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Sallysblooms

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Everything posted by Sallysblooms

  1. B vitamins are good, Alpha Lipoic Acid is very important. Antioxidents in food and supplements is very importnant. You also have to make sure blood sugar is never a problem, high blood sugar is bad. Smoking is also bad. Lipoic Acid Supreme has good ingredients. Maybe the doctor can learn about it. Really important. The dose is critical. Most docs do not know about it which is odd. Even if it doesn't completey take it away, it can keep it from progressing. Good to try if you get the brand and dose correct.
  2. I don't know why he thinks POTS only affects us when we stand?? Odd. The nervous system is not working correctly, that is sitting or standing. The symptoms are usually worse standing, but not always. That is like saying my CFS only affects me sitting up. The problems are always there, just better in some positions.
  3. Up to 80% of people are deficient. Very common but important to bring the level up.
  4. I am not allergic to it, but I have read so much about how it can be bad for the nervous system if you are just sensitive so I stopped in August. I take lots of good supplements at the same time, hard to say how much it has helped but I DO know that is the month I started to improve.
  5. I watched it today. I have CFS (18 yrs) and POTS (2 yrs), they do often go together. Sure hope more is done fast.
  6. Thankfully now, most docs are testing for it.
  7. Tests can't tell you if you are just sensitive and that affects the nervous system so I do not eat gluten. I do it to help my POTS and CFS.
  8. Most people in general are low. My hubby is also and he is healthy. I was low also. We take drops from the doctor. It is very important to get tested and then to retest after taking suppleents.
  9. Hormones are a big reason, Thyroid for sure. I now take compounded hormones and Thyoid also. Hair is great now. Hair and nails grow faster than ever.
  10. That is a new one on me for sure, unreal!
  11. I have always been sensitive to sound and smell since my CFS started long ago. It all got much worse, but I took supplements for low seratonin. Seratonin affects these things. I am better now, I am easily startled too, but that has improved also.
  12. Yes, Chaos, small fiber and autonomic neuropathy are not the same, you do not have to have both.
  13. Train Boys, I take 600mg of Lipoic Acid Supreme. Doctors carry it. It has taurine and boitin as well as Alpha Lipoic Acid. My feet are fine now after taking it so I have to figure it is healing nerves to the heart and muscles etc. at the same time. My doctor told me how much to take. She told me I can increase so I will. I take many supplements but she helps me with all of it, I don't just take them on my own. I used to, but the dose and brand is hard to get right alone. I didn't have Peripheral Neuropathy, but I think it was starting. The nerves were affected for sure. Starting the Lipoic Supreme early was so important. Started to feel a difference in about three weeks. It really is good, for me at least. http://www.prohealthsolutions.com/productdetails23.html http://patient.designsforhealth.com/Lipoic-Acid-Supreme-60
  14. The Autonomic Neuropathy is often the problem. That is my diagnosis. The nerves control the body functions, blood vessles, muscles etc, and then do not work right. I am working on it with Lipoic Supreme. ALA. It is really good. Healing my nerves.
  15. I wore a chest strap monitor for a long time. I am sick of that strap. Hard on my tummy. I wear strapless watches now. Just put two fingers on. Just as reliable as the strap ones.
  16. Women need the right level too. I am tested for all hormones every 6months. I take compounded hormones . Testosterone is one of them.
  17. I seem to always say this but please find a doc that can understand supplements. Lipoic Acid Supreme has done wonders for me. No more problems with nerves in my feet. You have to find a doctor that can help with the dose and brand. Supreme is best for me.
  18. I get it from my doc. I am on the Dzugan program. I think it is mag. citrate.
  19. This IS a very good article! Thank you so much. I will keep that one.
  20. An honor indeed. They were lucky to have you. How sad. I studied to be an RN, and found it was not for me. I did love caring for people, mostly old people. People that had wonderful stories and lives. They often do not get the respect they deserve. I don't know if that is a problem, being with sick people. Many do it all day everyday. Just don't know. Usually most people do fine, the immune system works very well.
  21. Magnesium powder is great for that, at least for me. Also, hormones can be off. The first time I twitched was before POTS. I had just had a hysterectomy! So that pretty much told me the main problem.
  22. How are you doing with the Lipoic Acid. I take Lipoic Supreme so that is all I know about. Not sure about others. I hope it helps. Let us know! It is doing a great job for me.
  23. I would not be able to work with a doc. that didn't understand POTS, hormones etc. Maybe you can find another one. I finally found good docs that know about POTS but also know about compounding hormones...the correct dosing etc. At last they really understood so I can now sleep great. Being ill, stress OFTEN makes seratonin lower. Doctors should know that. There are supplements that help that without taking prescriptions. Takes a lot searching to find the right doctors.
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