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KnickKnack

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  1. I'm so sorry you're having a tough time. My journey with POTS started seemingly out of nowhere, in January of 2015. It felt like a switch was flipped overnight and I went from a healthy person to a sick person. I dealt with severe fatigue. So bad that I couldn't move from the couch for days and dreaded having to get up and walk anywhere. I was dizzy, had brain fog, racing heart, all the typical symptoms, and it was miserable. I even lost a good deal of weight because eating made me feel sick. Sometimes, I also felt like my future was really uncertain. It was especially frustrating wh
  2. I've experienced bouts of tachycardia at night before, to the point that I couldn't sleep because I could hear my heart racing in my ears. Eventually I made the connection that, for me, this particular event was mostly due to anxiety. When I don't sleep well, my symptoms get noticeably worse. So I was so concerned with getting a good night's sleep that I made myself nervous and my heart would race (which in turn made it hard to sleep!) Not saying this is the case for you of course, just the way I experienced it. As for the energy changes, I have definitely felt that too! Even before I was
  3. @DizzyGirls Just a friendly warning, I wouldn't rely solely on the phone app. I have the same one and started to check my O2 when I was feeling very symptomatic. The readings were consistently low. Some in the low 80's. It threw me into a panic thinking something was very wrong, but I bought a finger pulse ox machine to measure it against. The finger device showed consistent HIGH numbers. 98-99 usually, while the phone app showed low numbers. I actually just checked it now. Finger device is reading 98, while the phone one is reading 91. If you own a finger pulse ox, I would recommend usin
  4. @DizzyGirls Just a friendly warning, I wouldn't rely solely on the phone app. I have the same one and started to check my O2 when I was feeling very symptomatic. The readings were consistently low. Some in the low 80's. It threw me into a panic thinking something was very wrong, but I bought a finger pulse ox machine to measure it against. The finger device showed consistent HIGH numbers. 98-99 usually, while the phone app showed low numbers. I actually just checked it now. Finger device is reading 98, while the phone one is reading 91. If you own a finger pulse ox, I would recommend usin
  5. Sorry for my reply going through multiple times. I got an error, so I clicked submit a few times. Is there a way to delete a post?
  6. @DizzyGirls Just a friendly warning, I wouldn't rely solely on the phone app. I have the same one and started to check my O2 when I was feeling very symptomatic. The readings were consistently low. Some in the low 80's. It threw me into a panic thinking something was very wrong, but I bought a finger pulse ox machine to measure it against. The finger device showed consistent HIGH numbers. 98-99 usually, while the phone app showed low numbers. I actually just checked it now. Finger device is reading 98, while the phone one is reading 91. If you own a finger pulse ox, I would recommend usin
  7. @StayAtHomeMom I haven't been to a chiro, just to a masseuse for about a year, but I stopped going because while it seemed to help in the moment, it actually seemed to trigger worse neck pain and migraines later on. Right now I'm mostly just trying to monitor when it happens, especially the ones that do cause me pain, that way if I decide to see a doctor, I'll have some notes.
  8. Thanks for your responses @Lily and @WinterSown . Always interesting to hear that other people share some of the same "quirks." @StayAtHomeMom Do you happen to know if you can be considered to have EDS without meeting the Beighton criteria but being hypermobile in other ways? Or I guess it would just be considered a form of general hypermobility then. And yes, my fingers and neck definitely feel stiff if I don't crack them for a while. But most of my joints just do it on their own. Last night, I tried to make mental notes of every time a joint cracked or popped. It was basically any time
  9. I've actually looked into EDS as a possibility (my own research, haven't seen a doctor about it.) I definitely have some degree of hypermobility and have since I was little. One time, at a massage therapy session, the masseuse actually broke the usual silence of the session to tell me how surprised she was at how far back my arm could bend! Haha. She told me my chronic neck pain is probably because my joints move too easily, therefore allowing me to sit and move in positions I shouldn't. I looked up the Beighton scale thing though, and I can't do any of the things listed on there. But
  10. Hi all. Not sure if this is even POTS related but I know many people on here experience other symptoms/conditions. Anyone have constantly popping and cracking joints? I'm young (20's) but my bones sound like an old woman's when I move and have for years. It's not limited to a specific joint, it's my knees, ankles, neck, shoulders, elbows, wrists, etc. Seems like I can't make a move without a joint making a noise. The majority of these pops/cracks typically don't hurt, so I've been paying it no mind. I just thought it was something joints did. But lately I've been feeling worried that it mig
  11. I have very frequent headaches and migraines too and have also wondered if they're connected to POTS. I feel the pain all through my shoulders, neck, and head. For me, they seem to be connected to the quality of sleep I'm getting, as well as the weather. I have many more migraine/headache days in the spring and summer and once had a migraine that lasted almost 2 weeks! Painkillers work some times for me and other times do very little. But what I've found does help for me at least a little is doing stretches to loosen up my back and neck muscles. Do you feel tension in your shoulders
  12. Yes! That's the part that frustrates me about the whole thing, wondering if there's something "off" in my body causing the condition that might have an easy fix. Except getting to that fix isn't easy because it could be something that flies under the radar of every doctor. And finding a doctor who knows anything about POTS is tough, at least in my experience. Ughh
  13. I've had severe dry mouth issues for years now, even before my POTS symptoms became prominent. I would feel thirsty WHILE I was drinking water. Got tested twice for diabetes because of it and went through extensive allergy testing as well. But it would get so bad I would be near tears. Using mouthwash and lozenges specifically for dry mouth symptoms seems to help. Coconut water and aloe drinks can offer some relief as well.
  14. @PistolI probably could. Right now a lot of my co-workers are away on vacation, so I'm having to work extra shifts until they get back. Things should settle after that and I'll speak to my boss about the situation. Thanks for the suggestion!
  15. @StayAtHomeMom Thanks for the input. I was surprised when I first made the connection between my hours sleeping and my symptoms. I've been thinking lately about how frustrating it is to not have an underlying cause. But I've heard it's difficult to narrow it all down and have a solid answer. My experience with POTS has been strange. Symptoms seemed to first appear several years ago when I came down with a mysterious illness that left me in bed for a week, then I felt fine for a few years and one day it all hit me again. @blizzard2014 Thank you for your response too. I guess for som
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