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handmadebyemy

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About handmadebyemy

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  1. I just got a prescription for Aimovig today. I'm wondering the same thing. Did you try it yet?
  2. Oh whilst you mention about the compression stockings, do you also work out with the compression stockings on or have you been advised against this? Thank you for your reply too! They didn't have a good answer for me when I asked that question. When I did the program initially for the 4 months I did the exercise with the stockings on. I tried to get back into it later that year and tried without stockings just to see it if made a difference. I'd say I had more exercise endurance when I wore the stockings
  3. Corgard (Nadolol) has helped me tremendously - I take 10mg 2x daily It also is a big help with migraines!
  4. I did Dr Levine's exercise protocol a few years ago. I stuck to it faithfully for about 4 months but once I got to the treadmill stage I hit a wall where my heart rate wouldn't cooperate and I couldn't finish the program. I was feeling some positive benefits before that, but it was quite a time commitment! It took me about 3-4 hours per day 5 days per week since I don't live near a gym so it was the time aspect of it that ultimately made me quit. Now I have an exercise bike at home which I do several days per week for about 20 minutes which seems to help marginally. Its definitely good for
  5. I've had POTS for 8 years now and have worn compression stockings since I was diagnosed 5 years ago. I've also tried Dr Levine's Exercise Protocol but didn't have much success with it. The stockings were what helped the most until my neurologist started me on Corgard (generic is Nadolol) for migraines. Its a beta blocker and has helped trememdously with my POTS symptoms. I no longer have blood pooling in my legs and can stand for much longer. I've stopped wearing the compression stockings all together. Its not a miracle cure, but this is the best I've felt in years!! The only side effec
  6. Sounds like a migraine with an aura. Thats exactly the way I describe it - like a camera flash or when you look at the sun, but those spots don't go away in seconds, its more like 20-30 minutes. Usually followed by intense headache, nausea/vomiting, sensitivity to light and/or sound, etc.
  7. my husband takes glucosamine with msm (he doesn't have pots) for his joints, its supposed to support joint health. just a note that some people are allergic to the msm - it is derived from shellfish i believe.
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