tachyfor50years

Oh Sue1234, you described it just perfectly, thanks you said it all for me! ! !

Same here!

I forgot to mention that this happens a part from hot flashes or feeling hot in my whole body ( the heat is only in my head! ! ! ) Yes Naomi, I am the same like you mentioned about the skin. Lindajoy, I don't know about my face turning red at that moment, because I have no energy to make it to my mirror ! Thanks guys for your quik reply.

Hello everyone, I have started having a very strange symptom lately but not sure if it is related to POTS; I wake up from my pillow getting very hot and when I touch my head, it is very hot too but no sweats (completly dry). I would like to know if anybody else have had this. Thanks for reading in advance!

You are welcome guys!

Hi everyone, This artical is really old but very informative, esp for those of us with this type of POTS. Here is the link: http://hyper.ahajournals.org/content/45/3/385.full

Dear Gloria, Glad to have you join the forum, a great place to learn and share. Nice to meet you! Good luck with our forum and hope you find a caring dr.

Hi my friends! I just wanted to share with you this link which leads to her other vedios: http://www.youtube.com/watch?NR=1&v=LgNsK4jcs2k&feature=fvwp

Hi everyone, http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=16928

1. Can foods. 2. Meats or dairy with hormones. 3. Anything with artificial colors. 4. Foods with preservatives. 5. Foods with artificial flavors (MSG). That is why I can't buy most of the foods in grocery stores; it is hard and expensive to find natural non toxic foods nowadays.

All I can say is have you thought of hiring an attorney? Have you seen this info in this link? http://www.nolo.com/legal-encyclopedia/social-security-appeal-denied-claims-30167.html

I have thought those thoughts too! My heart goes out for you Linda. Feel free to pm me if you want. My prayers for you and all of us!

I hear you sister! Glad that you brought it up! Mine is like a cellphone vibrating for an hour or two! usually in my chest and abdomen, it feels like a pulsating sensation that is painless but very annoying! and I could not stop it because I have no control of it. The rhythm in my case is usually high speed and I can very much feel it within. Sadly, I think that there is no test to detect it. I just wonder what could this be? Hormones? Something neurological? digestion? blood circulation?

By the way, my Tenormin was not prescribed for POTS neither for high BP, I have been taking it for preventing migraines.

I forgot to mention that I went to ER for severe chest pain lasted more than 4 hours. Why those doctors can't write (unknown or uncertain origin) instead of giving us wrong diagnoses?

Dear Elfie, I read your post with tears, I had to dry them now and then. I really know what you are talking about, as I mentioned in another thread, half of our suffurings come from mistreatment and cruelty of people especially from medical professionals and their (police power) ! I am thinking of all our sad stories, I wish if somebody can make a movie (a very powerful one) from them. You're in my Comforting Thoughts... Wishing You Comfort and sending You Cheer ) Brightly Warm Blessings to You hun.

Long time a go, I went to the ER, I was treated like a criminal. They poked me 13 times then finally they found my vain and they started an IV. After I was well hydrated from the IV fluid and was given a med to calm me down, they too my BP, the stupid Dr told me: nothing is wrong with you except your heart rate is 115 at rest! because you have anxiety. While I was leaving, the Dr. from ER was far a way from me, he shouted: Next time, don't play games with us, just take your meds and stay at home. (I had the worst migraine ever) I was so upset and disappointed when they discharged me with untreated tachycardia at 2:15 am, I had nobody with me to drive me home, I hit a curb and damaged my car under the influence of meds and Dr's mistreatment. I drove home and never been to the ER since then.

Oh dear, my prayers for you to get better soon. Several years a go, I had the same reaction to Florinef and Midodrine but my EP was so rude and never believed me when I called him, in a mocking tone he asked me if I am reading the side effects from the med's package insert! he hurt my feelings and made me feel worse. I never went to the ER because thankfully I was able to survive on my own. Please let us know how you doing now. Take care and thank you for sharing..

Thanks Rama for the link. Momtoguiliana, I read that in a lot of researches and papers, that is really untrue, I am over 50 and got worse in the resent years, that is why my PCP referred me to Dr. Ahern in California after all those years.

Dear Corina, Yes you are right, there is no code for POTS yet. I found this interesting link for searching codes for illnesses, diseases and syndromes: http://www.findacode.com/icd-9/796-3-nonspecific-low-blood-pressure-reading-icd-9-code.html Thank you for your kindness.

Long time a go, I was on one of the (Antidepressants) for POTS then one day my boss told me: (I know that you have Depression ! ! ! ) man! I was so mad and replied: (NO I don't have Depression, I am taking this med for my rare condition); I never mentioned POTS or Desautonomia for many reasons. I wished if I had a label on my med stating (POTS) would have made the issue so much easier for me. I just wonder if our illness has a code recognized by Health Care Professionals.

Hi everyone, I just wonder if any of you guys has a prscription bottle written on it ( take one tablet by mouth at bed time or every day..bla bla bla for POTS? I have been asked a lot of times by doctors, nurses and techs what is my Tenormin or Inderal or.....for, is it for high blood pressure? usually I say: NO, I have low blood pressure! and that is where I get all the strange looks from them! My point is, I may ask my Dr. next time when he puts the refills in, to write: (For POTS). I would like to see your opinions guys. Gentle hugs for all of you!

Thank you corina, that is so kind of you.

Thanks sue1234. He will keep in touch with my Primary care physician to guide him in treating me because I do not live in California, he will be doing that for free ( God bless his life).

Hi guys! I just got back from my appointments with Dr. Ahern in Scripps Clinic in La Jolla, California. For the 1st time ever I see a Dr who is on my side. I felt so relieved when I saw him taking me so seriously. He is really patient, caring and eager to help and hear you; (He stayed with me from 4:20 to 5:35pm, I was the last patient). He is an excellent physician who took the time to really understanding me and my medical history. He is truly one of the best doctors I have ever encountered, he is thorough and extremely knowledgeable, attentive and also very friendly and make you feel comfortable, I highly recommend him. Too bad that he is not in my state!