Dear issie, I am really sorry and I can relate, trust me, my first passing out was 50 years a go when I was only 4 years old, and for your knowledge the one who found the right diagnose was ME! (I have been reading and searching about POTS since year 2000 online and books plus medical journals) yes I told my EP that I am tired of all the EKGs and pulse been taken only in a supine position, I asked him to ask the nurse to take my pulse during different positions, he did but he was not happy! in fact he brushed me off to his partner who got retired after few months, then I saw a new EP who was not interested at all in my case, he only loved to do prosedures, he did not even perform my TTT, his PA did. Long story short! due to living in a small city in midwest, there was no other EP and I tried 3 neurologists but they did not have a clue! so I went to the capital of my state which was not a good idea because the Ep there did not even know what POTS is! so he referred me to that clinic in California after I cried like never before, I told him here is a dead end for me! he must do something about my case, I have been suffering in silence all my life. For half a century I have been through a lot of pain, walked on the shoulders of jiants but nobody knows about my daily sufferings, nobody in my family, no one at work (Yes I work in a sitting position!) they all know that I am not normal like them but they have no clue whatsoever, I don't blame them, EPs, neurologists did not know about my condition, so why would I expect ordinary people will understand more than those specialests?! Thank you firewatcher for your valuble note about the thread.