tachyfor50years

Thanks for all the updates. Have you had any TTT in the past? Was that negative TTT with him the only standard for not having POTS?

Here is another link, hope it will be useful. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/

I do agree with you Jan, thank you for putting that fact in words! It is 100% true, I am exactley the same.

Thanks for all your updates, please keep us posted. Wishing you all the best.

Smart thread ! Thank you alex74alex for bumping it up! You guys made it easy for me because I experianse most of your symptoms and plus! Here are my bonus ones! (I am not sure if they are all from POTS). 1) Lack of test sensation in the mornings. 2) Difficulty swallowing esp round pills. 3) Lack of concentration to follow a meeting, reading a book, watching something...etc) 4) Dry and sensitive skin. 5) I don't remember my dreams, I only remember nightmares. 6) Dropping things. 7) Seeing flying tiny black objects in one eye. 8) My muscles get pulled, joints get dislocated very easily. 9) Medics can't find my veins easily. 10) (This one is very unusual) occasional strange feeling that I have lived an insident with all it's details before. To be continued.....

For me, I think it is not only the temperature but i think wind, humidity and pressure, all play a role in how I feel. Emma, I am sorry to hear that, hope you feel better soon.

I do not like elevators because after I get off it, I loose my balance and will have this very strange sensation, it will feel like the floor is moving up and down, like I'm bouncing. It usually fades after a minute or so. I have difficulty breathing with racing heart whenever I climb stairs (I have been like this for more than 50 years!).

Dear forevertired, Thanks for the info, my consern is passing out, although I don't do often (once in 3 or 4 years!) and like I said, in 7 years, it only happened once (thank God). The good thing is I get informed (by some severe symptoms lasting for 5 minutes) before I actually pass out.

Dear emma, Do you know if that condition that you mentioned has a medical name? For me, I was not like that when I was a child or a teenager. Thanks.

i hate bananas, Could you please tell me how he found the cause in your case? I want to know what tests did he order? (if you don't mind) Thanks

Dear Linj 10, Hi and welcome...you're mentioning all my symptoms, except for asthma. Living in a place that has a center for our illness and having this forum, are 2 great things. All the best for you.

Dear forevertired, You mentioned: ( in some states you are legally required to tell your boss if you have certain medical conditions ). Do you know which states?

Same here! but mine has nothing to do with caffiene (because I take none!) nor to fatigue.

Dear Marti, Thanks for your reply. No, I will be seeing a Dr. in California. Please let us know and update us about your appointment, hope it will be fruitful.

RichGotPots, I can't wait until you post about breathing! Blinkofani, Same thing here with drinking water. Please ignore and disregard the (anxiety) explanation! lotusflower, Thanks for the 2 terms: (Muti) and (Vocal cord dysfunction).

Dear martiz, Good luck with your Dr, is it a follow up or your 1st time? I don't have any question for him but I have one for you! Do you take your medical records with you? or you just take the most resent ones? because I am travelling pretty soon and I called the office but they were not interested in answering me! they said: whatever you like. Have a safe trip.

Thank you everyone This forum is really my shelter! I have no one in my life who understands my illness, all of them (even my doctor) are in a complete denial except for you guys. Yes Yogini, you are right, it hasn't affected my performance at work at all, not because I did not have symptoms but because I am very good in hiding whatever I suffer from and the 7 years are my proof! Hugs to all for a brighter week and life!

Never helped nor was comfortable for me.

I have been working in this job for 7 years, I haven't told my boss anything about all the daily pain, dizziness, etc and he has no idea because I work part time and for some reason, in all those years with him, I only have passed out once! Now, since I am going to another state for treatment pretty soon, is it a good idea to tell him about my condition, specially when I come back? I am feeling much worse resentley, I feel like I am 90 years old or much more! but I can't afford to quit my job. Please if you read my thread, write for me what you think, I will greatley appretiate it.

Oh I forgot to mention my last hospitalization! if that is Ok with you. I went to a follow up appointment with another cardio, my pulse was 195 with BP of 201/102, so he put me on a monitor in his office and then diagnosed me with (A Fib), that is why he prescribed TIKOSYN (dofetilide) but he admitted me to a hospital for 3 days just to be monitored for kidney function and heart rhythm, which I did great during the stay but I felt awful afterwards. Anyhow I did not take it any more due to the side effects, a year later I had a heart monitor for 3 weeks showing no A Fib, yes, it was gone on it's own! again another puzzle!

Good question, although I have seen something like it on this forum! I have been pushing myself really hard over 50 years, at home, at school, at work, to look normal! Yes, I have been hospitalized many times, one time I had difficulty breathing and my O2 was very low, so they kept me for 5 days and then discharged me with an Advair inhaler which almost killed me, I had a very bad reaction to it, I got better on my own after few days and nobody knew why I had experienced such thing (I mean low O2). Another time I was admitted because my blood suger was very high, the doctor confirmed that I have diabetes, so he prescribed Insulin that back in my head, I was not confinced, anyway right after few hours, I was in the ER because my blood suger was only 20! ! ! ! ! I told the Dr. that I have been suffering from Hypoglycemia all my life but he never listened, and without any meds, I recovered, so I did not use the insulin any more. (because I was not diabetic in the 1st place). If you ask me how do I do my daily chores, I will tell you: by keep pushing and forcing myself through %99 of the activities, I have to do a lot of efforts to brush my teeth or to type this reply!, so how about other things! The way my body acts sometimes, always been like a puzzle for me and for doctors, extreme abnormality (out of nowhere) and disappearing all of sudden, but that was only some symptoms over the years.

Dear Soniasmith 12, you touched a sensitive issue! I have been with my husband for 12 years, unlike me, he is very healthy which is good but you uderstand what i mean! Only one time he came with me to my cardiologist (EP) who told me: (I don't see anything wrong with you physically, try to occupy yourself and I advise you to join a Yoga class or something). Since that time (11 years a go) I am not only can't talk about my POTS problems and sufferings, I also have to hide any expression of pain otherwise my husband will make an ugly remark about the Yoga classes. I am not denying the benefits of Yoga, but I am obviously under a lot of pressure if not abuse! That cardiologist knew about my positve TTT, NMH, MVP, severe migraines, SVT and my very narrow pulse pressure (1 or 2).

Yes MomtoGiuliana, allergic reaction and asthma have been ruled out for me so far! Kimbellgirl, I do experience that bizarre thing too, where my brain betrays me to let me freely put my words together!

Dear KJmom, I'm so sorry that your daughter has to go through all that but I am glad that you have found this forum and she got the right diagnose, Trust me, I developed symptoms while I was only 5 years old and never got a diagnose until few years a go, it took 50 years! ! ! only God knows what I have been through. I just wanted to welcome you and tell you that finding this forum and website is a great blessing. Hugs and kisses to your daughter.

Thank you Readoctober, it is a pdf file, I appretiate it.