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The hormones in your adrenals sound like the culprit, the flight or flight adrenaline but other hormones. Your immune system apparently could be weakned. Hopefully you can get stronger! Have you ever researched leaky gut syndrome? Or the celiac diets or paleo diets?

I went to cleveland cinic and got sick THREE times in 3 weeks. The viruses are raging in that environment no matter how careful you are. I took OTC flu meds and it started causing cpap sleeping problems. Be careful not to overdose. They put you out, but dont do great things for your autonomic nervous system.

at cleveland clinic you'd want rheumatology for uticaria. They told me they see about 140 different diseases. The assured me i didnt have that. They can examine you and tell from experience the likelihood of things. They told me the same thing for sclerodoma. My body is overheating but they dont know why. They think it could be endocrinological. My own theory is that it could be celiac related. Im seeing TONS of stuff on celiac forums describing overheating. Changing diet is one way to confirm suspicions. Physicians dont talk much about this unless theyre holistic. Paleo is helping a lot of people. If youre cash strapped id go on these forums, fibromyalgia, celiac, pots, adrenal, leaky gut. You WILL learn something useful, because these chronic diseases overlap.

try checking out dr. frank lichtenberger in statesville nc. He's an allergist and biologist specializing in mast cells. He thinks outside the box and can refer you in different directions. You might email him, he answers back. He might have a connection, he used to work for a research fellowship for an impressive government thinktank.

Can you post where you can get a vest thats not too expensive? I may have to resort to that this summer. Also, what discipline of medicine might solve heat issues? Ive been through cardiology and rheumatology. I should note also that many people are finding help on the celiac diet and paleo diets.

Thanks for posting. Diet is incredibly important in every kind of chronic illness. We live in the era of procesed foods. We also have chemicals flooding our bodies, some causing cancer, some wiping out our flora bacteria, some doing brain damage. Ive been studying celiac (gluten) disease and once again it causes very similar problems across the platform of POTS-like symptoms such as adrenal problems, FM, heat intolerance, weakness, digestive issues, weight issues, and immune issues. Probably add to that internal nervous system problems. Once we understand that our gut is 80 percent of our immune system we dont question diet anymore.

this has been a problem at church. I usually sing the first verse and then mouth the rest. I get very short of breath, dizzy, floating feeling, and weak when i sing. I think its probably about STRAINING THE VESSELS IN YOUR HEAD than it is about oxygen levels. Ive noticed with my CPAP that if I dont have the pressure inhale/exhale right, it causes the exact kind of strain. I call it respirational exertion. Its probably similiar to what migraine sufferers experience, and similar to getting a hangover.

Ive got several disorders, including anhidrosis (insufficient sweating in certain parts of my body) and adrenal failure alongside fibromyalgia and dysautonomic symptoms (palpitations, extreme weakness, low body temp, parasites, and sleep apnea. In the past six months I cannot function at room temperature. Im planning to move north for at least the summer. But the natural gas heat in most offices, churches, and houses absolutely wrecks me. I walked into a mall the other day and felt like i was in a sauna. My best operating temperature is about 60. I sleep with the window cracked or open. When i do work outs its outside even in howling cold with a parka on. Just about every building i go into is too hot, and my doctors nurses all are used to me showing up in shorts, and they open a window before i get there (whch is very thoughtful). Anyone else "managing this"? Medically they've ruled out scleradoma, and other things. The best theory is either endocrinology non diagnosed, or that my blood vessels are contracting near the surface of my skin. Im not sweating sufficiently unless im working out. My body just isnt breathing. Not only is it a pain personally, but nobody wants to be in a 60 degree room. I spend as much time outside as possible. Swimming is my best friend, its the one place where i feel like a normal person. Must cool my inner temp. BTW my body temp is usually in the 97 range. The doctor theorizes that its my internal organs that are warming up. I see a lot of heat intolerance in chronic forums but hardly any at room temp. Im worried about the summer even up north. If i got a flat tire if it was 90, i couldnt change the tire. Strangely thyroid checks out, whose chief function is to regulate body temp. This is either vascular or endocrinological. Anybody overcome this? Sure cramps your style.

Definitely for all of us it is both. You manage every aspect of your health by making changes that help and use everything at your disposal including meds to make life as functional as possible. You also keep seeking answers as hard as you can. You keep researching and exploring (like youre doing on here) to nail down the exact diagnosis. Unfortunately, its brutally hard and we all need to take breaks from it. The doctor was giving you his best judgement. But he has limited time. He has to see 20 people a day. My own sickness has evolved from one thing to the next, i keep learning more and more. Each body system can affect the other. I have fibromyalgia, and theyre now thinking it may be a disorder of the central nervous system rather than immunilogical. Its a lifelong process with a chronic illness which is a challenge but the more info you have the more power. I would never trust any one indivudal person unless they solved all your problems. All else is opinion. You know your body much better than they do.

Wild guess, but how old are you? Do you drink while playing poker? It could be anything from adrenal/thyroid issues, leaky gut syndrome, POTS, immune problems, vitamin deficiencies, electrolyte imbalances. Apparently your nervous system or immune system is going haywire unde stress. These kinds of clues help all of us here to get our diagnoses nailed down.

Im not giving medical advice but I think some of your fears are unwarranted. Klonopin, in my very humble opinion, is not the hazardous brute benzo that everyone thinks---especially for someone with POTS or something like MS. Ive been on it, at higher doses than you for over 2 years. A friend of mine with MS has been on it for 20 plus years. My physician who is elderly says that in his experience it can be a miracle drug if used properly and effectively. Apparently, for some people it calms the various nervous systems and makes life literally liveable for a certain percentage of people. I am one of them. Before i "accidentally" tried it, I was suffering from near debilitation from agitation, shortness of breath, palpitations, and any exertion. I use klonopin as needed, careful not to go off it, and to use as little as possible. But even so, i use it every day, whether its 1 mg or 2. There are many nghts i wake up agitated from sleep disorders (classic hypoadrenia, and fibromyalgia) and it calms my nervous system down. Dr. Cheney has done extensive work on the drug combination of K and doxepine. For some, this combination stops excitoxicity---the uncontrolled firng of neurons. I believe also klonopin helps some people to sleep and to deal with histamines and food allergies. If you google it you'll definitely find people who shouldnt have been on it going through withdrawal. They were misprescribed. But for those who it helps, it can be a lifestyle saver. Some people cannot function without it. Drugs apparently are incredibly individualized as to what helps who. As always, use cautiously and under supervision. But I think its unlikely that its going to do long term damage to you, and you can certainly wean off it if you choose. I dont feel it has harmed me. I had my heart checked out of course when i got sick, and its important to make sure your heartbeat and rythm is consistently good. Remember, many if not most of the things we fear never happen. Instead, the anxiety of worrying about it is what does damage. Good luck.

The crawling itchiness is supposed to be a classic fibromyalgia issue. I believe lyrica is supposed to help with that. Dont worry about complaining. If you dont vent you might get overstressed. When we're sick we need someone to be rock solid in our lives. Your husband is that person,, make sure you heap lots of appreciation on him. He probably appreciates being needed. Thats what marriage is for, in sickness and in health.

POTS symptoms, lower anhidrosis, fibromyalgia, vertigo, pre syncope, sleep apnea, palpitations, tendency to low heartrate, frequent electrolyte problems, extreme sensitvity to MSG, multiple food allergies, disorder of the central/sympathetic nervous system, vitamin B deficiencies, exposure to parasites, eye problems, palpitations during flares, heat intolerance.

I had a horrific break up that nearly destroyed me and im guessing ruined my immune system and hormonal system. Along the same time i had a tooth pulled and was on heavy duty antibiotics for quite a while which may have ruined my gut flora. Beyond that iim not positive.

The latest research shows fibromyalgia and heat intolerance so-associated is caused by central nervous system problems. Interesting to say the least.

Im hypo adrenia. They say insufficient adrenal function does not do well at all with alcochol. Beyond dehydration it messes up your liver function. I suspect it can also "heat" your body up and constrict blood vessels, bring on migraines, flare POTS, screw up kidney function, mess up your electrolytes, and activate mast cell problems. Most likely hard liquor is not good for your stomach or digestive system. Could eventually aggravate leaky gut problems. It depends on your individual diagnosis. Beer has a lot of carbs which could be a whole different problem. Some wines have nitrates which can really make some people feel bad.

Its possible to have esophageal spasms or an abcess in there from reflux. They have to do a scope to look at it. It can affect the muscles that push the food down sequentially. You might want to eat softer foods until you get it checked. Also prevacid OTC may help. There is something called laryngeal reflux which is different from acid reflux too. It can cause shortness of breath because the vapors go higher into the es. and down into the lungs.

Sorry, i spelled the thread title wrong, not sure how to correct.I was confirmed with sweating issue at cleveland clinic. I have blood pooling in my legs. I absolutely cannot tolerate heat anymore, and any sudden exertion (including picking up something heavy) completely wastes me. When i say heat, i dont mean 90 degrees, I mean 70 degrees with the exertion of walking, i'll go into pre-syncope. The only thing that seems to help my sympathetic nervous system deal with it is klonopin, have no idea why. I am unable to work a normal job because its just too hot, i have to work in a cool environment. Most of the time i keep the house at 60. I cannot use heated humidity in my apnea cpap. http://rarediseasesnetwork.epi.usf.edu/ARDCRC/patients/learnmore/FAQ.htm The Valsalvagal maneuver is one of the most important clinical physiological tests for autonomic failure. It consists of blowing against a resistance for several seconds, then relaxing. The instant a person begins to blow, the sudden increase in chest and abdominal pressure forces blood out of the chest and down the arms. This increases blood pressure briefly (phase I). Soon afterwards, the amount of blood ejected by the heart with each beat (stroke volume) plummets, because the straining decreases entry of blood from the veins into the heart. Blood pressure progressively falls (phase II). The brain senses this fall and a rapid decrease in outflow in the parasympathetic nervous system to the heart. The increase in nerve traffic leads to more release of norepinephrine, which tightens blood vessels throughout the body. When the patient relaxes at the end of the maneuver (phase III), briefly, the blood pressure falls, but then blood rushes back into the chest and within a few heartbeats, the heart ejects this blood. The blood pressure increases (phase IV) and since the blood vessels are constricted, produces an overshoot of blood pressure, outflow to blood vessels falls and in response to this increase in blood pressure the heart rate falls. The pattern of these various perturbations gives physicians important information about both sympathetic and parasympathetic function. In patients with autonomic dysfunction, the blood vessels fail to constrict reflexively (during phase II) and so blood pressure falls progressively and does not increase toward baseline at the end of phase II. During phase IV, because of the lack of tightening of blood vessels, there is no rapid increase in blood pressure and no phase IV overshoot of pressure. Instead, the blood pressure gradually increases slowly back to the baseline value.

Yes, i probably was on too high a dose. Im on effexxor now, low dose.

Dumb question, but youre not ingesting any MSG or aspartame right? That flushing, sudden nausea, racing pulse is classic. Beyond that a food allergy related to leaky gut syndrome, low adrenal function etc. Have you had a saliva cortisol test?

Lexapro about did me in. I was on it about a week and I was practically comatose, sweated profusely, and felt manic.

With my personal condition, i call my issues exertional intolerance. If I suddenly spike my BP i geet sick. If i lift something heavy i get sick. I take it easy and walk or bike ride, start slowly, and try to go for 45 min or an hour if i can. Most days i can. Occasionally i just feel too dizzy or weak and head home. I always make sure i dont get too far from home or the car. Sometimes i walk along pushing a bike in case i need to pedal home quick.

Breathing--sleep apnea? Hydrated? Deficiency? Parasites? Asthma? Digestive issues? If you dont get a medical diagnosis soon, klonopin has helped me with this problem, used carefully when i get an attack. It seems to ease the nervous systems. Are you already on meds? Perhaps a wrong combnation. Also research Dr. Cheneys research in fibromyalgia, some people have been helped with your symptoms with his med combo involving doxepin.

I understand some physicians sneering at google, and obviously there are multitudes of hypochondriacs who wrongly diagnose themselves. On the other hand, how many physicians know anything about POTS, or a multitiude of other chronic diseases? A doctor has no idea if youre experiencing anxiety or a physiological problem. Therefore, their "opinion" is completely worthless. Its not a scientific diagnosis. And theyre supposed to be scientists. Now if they say "i suspect some level of anxiety" then thats ok. Anyone with a chronic illness should use anything available to get better or manage their condition. For what its worth, most of us on here have been to more than 10 doctors trying to get to the bottom of things. Unfortunately, you have to be in charge of your own health. If you can find a specialist neurologist to spearhead your search that would help.