Noreen

My experience too Stace except I take the short acting version but the time frames are the same.

Anxiety attack here too. A literature review article cites the efficacy of midodrine and bases some conclusions on unpublished data provided by Shire. http://ndt.oxfordjournals.org/cgi/content/...amp;keytype=ref

[quote name='dsdmom' date='Aug 13 2010, 10:18 AM' post='144373 I take 10 mg of Adderal in pill rather than the time release. I took up to forty when I was working.

I've had at least six, probably more, over the years. I wouldn't worry about it but I tend to take a pain pill prior to the test so I don't tense and hurt my back from having to remain in position for 20 minutes.

Have you thought of Public Health? Epidemiology would seem to fit you perfectly. Here is a link to a free intro to Public Health course. http://www.asph.org/UserFiles/PH%20101%20Collection.pdf Johns Hopkins Bloomberg School of Public Health also has oline courses. There used to be a repository of online PH courses - Supercourse I believe but I no longer have the link. If you are interested let me know. Swiss School of Public Health website - http://www.ssphplus.ch/spip.php?page=ssph_home〈=en

Given your age, I would probably try a couple courses and see how you do. I was so upset when I had to give up getting my MPH but I was also working at the time. One thing to keep in mind is that hospitals are huge - it easily can be a mile walk to your desk from parking even with handicapped accomodations. What is your undergrad degree in?

I am with you there. If anyone wants to urge them to address this ASAP - The contact information for the Shire is: USA For all Shire Specialty Pharmaceuticals customer inquiries or to report an adverse experience with a specific Shire product, please call 800-828-2088. Shire Specialty Pharmaceuticals customers may also contact us by email: Medical Information Please email medinfoglobal@shire.com Customer Services Please email CustomerService@shire.com

That is not good news. Why do they start on the one drug many of us benefit from? l FDA link http://www.fda.gov/NewsEvents/Newsroom/Pre...s/ucm222580.htm

When I saw this NY Times article I thought of you. http://www.nytimes.com/2010/08/14/health/p...ance&st=cse Not a lot to offer there but they do list one site which brokers insurance. Given that your case is unusual, and therefore of educational value to physicians in training, I am wondering if your doc could reach out to docs at Harvard Medical to ensure continuity of care. You have the workups showing any structural problems with your heart - those are really the big ticket items which the student policy is probably trying not to pay for. My cardiologist hasn't been all that helpful.

But you have a physically limiting disability which is not susceptible to normal accomodations which can be made for other disabilities. Perhaps he thinks you could do it if you had an environmentally controlled space suit and a reclining wheelchair. Personally I can't see getting hired in such a get up.

Your prayer is beautiful!

Which method do you use - tincture or pills? If you have had luck with pills, what brand? I have hesitated to try any pills since I have best luck with motherwort but I sometimes have a problem finding it.

Corticosteroids can irritate the stomach. I was told to always eat something with the pills. Hope you are feeling better soon.

Everything sort of depends on why you were prescribed the methylpred. Which doctor rx'd it, at what dose, and for what reason? There are many diseases for which it is prescribed which can also give you many of the symptoms bothering you. I was on corticosteroids for 6 years at doses ranging from 40 mg to 2 mg. Corticosteroids are really not to be messed with without medical supervision. E.g. you can't suddenly stop a high dose after being on it for a period of time without dangerous results such as stopping your heart. You have to check back with the MD who gave them to you.

I have had the same experience with Kava kava. Valerian did not have the same effect on me but it has been quite a while since I tried it I have had good luck with Motherwort Motherwortas an anti-anxiety med. I use the tincture formulation, however, and this naturopath disagrees in his thesis with that mode of administration. How are those who are benefitting ingesting the herb? It could be that for some the tincture form while less potent is more agreeable for those of us with autonomic issues.

Sorry I hadn't realized the rave scene was present in other countries. The US NIH has attributed serotonin syndrome to ectasy use Your situation is so different because it has lasted for so long - well beyond any normal half-life. A medication mentioned that might be worth checcking into is Cyproheptadine (Periactin), a drug that blocks serotonin production. best of luck, noreen

Glad the bystolic is helping. My sympathy on your back issues. How are your migrainess?

Have you thought about applying to NIH undiagnosed disease program ? As your doctors have reached the extent of their knowledge, hopefully they will support you in your application. I so hope something works to ease your symptoms. noreen

Vinegar, baking soda, borax are all safe. It is amazing what can be done with vinegar. Generally though good cleaning is from elbow grease - a scant resource for us. Here's a link to age appropriate chore lists for kids. http://housekeeping.about.com/od/chorechar...eapprchores.htm

I was prescribed CoQ10 for migraines = 1000mg by a headache center. Reduced dose to 500 mg ddue to cost but I have so many things going on it is hard for me to tell whether the change made any difference. The NP at the cardio office liked that I was on it. I wouldn't be concerned about any effect on BP .

Colloidal Silver is listed by the recent Consumer Rports as one of the top 12 supplements dangerous to your health. Be careful - if it turns your skin blue, it is permanent.

Hi Jana- did they do a bone scan to diagnose you? I don't have the results of mine yet. I have a variety of wrist splints and braces from dealing with RA, hypermobility syndrome, and chronic wrist pain from a work injury. It depends where the pain is whether a brace (and which one) might help. I use lidocaine patches on my wrist and generally put a brace on over it to keep it in place. the lidocaine patches help and were prescribed by a physiatrist, As I am on Topamax I can't do Neurontin. Cymbalta 60 mg bid helped for several years. It was originally developed for chronic pain. What type of doctor are you seeing?

So sorry for how you were treated. Just a thought but perhaps you could check out Mass Limited insurance. I think it is set up for non-nationals already here but maybe you could squeak through on disability issue. essentially given your condition, you would end up disabled here due to the risk of syncope. Maybe the student rep office could give you some help. I hope something works out for you

Sounds like a good doc to me - he is concerned, caring, doesn't want to do anything to make things worse, and he listens (and it sounds like he listens respectfully). I tried acupuncture for migraines and had horrible reaction. You can always give Giardinera, Italian mixed pickled vegetables, a try for variety. Hope you get some relief, noreen

Maxine- Praying that your pain subsides and that you are granted strength to help you through all the stress. Sending prayers for strength and healing as well as loving energy to all family members. {{{hugs}}} noreen