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Peter Charlton

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  1. Eating makes me so utterly exhausted that I do not eat a thing until my day is over and I can go to bed. Fortunately another symptom I have is that I lost my sense of hunger, I did an experiment a year back, went v42 hours without eating as much as a peanut, still didn't feel hungry.
  2. Similar to the above balance thread that I replied to on the slightly older thread. And I wouldnt have thought I veered more to one side until reading this and so I wonder if I do veer more to the left and my stumbling to the right is to compensate? I actually said to my neurologist it feels as if I am made of metal and there is a giant magnet next to me, on one occasion talking to a neighbour, I had to really lean against the wall as the force pulling me to the other side was so strong. I think its to my left because I now fear walking along the platform of a tube station with the rails
  3. I just posted my experience with Bisoprolol on this thread here https://www.dinet.org/forums/topic/30812-ventricular-tachycardia/?ct=1575668280&_fromLogin=1 Summing it up, I would say this drug permanent ruined my life.
  4. The day I took them, (very end 2016), I described feeling as if my lungs no longer worked, that I had to remember to breathe, that I felt like a drunk zombie, that I turned into an old man over-night. So I right away cut the minimum dosage tablets in half which was just enough to keep my VT at bay, never-the-less, five weeks later I am found at work slumped against the wall, the nurse couldn't detect a pulse so she gave me oxygen which made me feel ok, the ambulance then turned up to find my pulse to be 40bpm, so I wonder what it was before the oxygen?, I wonder what it was when I was asl
  5. This is the one of the main remaining side effects I have from taking beta blockers for a while three years ago, I notice it is worst when I do not have a visual reference point, standing in the sea and looking down is quite difficult, at work people seeing me walking asked my manager if I was drunk. I also notice that it is worst when it is cold, so wonder if blood viscosity thickens when it is colder? My inquiry though relates to the criteria for having OH. When I was first tested at Queens Square, my blood pressure fell more than 20, but when I went for a tilt table test and also
  6. I had Ventricular Tachycardia, sustained, (not SVT), sustained as in every day for up to 12 hours. It was cured with an ablation nearly three years ago. I too had the trouble of my episodes never co-inciding with NHS investigations, so I bought my own little ECG, a "Prince 180B". The following print was an exact match to how it looked in the ambulance. Mine started as very occasional single ectopic beats, that became more common over the course of a few years as they gradually became so often that they joined together to form VT. Beta blockers are what then made the occasional short
  7. Sometimes mine will seem to read double what my heart is doing. I think what is happening is when my Autonomic Nervous System constricts the smooth muscles of my artery walls causing Prinzmetals angina, it creates such large "T" waves that the meter will read both the "R" wave and the "T" wave of every beat, therefore counting one as two. Here is one of my ECGs demonstrating this.
  8. Thats interesting, two other symptoms I didn't mention, I have a crick in the neck, so I lean my head to one side and get a massive click. I also described feeling as if I had been injected with a local anesthetic, like you get at the dentist, in the back of the neck, so my neck was numb, had this for at least a year but dont notice it so much now. As for the pain in my brain, its still there, but not to the extent it was last night.
  9. Probably not a Dysautonomia problem, but you guys might have an answer. Deep in the back left half of my brain, I get a strong but dull pain if I swallow or move my head into a certain position. Any ideas? I have suffered from feeling like a drunk zombie, balance issues, slurred speech, brain fog and Peripheral Neuropathy for two years now. I have also been seeing movements that are not there in my extreme right peripheral vision.
  10. I would say my experience is the opposite. I had no form of Dysautonomia, no nervous system problems at all, until the day I took the selective beta blocker Bisoprolol. Been off all medication for two years but my nervous system is still a mess. People assume I am drunk due to the way I walk now and the balance issues I have.
  11. All Doctors know is what somebody else who hasn't actually experienced these things has told them. Just looking at the force of those ectopic beats compared to normal ones should indicate to them that the heart is doing something rather more strenuous than the way they are told the heart works.
  12. Two years ago a had an ablation which has successfully stopped the I still get a few palpitations every day, but nothing to worry about, occasionally it will be every other beat for hours, which does make my heart ache the following day. Nobody has told me what caused it, I used to do cycle racing so wonder if I damaged it then?
  13. One of the symptoms I got was losing my sense of hunger, I did an experiment last year, went 42 hours without even eating as much as a peanut, still didn't feel hungry. This is handy as I cannot eat at all until its the end of my day as eating makes all my symptoms so much worst, its as if digesting food uses up the very little energy I have, so my balance gets bad, my speech becomes slurred. Yesterday, I did a lot of things for all day, and as a result was feeling really quite bad, as somebody had suggested not eating was maybe causing my syptoms due to low blood sugar, I got a kit,
  14. When I was working, people were asking my manager if I was drunk, I dont feel dizzy as in inner ear problems, but its as if my balance doesn't work so I am often banging into walls now. As for dropping things, I have to concentrate now to hold onto things else I drop them.
  15. Initially, I thought maybe I had an aortic aneurysm as I would be standing still and then suddenly it felt as if something had suddenly expanded in my stomach area causing all the blood to fall down to my lower half. I didn't feel faint, it was a bit like going over a hump back bridge very quickly. This was just a single ectopic and didn't happen for days at a time, then I would get one. My GP though it felt enlarged but a ultrasound showed this wasn't the case, this was September 2014. I cannot remember what prompted the first wearing of a 24 hour halter monitor, but I didn't get a
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