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Everything posted by tachyfor50years

  1. Did you pay attention to (intravenous vitamin C (7.5 g to 50 g infusions)? in the past I have had some infusions but never with vitamin C, I just wonder which one would be better for us
  2. For those of us with positive EBV: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4015650/
  3. Hello, everyone, I have an appointment with a neurologist for the first time in my life and I am assuming that he does not know about POTS, can you post a link about Dysautonomia or autonomic dysfunction to take it with me? Thanks in advance.
  4. Welcome and glad that you found us on this great forum, it is really a blessing for all of us. Yes I experience every single thing you mentioned except for the red spots, mine are there all the time but they get bigger with cold weather. Your English is great, take care.
  5. E Soskis, I tried to click on the (Like this) button under your post but it did not work, yes, what a waste of time, energy and money.
  6. Oh brother, I hear you and my husband is much worse than your wife, I am sorry for both of us!
  7. You sweetie, I'm sending you a hug. Blessings and best wishes to you. I am so sorry to read of your experiences, I know exactly how you feel, been there done that in the same exact center but with another doctor. I am glad you had your husband with you, I was by myself (My husband is still in denial).
  8. http://www.washingto...40a2_story.html
  9. Hi all In both cases, I get this horrifying symptom, let a lone many other symptoms. I will try my best to explain this as much as I can; As I said, whether I wake up early or late, I experience this unpleasant feeling where I feel parts of my brain behave as if they are still asleep! it’s like my brain slows down and shuts off, or becomes dysfunctional, I will be about to put salt in my morning coffee instead of sugar! and I am getting slower and slower (I need an hour to make my bed and change my clothes). Is my Dysautonomia changing to a neurological condition? Any input will make me feel know that I’m not alone in my foggy moments!
  10. So sorry to hear that, hope you will be close to normal soon. When you say Hospital, do you mean ER? and what did they give you if you don't mind. PM me if you want.Take care
  11. http://kfor.com/2014/03/04/oklahoma-teens-dreams-of-basketball-dashed-by-unusual-diagnosis/
  12. http://onlinelibrary.wiley.com/doi/10.1111/1755-5922.12067/abstract
  13. http://lup.sagepub.com/content/early/2014/02/25/0961203314524468.abstract
  14. When I went to Vanderbilt in October, they asked me if I agree if they use my blood for their studies and without hesitation I said yes! but I don't know if they used it for this study.
  15. You are very welcome Corina and Looneymom; Yes indeed, it is really tough to keep vitamins and minerals in balance with POTS.
  16. No details on the 1st one though! http://www.vitasearch.com/get-clp-summary/39990 http://www.ncbi.nlm.nih.gov/pubmed/21622825
  17. https://www.youtube.com/watch?v=5bqsKbjLbCs
  18. All that happened to you is in my migraine dictionary! it happens to me when I take my migraine med kinda late and whenever we get a low Barometric pressure (right before a storm), but since I got familiar with it usually I don't get scared unless I experience powerful irregular fast heart beats, that is where things go out of my control. Hope you get better.
  19. http://www.livestrong.com/article/549823-postural-orthostatic-tachycardia-syndrome-and-ginger/
  20. http://blogs.scientificamerican.com/molecules-to-medicine/2014/02/18/have-pain-are-you-crazy-rare-diseases-pt-2/#comment-727
  21. I went there in October 2013 and had a negative experience. I was so upset and disappointed (If you search this forum, you will find some of my old posts). I insisted on having some of the tests so they did them in one day and I went back the next day to see the Dr. who was not helpful.
  22. I am in the same boat with some of you guys, I get a lot of symptoms (headache, Nausea, body pain and extreme fatigue) with barometric pressure changes ( whenever it gets below 30) every time I double check it on Yahoo weather and I am %100 right!
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