Sallysblooms

I have had CFS for 18-19 years. I got POTS two years ago. My doctor hasn't seen antivirals work very well for long periods of time. She helps me strengthen my immune system. I get blood tests for a lot of things twice a year, including Epstein Barr. I am a member of Phoenix Rising also. I have made a lot of improvement with my CFS since I have started a new schedule of supplements. I just hope the stupid POTS can keep improving. Thankfully I am much better than I was.

I am glad you are getting care. Don't get too sad. With POTS the symptoms can get better. Mine sure have. With Autonomic Neuropathy, I really got better with Alpha Lipoic Acid. Finding a good doctor that knows these things is important. This and other supplements have me SOOOO much better. I could not get out of bed for months. Finally got to see my CFS doc and began a regimine of good supplments. Best of luck. Let us know how you are.

I am middle aged. Just keep your bodies as healthy as you can. I take supplements to help me be as strong and keep my immune system as healthy as I can. A good doctor can help you with supplements and you can support your body. Blood tests can help tell you what you need. Vit. D, B12, etc. Very important to really care for your body. Stay postitive, I have had CFS for 19 years, POTS for about two. I have had other problems. Sometimes we get a hard road,like many people, but we can handle it, we are strong.

I am so happy for you. I also love my doctor. Too many are CLUELESS and not interested in learning anything. I hope you have wonderful luck with what he helps you with.

I am doing fine with them now. They needed to be worn a couple of times to stretch a bit and also, not be put on after walking. I am also looking into trying Jobst. They have some nice colors in the waist high. I sure appreciate all of the help. I wish I had tried them earlier when I was more ill, but at that point, I could not put them on anyway. So weak. Thanks again!

I heard that you should lie down before putting them on. That way the blood is not in the lower legs. I did that this eve. after a nap. I do not keep them on for too many hours at a time.

That is too bad. I didn't know you could wear them that long.

I am so glad you got the test and diagnosis. How awful that you usually have to wait so long to talk about results of tests! WOW.

Mediven is the brand. I really like them. 15-20 is the strength. Just that they are tight on the top of my foot, the marks are gone now. I will call my doc Monday to check. I really felt better with them.

My hubby took me to get measured for compression hose today. My doctor said I could get any length I wanted. Well, I got the least of the numbers, but still plenty of strength. I had hoped they would help, but they really DID seem to, shocked me. Kept my heart rate around 108 standing and walking. I took them off to take my bath and the top of my ankle had two dark lines. HUM. My feet and toes were fine and no line on the calf. My doctor said they should not make a mark, for safety/blood flow. I guess I have to call her Monday. It has gone away now, but I was wondering if this happened to any of you. You know where your foot bends, top. I was so happy until I saw that. The lady measured me. I want to wear them. Thanks.

Your doctor should explain everything to you.

Integrative docs have been the only good doctors for me.

It is pretty common. I have read about them on the internet quite a bit.

A good CoQ10 is very helpful for that.

Lieze, I have astigmatism and cannot wear contacts. Contacts are really hard to wear with that problem. I am glad you also have reg. glasses. It is more stable for astigmatism. Contacts move around. It made me horribly sick and dizzy when I tried them. Great to know your eyes are fine! I love hearing all is fine there once a year. Glad you are making some progress with a little food and measuring blood sugar etc. Make sure you look into buying a seat that folds, cane seat. This really helps POTS. Sending good wishes!!!!

Stress and many things are triggers for me. Seratonin often goes very low when we are so ill so testing that would be good.

I hope you stay stable and I send good wishes!

Thank you so much for fixing my avatar! The more the better with avatars. Looks nice with a lot of them. Warmer.

Think I'll have tok give up for now. Would be so nice if everyone could get avatars. I tried it all.

Tablet, they followed a pattern for years, then they were almost constant once perimenapause hit. That happened young. Hormones going up and down really can be horrid.

I have NO idea how you are doing it. I am grown, my child is out of the house on his own/married now and when my hubby leaves town, he takes me to my parent's home. They always help me. I just take my little dog so it is easy. I will say that you may not want to haul a wheelchair around but it would be great. I have two. They REALLY help on bad days. If not that, then a cane seat. It folds and you can sit in a hurry. Also, you can go to a medical store and get a folding shower chair. They are really sturdy for dizzy and lightheaded times. I have all of the above. I don't drive but I use the wchair in my home and we keep another in our SUV. I also take a folding chair in case I feel good enough to walk more. Overdoing it never helps so at least having a way to sit while out might help.

I have had CFS for 18 years. Two years ago POTS began...

I tried it but will try again, thank you.