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Noreen

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Everything posted by Noreen

  1. Do you know anything about chiros that practice nucca techniques ? Nat'l Upper Cervical Chiropractor Assoc They had a remarkable study on blood pressure. Years ago, when I was facilitating the local pain group, I had an atlas chiro in for a presentation. I really don't understand the differences between these techniques. I am very leery of anyone touching my neck yet have pretty much constant pain from it.
  2. Frank- What wheelchair did you get? I am looking at a tilt in space wheelchair and am wondering what the difference is between that and a reclining chair. tks, noreen
  3. While checking on links for another post, I ran across this on the American Sleep Apnea Association website -"Having your child evaluated for Sleep Apnea". I hope you find the information useful.
  4. "Okay so I have the study and I find I have sleep apnea. After a recent 35 pound weight loss - it's classified as mild where I only stop breathing 12 times per hour or some such thing. But my 02 sats were bad dipping to 72%. I earned the coveted CPAP machine." Nowwhat- At least you got the dx. Untreated sleep apnea causes heart damage over time due to the oxygen deprivation according to most studies. Link to audio on UK mild sleep apnea report. Link to general info. Additionally sleep apnea has been associated with memory problems and cognitive issues (Link, Wiki). As an added incentive in adjusting to your mask, using the CPAP machine can help you lose weight. Sleep apnea can actually contribute to weight issues - a chicken and the egg type thing. I hope your doctor is working with you to find the best equipment fit for you. By fit, I mean more than correct sizing and choice of CPAP vs. BiPAP. There are many many masks and nose pieces on the market. It is worth seeking out equipment that will work for you as you know you will have a problem with compliance. Obviously, I take sleep disorders seriously and think they are underdx'd. wishing you the best with your new sleep attire , noreen
  5. Your cardiologist is misinformed. Children can have sleep apnea as well as other sleep disorders. My son sees a pediatric sleep specialist. Hopefully there is one associated with a sleep clinic in your area.
  6. I hope you feel better soon. I know how horrible you feel. Don't forget chicken soup - the broth has needed sodium and you still need nourishment. noreen
  7. Susan - That was very amusing - thanks for sharing! Bruno is one unflappable dude. love cats - noreen
  8. Did you notice immediate problems with taking the B-12 or did they develop after a couple weeks on it?
  9. A regular sleep study does not involve imaging. It seems like a particular REM sleep disorder is associated with the neurodegenerative issues. From my read, they then did SPECT imaging of those with the dx. A sleep study still might be a good idea as it can uncover issues that play into how you feel. Anything that helps is good, right?
  10. You have nothing to be sorry about and you most definitely should not feel foolish. Maybe you should think of it this way - By posting, you were able to release the stress the doctor and nurse caused. Since you weren't feeling as stressed you could constructively address other issues such as completing the report for Dr. F. I think everything you did was appropriate. We're here for support. sweetie, and you can't be the superwoman you'd like to be and do everything yourself. ((hugs)) noreen
  11. I would have said the same thing about Cymbalta 7 months ago. However, due to insurance issues (workers comp) I ended up going off it after being on 60 bid for 4 yrs. It was not nearly as bad as I feared and actually some symptoms are masked on it so I am treating pain locally. In the same time frame, my cardiologist was trying to get my cholesterol down and I had been going to the cholesterol clinic. By June my cholesterol and trig were down attributed to 4000 fish oil supplements and diet (had side effects with plavix, etc). A couple weeks ago I ran across a link between Cymbalta and high cholesterol - to my mind this explains the drop more accurately. During the cholesterol clinic despite great diet I would have unexplained rises in triglycerides - the diet was not nearly as good prior to my last visit and I had good numbers. just my experience, noreen
  12. I actually ask my doctors for a magic wand. Obviously I am not wrapped too tight - lol.
  13. The blood type results stand out to me. Type O is supposed to account for 60%+ of the population. Here is a link
  14. Wow. That is wonderful. Are you on any other meds like midodrine for the NCS?
  15. You described today's morning for me to a tee. Did not feel too bad when I let the cat out at 5, back for a little more sleep - at 7 I was slurring my words begging for coffee - couldn't lift my head off the pillow or even lift the cup - needed a straw. It is so hard dealing with the unpredicatability of all this nonsense!
  16. You might try different sizes of microbead pillows. Here is a link to Amazon. I got a couple of mine at Bed Bath and Beyond but couldn't find it online(disclaimer: could be nonfunctional brain). They are lighter to move around and not dense so you don't get the whoosh in your ear.
  17. Reread the answers Firewatcher and Mighty Mouse provided. As tough as it is that is the only real way to do it. If you don't have a GP for a sleep med, you can take a Benadryl (I hope it is available in Switzerland) or Melatonin (use with caution with dysautonomia - take half of a 3 mg pill the first time you try it). I know it feels lousy to be sleep deprived. all the best, noreen
  18. You know by now it won't kill you but the price you pay may vary each time - even if you get the okay from your doctor re: meds. Remember you can be very popular as the Designated Driver.
  19. Have you been checked recently for fibro? With weather changes and at certain unknowable intervals I have incredible pain as you describe which has always been attributed to fibro. If you can get into a pool therapy program, that helps. Generally, my feeling has been that occasional pain med relief is a good idea to stop the pain cascade that can then last for weeks. Are you having more pain as you have adjusted your meds as you are trying the Eastern approach? Just wondering whether this is playing a part. I saw this article in the NY Times recently on topical NSAIDS and have wondered whether it is worth pursuing.http://www.nytimes.com/2010/09/07/health/07pain.html?scp=1&sq=NSAIDS%20topical&st=cse
  20. That is rotten. Isn't it usually women the docs do this to? After you have had a chance to step back from the overwhelming irritation and frustration, would it be possible to write up what the doc and when, what happened, etc. and FAX it in? We are always at the mercy of the nurse and her interpretation of the doctor's mood whether to minimize or not, the symptoms pts are reporting. The same words said in different tones can convey vastly different meanings. I had similar thing happen with my cardiologist. I was going to schedule appt and then the Midodrine thing happened and realized I better get a 90 day supply to have in hand. Now with my blood pressure and heart rate issues I need to get in but am trying to get up the courage to call - not sure I can take any more dismissive answers myself. ((hugs)) noreen
  21. Hydration? three hours later and you would be that much more dehydrated.
  22. I knew you had been wearing compression garments and had, in fact, been doing a search this morning for the ones that had worked best for you. So my question was probably mostly curiosity. For the soreness, I swear by Arnica gel. I know you are really looking for the answer or a solution but I can only offer support. hope you find some answers, noreen
  23. Do you notice any difference wearing your compression garments vs. not?
  24. Have you seen a doctor? Has your primary care physician already prescribed anything like muscle relaxants or ordered x-rays? With all the symptoms in your head and neck, it would seem like a good idea to see a neurologist. You should be prepared with the old MRI and a report detailing how the neck issue first came on and how the symptoms progressed. He/she will review the MRI and order a new one if indicated. As part of this process, you need to evaluate if the pressure is only present when you are upright. Is it worse when you stand, when you move around, when you sit? Does it start out okay in the AM and progress the more you are upright? Is it better when you can have neck support? If being upright is the issue, you may need to request an upright MRI. That's all I can think of right now - maybe someone else has more input.
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