dezyrae2

I have had that happen to me also. The past few days have been very bad for me. I cant wait till april to go back to the cleveland clinic for testing. I am hoping for some answers. I just added you to my facebook page of friends because i saw your link on this page. I hope you'll accept my request. My name on there is Desi Labanoski. Also I see you are from PA I am also.

I had one a few months ago and i felt nothing. The nurse injected the solution in very slow and that made it much easier and i didnt feel that rush feeling. It was fine. Good luck.

Just wondering if anyone has seen Dr Fouad at the Cleveland Clinic and what results they have gotten from her. I am scheduled to see her on July 28th and would like some input if at all possible. Thank you. Desiree

Thank you for the reply. I wish you all the best at your appointment and am looking forward to talking with you about your experience. Good luck and safe travels!!!!

Hi, I was wondering if any of you have gone to the cleveland clinic and were seen by Dr. Fouad? I have an appointment at the end of July and was just wondering how she was as a pots doctor. Also did she do tests that day or order them for later. I live in northeast pennsylvania and it is a six hour drive for me so i just wondered if this was a one trip deal or if i may have to go back. Also if you did go there and have to stay over, where did you stay. I see several hotels near the hospital but i just thought if anyone else stayed there they may have a good suggestion. Thanks for the replys in advance!

I was a hairdresser with my own salon for a few years when i was diagnosed with pots and the doctors said the chemicals were part to blame for the problems i was having. They told me no more perms or colors and i know when i do my own color now i suffer.

This is just too funny that you wrote this because I love this show and i often think the same thing. I wish there was a health show to make all of the problems that we have just go away. I would work my tail off to get rid of these problems. I just am glad that someone thinks like me.

Amazing job.

I am very frustrated. I went to the ep last week and had my third ttt. When it was over they told me I had POTS, but i have been being treated for pots by this same doc for the last 5 years. What the heck? How do you keep diagnosing someone with the same thing over and over and not give any treatments? I went to my family doc today and she was floored!!! She is now going to see about sending me to the cleveland clinic. The other thing is that now i have to get an ultrasound of my thyroid and see an endo doctor. I had radioactive iodine to destroy my thyroid 12 years ago so i dont understand why i have to get this now. I had graves disease but i thought that the iodine made it go away. I am just so confused and I am feeling totally depressed all of the time any more. I just keep getting these stupid adrenaline rushes, heart rates in the 150's, dizzy all of the time and sick to my stomach. I just wonder how to deal with feeling so in the dumps all of the time. This is so frustrating cause i do what i can but i cant do near the things i used to and i feel like such a waste to my family and friends. Also i applied for ssi and still haven't heard a thing and it has been 2 months already. Sorry for all of the whining but I just feel so lost. Thanks Desiree

Just curious if anyone ever went to the cleveland clinic. I live in pa but my eye dr told me his wife went there and had great results. I don't know if I could even go since I have medical assistance insurance but I just wondered how anyone else did there. Thanks.

I dont know if any of you watch dancing with the stars but last night the first dance had a song on it that could be the theme song for all of us potsy people. I cant seem to find any humor in this problem at all but this song fit so well. I googled it and it is called gravity by john mayer. Download it and listen to it for a little chuckle. You would think he read this site and then wrote the song. Hope not to offend anyone with this I just found some of the words fit me with pots so well. Hope everyone is doing a good as can be.

A few times in the last month I get woken up and I am extremely sweaty, my heart is racing and i am totally out of breath. The only way I could explain it is as if you were holding your breath under water and you come up for air. I dont know what it could be. Any ideas? Thanks

I did just that today. I went to basketball practice to help my fiance which i used to do myself and i hardly did anything and my heart rate shot up, i started sweating and i lost my breath. I was only up about 10 minutes. I get very frustrated cause i used to coach my own team and i sometimes feel like i can but days like today remind me just how sick i really am. It is very frustrating. I hope you feel better soon and dont over do it. I guess i should practice what i preach. hahaha

Hi All, I had my social security hearing yesterday and it was actually a piece of cake. I was really nervous over nothing. The only catch is that they said i wont have an answer for about 3=6 weeks. I thought they would tell me right on the spot. But at least the waiting for the hearing is over. I waited over a year. Now just have to wait for an answer. Thanks for all of the good thoughts though. You all are sooooooo great!!!!!!!!!!!!!!!!!!!!!!

I have my Disability hearing tomorrow at 2pm and I am really nervous. My future father-in-law just passed away last week and now my hearing is here and my nerves are shot. Does anyone else have major pots flairups with excessive stress. I really dont know what to do to calm down. I am just glad i can come here to talk. Thanks Desiree

I just want to tell you how nice that picture is and i think it is great that you could do things with someone who has what you have. I dont have anyone around me that i know who has pots so that is great that you have eachother. And that is wonderful that you have great husbands to push you around. Hang on to them. Good guys like that are hard to find. Thanks for the smiles.

I wish i had an answer for you but i don't because i feel exactly the same way. Just this past week i felt like this every day. I felt like i was going to die. It is really scary and i also have kids. They are 12 and 14 and i just worry that i wont be around for them. I hate to tell them that but when i feel like this i just dont know. I also keep the phone with me where ever i go. just in case. I hope you start feeling better soon and i hope you have a good trip. I guess we just have to hang in there and hope it all passes. Best wishes.

Congratulations!!!!!!! I am so happy for you. I just found out yesterday that i have a hearing coming up on Sept. 10. I am very nervous though. I hope mine goes as good as yours did. I am waiting for a long time too.

Hi I have been getting the same thing like that. My doctor just said i should try zoloft for it to see if maybe i have pmdd with the pots. I didnt try it yet though. I will let you know if it works. Good luck.

I also have TMJ. Dont use a guard though. it gags me. I clench my teeth alot. I think it is alot of stress though. Maybe could be a pots thing though. Who knows. We get so many crazy things.

I use ibuprofen all of the time and it actually helps alot. Especially with my migraines. I guess we all just react differently to meds.

Boy this thread makes me feel better. I just got reports from the hospital to take to my ep and i read the cardiologist report and it said severe tachy with position changes. sounds like pots huh? then he followed by saying she seemed a little too happy almost hypomania and maybe she should have a psych eval. you should have seen this doctor. he told me that there is no such thing as pots and i made that up and when he was checking my pressure he held his head upside down to read the monitor. i think maybe he needed to get a psych evaluation. hahaha

First of all the good news. I just got engaged. I am so excited actually a little too excited though cause my pots started acting up a little. It is worth it though to be so happy. My daughters are thrilled too. Next for my questions. Has anyone ever taken multivitamins and felt sick from them? I just took one this morning and about 2 hours later i felt extremely nauseous and got a big hot flash. My heart rate went up very high too. The only different thing i did was take the vitamin so i thought maybe that was the problem Also I would like any feed back from anyone who could help with how paxil works for pots and for different individuals. My doctor wants me to try 10mg of paxil. She said first start out with a half though. I am just really scared to try it cause i am so sensitive to medications. I read on it and it seems to have some awful side effects. So if anyone is on this or tried it for pots please let me know what you all think. Thank you all in advance. Desiree

I just had the same thing happen to me. I was in the hospital for four days for dizzy and passing out, crazy blood pressure and heart rates so my family doc told me to call the ep doctor. I called two weeks ago and again last week. The receptionist told me sorry they will call you today but here it is 3 weeks later and still no call. I get so mad. If they dont know how to help or want to be my doctor just tell me. Ahhh!!! so frustrating.

Hi I am sorry you are feeling so bad right now. I know how you feel though. I just got out of the hospital Monday. I was in for four days with no new help of course. If you ever want to talk you could call me anytime. I will pm you my cell number. Also i see you are from pa. I am to. What part are you from? Desi