, 2020 in my case, I am forcing myself to breathe that slowly. I have bad air hunger, and my body just wants me to gasp... I think my normal rate would be 20 at rest if I let my body do that! Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted November 18, 2020 Author Report Share Posted November 18, 2020 I was also trying to relax myself from my irritation at the doctor trying to argue with me during the test. So, I breathed as slowly as I could. Quote Link to comment Share on other sites More sharing options...
POTSius Posted November 18, 2020 Report Share Posted November 18, 2020 I have read that deep breathing can lead to hyperventilation as well. It is a misconception that hyperventilation is only fast breathing. You can also hyperventilate by breathing too deeply Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted November 18, 2020 Author Report Share Posted November 18, 2020 I guess you can! It’s amazing to me that I could over breathe at a rate of 6. It is never crazy deep, although my body would like me to. I’m not anxious in the slightest, it’s just an air hunger thing. It goes with my dysautonomia issues. Quote Link to comment Share on other sites More sharing options...
Knellie Posted November 19, 2020 Report Share Posted November 19, 2020 What is HYCH? Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted November 19, 2020 Author Report Share Posted November 19, 2020 I provided a link, but it’s Hypocapnic cerebral hypoperfusion. Quote Link to comment Share on other sites More sharing options...
POTSius Posted November 19, 2020 Report Share Posted November 19, 2020 @RecipeForDisaster Are you sure the slow/deep breathing you do is helping? also: "It doesn’t sound as legitimate as I’d like, you know? I know it’s real, but man, I don’t think it sounds that serious to the average person." I think many on this board can relate, with POTS as well Maybe you can just say you have a form of dysautonomia and you don't want to talk about it. Quote Link to comment Share on other sites More sharing options...
RecipeForDisaster Posted November 20, 2020 Author Report Share Posted November 20, 2020 Well, it’s essential for me to sleep, and sometimes it helps my heart rate or pounding. I feel worse if if I let myself "pant". I feel like I’m hyperventilating if I do - fast shallow breathing. Yes, I can call it dysautonomia. It’s just awkward because if most anyone has heard of that, they think POTS is the only one. This seems a lot more weird. It also doesn’t seem to explain half of my issues. Quote Link to comment Share on other sites More sharing options...
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