Jump to content

yogini

Volunteer
 View Profile  See their activity

  • Posts

    3,110

  • Joined

  • Last visited

 Content Type 

Everything posted by yogini

  1. yogini
    POTS and NMH are very similar/related conditions. I wasn't sure if hearing loss for a few minutes was a common symptom of POTS, but it seems a few others here have it too. You learn something new every day! As long as you mention the symptom to your doctor hopefully he/she would advise.
  2. yogini
    What's the reason he can't tolerate the heat? Does his BP drop or his heart rate go up? You might be able to treat the specific symptom that occurs. Another idea would be to look into cooling garments.
  3. yogini
    GI symptoms are common with dysautonomia. Tachycardia and other symptoms wax and wane - part of the reason it is hard to get diagnosed. It can be helpful to keep a log of your HR and BP at various times in the day when you are starting out. And many of us had a sudden onset just as Pippe describes.
  4. yogini
    This is a very common symptom of dysautonomia. It's very scary at first, but the best thing you can do is stay calm, take deep breaths and try to remember you will feel better as soon as you get out of the crowd. It may sound strange but I used to practice going to stores (just for 5 minutes at first, then for longer periods) to accustom myself. That helped. I don't think most people take a specific medicine for this symptom, but it will improve when your other symptoms start to improve.
  5. yogini
    Find other fluids that you can tolerate. How about ginger ale? Eat ice or italian ice? I started with stretching and exercises on the floor and worked my way up to a bike. A bike is really hard if you are just starting exercise and if you can't it, start smaller. Do it for 1 min or 5 min and work your way up.
  6. yogini
    It seems she has several complicated conditions. It might be hard to pinpoint which condition is causing the symptoms. However if you have dysautonomia it is helpful to track HR and BP. Those can be easier to treat. A beta blocker can be taken every day and that is an option to talk to your dr about if you are finding that her HR is consistently high.
  7. yogini
    Have you measured her heart rate and blood pressure when this happens?
  8. yogini
    I think it would be worth mentioning this to your doctor. It could be POTS or something else.
  9. yogini
    Do you live in an area near bad weather? There is a hurricane approaching and this can affect BP even a few days in advance. Even without a storm you will have natural,fluctuations in BP - it might not be the salt intake that is causing the low BP. Menstrual cycle is another common factor, for example.
  10. yogini
    Your dr could explain best but I don't think there is a time limit that your HR would need to go up in the first 10 minutes. IF that was the case the test would only be 10 minutes! A normal person would have a very small HR increase on the tilt. And most people with POTS do not faint at all. Not sure if you received meds during the test which caused your HR to go up all of a sudden.
  11. yogini
    Hi, I would check your pulse and BP a few times when you feel out of breath, to note for your doctor.
  12. yogini
    Oedema means you are retaining too much fluid. It’s not likely to cause the same symptoms as dehydration even if the fluid is in your legs.
  13. yogini
    Wow I didn’t realize he still saw patients! I would want to take my picture with him if I met him. Though I think your best bet with Dysautonomia is someone who spends full time treating it like Dr Grubb.
  14. yogini
    Hi I don’t think exercise is for a particular symptom but to improve Dysautonomia overall. Dysautonomia can cause some anxiety but people take SSRIs to help with Dysautonomia symptoms (heart rate and blood pressure). If you have constant anxiety/panic in addition to Dysautonomia that may need to be treated separately.
  15. yogini
    Dysautonomia isn’t autoimmune. Blood volume increases during pregnancy (and decreases with childbirth). That’s usually why some people feel better during.
  16. yogini
    Pregnancy can make dysautonomia worse. Blood pooling is a symptom of dysautonomia, causing blood vessels not to constrict properly. This symptom (and the condition itself) aren't related to physical fitness. You can be as fit as fiddle and still get hit with full blown dysautnomia. That's what happened to me and many others. If you are able to exercise, though, that might help with improvement of dysautonomia symptoms in the long run.
  17. yogini
    If you are having diarrhea the most likely cause would be a stomach virus. It might not be related to POTS, but you will feel better if you rehydrate.
  18. yogini
    Some people have ups and downs with dysautonomia. That is what the other posters seem to have mentioned. If you are getting steadily worse over time that is something to mention to your doctor, especially if your BP and HR are fine at the time this is happening. It could be dysautonomia or something else.
  19. yogini
    My understanding is that if you have a sustained drop in blood pressure you have orthostatic hypotension (which also has a bunch of other names). If you have a sustained increase in HR of 30+ you have POTS. You can have one or both of these. Syncope or presyncope isn’t needed. People on this forum disagree but there is a very large overlap on treatment of this family of conditions, so I personally wouldnt dispute that part of your doctors advice. It’s a lot of trial and error to find the right treatment.
  20. yogini
    Coffee has too much caffeine for me. I drink diet soda which I know is terrible for you - but it gives me just the right amount of caffeine to get though my day and I haven't found anything else that works. I gave up caffeine for about 1 1/2 years when I first had POTS and I found that I had more energy after I resumed it. I had to pee a lot even when I only drank water. I make up for the diuretic effect by drinking extra water.
  21. yogini
    If you think you may have EDS it is worth getting tested, as a starting point before seeing a chiro, etc.
  22. yogini
    Yes, that is the challenge even with caffeine. It helps with fatigue but also causes tachycardia. For some people the extra energy outweighs the tachycardia but others can't have stimulants at all. Tachycardia also causes fatigue so it is something to think through carefully with your doctors sometimes you have to adjust your doses as it sounds like you did. I found for me getting my HR and BP under control and forcing myself to be active was the best cure for fatigue.
  23. yogini
    I am not sure that doing cardio would help your high heart rate. Have you ever looked into whether the stimulants you are taking contribute to your high HR?
  24. yogini
    A day of sleep can be helpful in a flare up. When I was very sick I used to sleep all day on the weekends so I could function during the week
  25. yogini
    If you stand up slowly and walk around does your HR stay up 30 bpm or more? Or is it only because you are getting up too fast? For dysautonomia it would be a sustained increase, not caused by standing rapidly but just by standing. You should also consider any symptoms of your blod clotting condition as well as side effects of the meds you are taking, which could be contributing to your symptoms.
×
×
  • Create New...