michiganjan

Lorell, how much crefolin are you taking and do you buy it over the counter or is it prescription? I am so glad you are doing better Michigan Jan

I agree it is best to stay out of the sun. However, my sun/heat sensitivity has made my life very limited. For example, my daughter just dropped in--she lives 4 hours away and I haven't seen her in months, but she was nearby for a wedding. I walked outside just long enough to wave at her as she pulled out, but it was long enough for the sun to make my neck feel rally awful, --stingy and burned feeling, although it is not really burned. When she showed up I didn't even run out to the car to hug her. I had to wait till she got up to the house. I have only seen her house once a couple of years ago and probably won't go again as I can't stand riding in the car due to the sun, in spite of my spec ially coated windows and the air conditioning going full blast I still get sick even if it is only 65 degrees out. If I could get some real help on this one, it would make my life so much more normal. Michigan Jan

Dar Danielle, I am afraid of new meds, too, but I am not as fearful as I once was and I can try new meds now. What has made a difference is taking it low and slow. By that I mean taking an extremely low dose and raising it very slowly. For example I recently tried lexapro and took 1/8 of a pill for a week before going to 1/4. )I ended up stopping the drug due to an undesirable side effect,--but wasn't a disaster because I went so slow and stopped as soon as it became evident.) I know that on Wellbutrin the lowest dose is 100 mg. Unfortunately, this is a coated pill and you should never cut or split coated pills. The Wellburtin you will have to try with a whole pill of the lowest dose. (If it helps any, I used to take Wellbutrin and I didn't have any problems with the 100mg a day dose.) You could start every other day with the Wellbutrin until you feel comfortable taking it every day. Just find out with any give med if it is okay to split it. A pharmacist can tell you this. Pills that are scored are usually okay to cut, as the scoring means it can be divided. You can buy a pill spliter in any drugstore. If you go very very low and very very slow you can tolerate things better, and you can back out before a side effect is too much to handle. Good luck and let us know how it goes. Michigan Jan

I have had POTS for at least 25 years. It has gotten much worse the last 10 years. I am far less able to do things than I was 10 years ago. So for me, it is getting worse as I age. I am now 57. I was 32 when I know for sure I had it. My 40s were quite good in spite of it. Late 50s have been very difficult. Michigan Jan

I have a terrible problem with the sun, too. This has gone on for the last 7 years. I haven't been on a vacation in 3 years now and have no plans to go anywhere ever again! The last 3 vacations I felt like **** and was comatosed the whole time. By that I mean I could not stay awake at all. Slept in the car, slept all day and all night. Did not feel well enough to do anything. If I get too much light this is what happens, along with feeling good and sick. I spent the last family reunion in the motel room. We went to NIagra Falls. I never saw the Falls. I never left the motel room and just walking room to room was too much heat. One thing I did that does help me some is to have the windows of my car coated with UV film at an automotive aftermarket place. In Michigan, with a letter from a doctor, you can get even the front windshield tinted lightly, the side front windows tinted darker and can go as dark as you like in the back. However, you must have a letter from a doc saying it is necessary and they keep a copy of the letter and you should carry the letter in the car in case you get stopped for having the windows darker than the legal limit. Still, with the coated windows, I can't ride in the car very long when the sun comes in the car. Certainly not long enough to ride for an hour or any kind of trip. I think it is a heat reaction, but that it is more than just heat. Last year our power was out in the summer and it got up to 78 in the house. I survived just fine, but cannot take 68 degrees in the sunlight. So go figure? I use the cooling neck wrap that m referred to. I do like it. You can put one around your neck and tie one across your forehead, too. I also have the cooling vest, but haven't really used it yet. I can get sick from the sun without getting hot. Of course I get sicker if I get hot, too. I wear the wraps at the gym. Only thing that has really worked to keep me from feeling sick is avoidence. If it is 80 degrees, I do not even set foot out the door, not even to get the mail until dark. I was invited out to lunch this year for my birthday and it was 83 that day so I called my friend and said I didn't want to go. She went to the restaurant and picked up the food and brought it here. We had just as nice a time. This sun problem has completely altered my life. It is by far the most difficult of all my problems to work around. It has caused me to miss so much! Michigan Jan

Well I am scheduled for one, too. I had a sleep study done about 15 years ago, and now asked for another one. It's not for several weeks though. Wonder if I will chicken out by then? Michigan Jan

Dan, I will miss you. Your replies to my concerns have been very valuable to me. When I post I always hope you are one that answers. Good luck to you. I hope you do well. Michigan Jan

I don't know how I would get by without my husband. We have been married for 35 years. I have had POTS for the last 25 years. If I can't do something, I just tell him and he does it--like grocery shopping yard work--everything. I think it is easier on him now since he retired a year ago. He doesn't have to juggle a very demanding job with caring for me and still finding some time to do things he wants. And I have been able to work part time from home and make at least some money. Are you able to work at home part time at something that will bring in some income? One thing I learned that helped his frustration level and helped my own attitude is to just state facts and not catrastrophize on top of that. For example, "I can't stay awake so I am going to take a nap." Rather than "I don't know why I can never stay awake all day. I am so tired of living like this. I must be getting worse." I think my husband is so helpful because he has had the time to accept that this is how I am and I am not going to get better. I think a younger man, especially one who is just starting out married life is going to have a very hard time with acceptance. This illness is just not what anyone bargained for. I think that time will help both of you. Another help is having a doctor who has an understanding of your health problems and taking your husband to the appointments. Good luck, Michigan Jan

Danelle, You might type in the word photophobia on a search engine and read about it. While the word sounds like it is a psychological condition, it is not. It is an actual failure of the eye to adjust to light. I have no idea if this is your problem, but you might like to at least read about it. Michigan Jan

Danelle, I am glad you posted your frustrations. There have been a couple of times that I have sworn off of doctors. However I always go back because I need help. I have a couple of suggestions. When you have your first appointment with your new PC explain your medical problems and tell the doctor what kind of physician you need. For example, "I need my doctor to read the research I bring in from time to time. I need a doctor who listens to my ideas about meds. One who is willing to learn with me and help me experiment in order to be the best functioning I can be. One who will confer with other docs of my choosing. One who will think with me and order tests to learn more about the source of my particular symptoms. His or her reaction to your statements should tell you whether or not you belong with that Doc. Have you talked to your husband about his feelings about being married to someone who is chronically ill? I am assuming you have already been over everything together so not sure this will help. I have a counselor who is a nurse who specializes in helping people with chronic illness. She has fibrymyalgia herself. I do not go to her on a regular basis, but whe it all gets to be too much. I go see her. It does help. Hang in there. I am thinking of you. Michigan Jan

Dear Karen, I have had POTS for at least 25 years. Without meds, my heart rate is in the 90s sitting down. When I stand up it goes right on up to 150-160 and stays there until I sit back down. With a small dose of a beta blocker my heart rates resting range from high 70s low 80s and standing and walking around 100-110. I used to be able to stand longer and do more than I can now. My capacity has dimminished as I have grown older. I am now 56. The Best to you, Michigan Jan

About 20 years ago I was told I have mitral valve prolapse by a cardiologist who made the diagnosis on hearing the soft click when listening to my heart. Subsequent echocardiograms have all come back with the note on the print-out "non-diagnostic for mitral valve prolapse." The original cardio said he didn't care what the echos showed--I had MVP because he could hear it. My docs decided it must be mild and I even stopped taking an antibiotic to go to the dentist. Last year I had an echo. This one was so much more sophisticated than the earlier ones. The cardiologist said there was no evidence of MVP and he listened to my heart. He also checked my records and said that neither his predecessor nor Dr. Grubb noted hearing the soft click when they had listened to my heart. Based on all of this, he decided to take away the diagnosis of MVP. How about that? If I did have it in the first place, then now it's gone! Or was it even there in the first place? Anyway, this has to be a first for me--to get a diagnosis removed, when all I have ever done in the past is add new ones! Michigan Jan

Gee, Gayla, It sounds like you really need to get the sleep apena fixed. Have you ever tried a bi-pap instead of a C-pap? The bi-pap uses postive pressure on the airway only when you are inhaling. It does not blow when you exhale. When you first turn the machine on, it takes several breaths for it to time itself to your breathing. Then it breathes with you. I wonder if having the machine not forcing air into your throat all the time would help you with the pressure headaches? Maybe you have already addressed this issue. My husband could not use a C-pap. But he tolerates his bi-pap very well. A bi-pap is more expensive than a C-pap, so they are usually only available to those who have already tried and are not able to tolerate a C-pap. Just a thought. Michigan Jan

Dear Merrill, It is too bad that you had to go through that. I have awakened many times in the night like that. Sometimes I actually scream when I jerk awake and then have to take in a huge breath. Because I have had this repeatedly, I did have a sleep study done several years ago. I was told I don't have sleep apena, but that I don't sleep efficiently. I suppose that is common in people with chronic fatigue. They didn't suggest anything to help with my inefficient sleep problem. Now, I think the sleep studies are much more sophisticated and they can tell you more about how you sleep than they could back then. Anyway, if I were you, I would ask my doctor and see if he/she thinks a sleep study is in order. Like most symptoms, it can probably have more than one cause. Having a ragged autonomic system can sure be tough sometimes. Michigan Jan

Dear Jessica, I am so sorry that you lost your job. I think you were treated poorly in that you had to find out from a patient! I have lost jobs. In fact one job I had I quit and then came home and cried because I couldn't imagine how I was going to get another one that I could handle with the POTS. However, I DID get one. And when I quit that one because I couldn't handle the work environment due to my chemical sensitivities, I just sat at home in shock thinking, "I will never get another one I can manage." Well that turned out not to be true. I ended up with another one. I am a lot older than you. In fact, I have kids older than you! One thing that living has taught me is that everytime something ends, it opens a door for something new to come in. That something new might not have ever come along if that door wasn't open. So the third time I quit/lost a job that I was sure was the last one I would ever get, I was disappointed and sad to see it end, but I was NOT worried. In fact I was curious to see what was going to waltz in next! I ended up starting my own business that I do from home and I have made money doing it. Now I have just got patent pending status on a product I thought up. And I am starting a company to produce and sell it. I think I am crazy. I don't know where this venture is going. I don't know if it will be a failure, or any kind of success. But I am pushing ahead. I have actually learned from all my past experience to not worry if it works out or not. If it doesn't, I will do something else. Do you honestly believe that a year from now you will not have moved on to something else? Believe me, you will. And if you find that what you have moved on to is not as good as what you left behind, have patience and know that the new thing, good or bad, is temporary. You have many roads left to walk, even with your disabilities. One thing I have now that I didn't have at your age is patience. Now I can wait and see what is coming because I KNOW that something is. The only thing we can count on in living is change. Just hang in there. Oh, and it can also help if you stand in that open doorway and look out for opportunity rather than passively wait for it to knock. You will find something. I know Michigan Jan

Dear Danielle, What a horid trip and Dr. appointment. Getting new information that there are more things wrong than you previously knew is upsetting enough, but to get that information dropped on you during an appointment that you were depending on to help you digest the questions you already had is double misery. That Dr. Grubb said not to worry about the findings of the test I would think is somewhat reassuring. You still had a lot of new stuff dumped on you on top of new prescriptions! However, there is much you can do for yourself now that you have this new information. Do you have a good Doc where you live? If I were you, I would look for a cardiologist/electrophysiologist near home. I would find out if he or she has any understanding of POTS. Then I would make the earliest appointment I could get. And I would ask if they could put me on a cancellation list, and if they have none, I would call every day until I got in. And take Dr. Grubb's test results along. Ask the cardiologist to intrepret them for you. Tell him or her what meds you are trying and ask them to monitor your treatment. Also ask the question about the arrythmias possibly being dangerous. If you need more tests to answer this question, insist on getting them and soon. What has helped me the most to stay calm while I live with POTS is knowing all I can about my own body. I have had many heart (and other) tests over the years, and I envision more in the future, to make sure I know what's going on. You will feel better when you have answers. I always do. Get those test results from Grubb's office. Call and ask and call and ask and call again and again until you get them. Be the squeeky wheel. As you find answers, you will find peace. Now get going! Michigan Jan

Hi Gayla, I visited your website. Nice. And I read the excerpts of your book there. It is well written. I wish you the best with it. Michigan Jan

Dear Gayla, I am a published author. My young adult novel, Secrets of a Summer Spy was published by Macmillan in 1990. I also have a small nonfiction booklet for grades 3 - 6 on writing fiction published by Creative Learning Press that is still in print. But my main work is as a freelance writer and editor. My freelance writing is mostly teacher and student materials for school programs at the elementary level. However, I have also edited and rewritten nonfiction trade books. I manage to do this with POTS. It can be very hard at times. I would love to see "one of us" get our story out there as a book. I have a POTS friend who is writing her story, too. I have been told by my friends and family to write my own story. However, I just cannot bring myself to do it. So I am thrilled that you have written yours. Here are some ideas for you. Before going any of these routes, make sure the book is the best it can be in terms of grammar and usuage, style, content, logical presentation of the content, and organization into chapters. If you like, I will read a part of it for no charge and give you feedback. Just post your email here on this thread if you would like me to do that. TRADITIONAL METHOD 1. write a book proposal and synopsis (you can find examples of how to do this on he web or in one of the writing books) 2. research agents to find ones who represent work that is somewhat similar to yours. Then submit the proposal and synopsis to them along with an interesting cover letter. 3. if you can find an agent who wants to represent the book, they will take it from there. OTHER METHODS Research publishers (large and small) of books about health matters and query them directly. Again, you will need that proposal, synopsis and sample chapters. Try to find out if one of the special interest groups such as CFIDS Assoc. of America would like to publish parts of it. Or they could be of help later to announce the publication of your work. Publish it yourself. With POD technology (Print on Demand) the age of self-publishing is here. However, if you go this route, you will have to do all the promo yourself and sell all the books yourself. This is a tough one for a person with chronic illness. There are ebook publishers online. In fact, I have a current novel with one of them. (Cousin Feely, at Double Dragon Publishing.) My experience with Double Dragon has been positive, but there have been several e publishers who have taken terrible advantage of writers. Many of them have gone out of business. So, I would advise you to use caution if you think you want to go this route. ebooks are beginning to sell, but they have not truly arrived yet. People still like to hold and read real books instead of reading a download on their computer or hand-held. If you did want to publish your story as an ebook then you could make a website to sell it as a download as an alternative to putting it with an epublisher. However this is hard row to hoe, too. I would love to see one of us have a rip-roaring success at publishing a book on life with dysautonimia. I am just not going to be the one to write it. I wish you all the luck in the world! Michigan Jan

Dear WM, You have my sympathy. Both my parents died within 15 months of each other. I was 32 at the time and an only child. It was awful. In fact, it was at that time that my POTS first became apparent. That was 24 years ago and I have had a ton of more stuff wrong with me ever since. However, don't give up hope. I have had times when I have been much better. POTS can flare up and then calm down and flare up, again. Mine never goes completely away. One of the hardest things for me to come to grips with is that I have to be the one in charge of my health and this means putting together my own team of doctors. I have done this and I have a good team now, but it was a long haul to get here. I had to rely on my intuition to judge each new doc and I fire them as soon as I realize that they aren't going to be helpful. I have been through a lot of Docs over the years, but the ones I have now respect me, want to help me, and listen. Before I had POTS and all the other stuff (multiple chemical sensitivities, firbomyalgia, chronic fatigue, heat intolerance, exercise intolerance, just to name a few) I took any health problems to a doctor and just expected them to do the right thing. With POTS it is a whole different arena. You have to be the number 1 perosn in charge. Not a doctor. You direct your own health care with them as resources. It shouldn't be this way, but with POTS it is. An electrophysiologist is a cardiologist who specializes in the electrical system of the heart. They are the arrythemia docs. Dr. Grubb is an electrophysiologist. Usually the cardiology dept of a large hospital has at least one electrophysiologist. Are you near the Ohio State University Hospital? Check with the cardiology department. It has been my impression that the people with POTS who take charge of their own care, don't give up until they have good doctors, read, research, talk to others with POTS, and and do anything and everything they can to get themselves better get along better than those who aren't as proactive. The thing that has helped me the most besides taking over as the number one in charge of my health is doing everything I can to live healthy. Over the past years I have made many lasting changes. Many of these are just the common sense basics like an excellent diet, watching my weight, and regualar exercise. (I know it isn't always possible to do this with POTS, but I am always right back at it if I have to miss out.) I also train with weights as much as I can stand to. And I think all these things have helped my body function better. I no longer have any friends who aren't really friends. I don't waste my time on people who aren't worth it. I have found that there are pleanty of wonderful people out there who will like me just as I am , POTS and all. I am sending a little pray and many good thoughts your way. The best to you, Michigan Jan

Dear Mindy, I am glad you are here with the rest of us. I have had POTS for more than 24 years. I first got sick with it when I was 32. Now I am 56 (soon to be 57) and still struggling with it. In addition to the POTS I have chronic fatigue, fibromyalgia, multiple chemical sensitivities, and extreme heat sensitivity. When I first got sick I went to docs who did a bunch of tests and couldn't find anything wrong, so decided I had an emotional illness. They branded me a hypochroncriac. I had no way to talk to anyone else who had what I have. In fact I didn't even realize that anyone else had ever had what I had. I went for years without any treatment except for a beta blocker. I had years of psychotherapy because I believed what my docs told me. (Actually the psychotherapy was somewhat helpful in general, but it certainly did nothing to help the POTS). And yet, here I am 24 years later. I have survived and there have been enough good times to have made it worth while. I raised two children (born before the onset of POTS) worked at a series of part time jobs, wrote a children's book that was published by a well-known publisher, became a freelance writer of elementary textbooks, and now I am working on an invention and setting up a new business. All with POTS. I do take life at a slower pace than most and I do take naps and I do have bad days when nothing gets done. But I also have days I go to the gym and days when at least one or two things gets done and those things add up. What has helped the most is finding some helpful meds. and trying many alternate therapies and discarding those that don't work and integrating those that are helpful. I have a great support team. My marriage has survived. My husband is now retired and he is wonderful at taking care of me. He has been living with POTS, too, for the last 24 years. My current Docs are sympathetic and do not think I need a psychiatrist. My kids who are now married adults have grown up with my POTS. They are wonderful people who are tolerant of the limitations of others. Now is a much better time to be young and have POTS. Now there are others to talk to. There are autonomic docs. Even some primary care providers understand that it is not a psychiatric illness and will work with the patient to get the best care. More and more is being understood about the various mechanisms of POTS. There are ongoing drug trials that are finding even more med alternatives for us. Even though I am not cured, and time has testified to me that I most lilkey will not be, I am much better than when I first became sick. You can improve a lot. And even if you have months, years even, that are bad, you can survive and you can have a worthwhile life. Whenever I get down and I do with regularary, I get on one of my POTS boards and have a rant. Then I get a shower of sympathy and somehow that picks me back up. So rant when you need to. That helps, too. I guess I am saying. I did it with POTS and you can too. Michigan Jan

Nina, co you wear a bite splint when you sleep? I have one for my TMJ and I just won't go to sleep without it. It actually helps remodel the jaw joints as I grind away while I sleep. I have not heard of a splint being used for jaws that dislocate, but if you haven't already talked to the stepdad dentist about one. see what he say. My bite splint keeps my jaws in line because my teeth ride in a sort of track that keeps everything in line. Michigan Jan P.S. Nina, how did you burn your corneas?

I don't know what happened to you, but I can tell you that I work out 3 x a week in the gym and after about the third weight exercise on the same body part, that body part gets shaky. After I am done with my leg workout (5 different weight machines), I have jelly legs all the way to the locker room, the car and sometimes for a while after getting home. For me it has to do with exhausting the muscles. Michigan Jan

Here are some links to information about the research done by Dr. A. Martin Lerner on chronic fatigue as possibly caused by viruses resulting in heart damage. http://www.geocities.com/HotSprings/Spa/42...4225/break.html http://www.cfsviraltreatment.com/ http://alneilson.tripod.com/heart.html http://pub123.ezboard.com/fsunshine35446fr...picID=302.topic I am interested in getting thoughts, reactions, or more knowledge on this topic from posters here. Also, please post if you have been Dr. Lerner's patient Michigan Jan

I just looked up cranial osteopathy on the internet. It seems to be limited to the manipulation of the slight movement of the cranial bones. The impression that I have is that Cranial Sacral Therapy is an offspring of cranial osteopathy and uses the same principles only applied to the whole body as opposed to just the head. Please, someone, correct me if I have this wrong. I have chronic fatigue, hyperadregenic POTS, and exercise intolerance, as well as some form of Nephretic Diabetes Insipidus, Multiple Chemical Sensitivities, asthma and other allergies, and extreme heat sensitivity. I have had these problems since I suffered through a long and vicious unexplained viral illness 25 years ago. I have still not given up getting better. And I have tried various therapies, including Cranial Sacral Therapy and Acupuncture. MY EXPERIENCE WITH CRANIAL SACREAL THERAPY I have been doing cranial sacral therapy for a few months now. The practicioner was trained at the Upledger Institure (search for Upledger to learn more) and she is a licensed physical therapist who comes to my house once a week for treatment sessions. She pumps up her Upledger air mattress and I lie on it on the floor. She sits on the floor beside me and works on my body. I am fully clothed for the sessions. It is a kind of lying on of hands. She always starts out by holding my head and she "asks" my body where she needs to work that day. Then when she has her answer, she asks me what my ideas are about where she needs to work. It is rare that we have different answers, but that has happened. The treatments are gentle and relaxing. HOW IT HAS BENEFITED ME So far, the cranial sacral work has helped my posture and helped me release pent-up feelings. HOWEVER, I have not seen any improvement in my exercise intolerance or POTS. Because there are still some areas that need work, I am going to continue treatments until we get through all the areas. MY EXPERIENCE WITH ACUPUNCTURE I have been having acupuncture sessions at least weekly (twice a week at first) for more than a year. My practicioner is a Chinese Dr. and 7th generation acupuncurist--she started working with the needles at age 5. HOW IT HAS BENEFITED ME It has helped with depression, anxiety, irritible bowel and acid reflux. I also have two fibroids and an ovarian cyst that were growing, and I asked her to stop them. She has worked on them and they did not continue to grow when viewed by ultrasound 6 mo later and yet I have continued to take the HRT that was most likely pushing them. I have also had "cupping" for colds and that seemed to have the effect of stopping the cold quickly. Cupping is where they heat the air inside glass cups and stick them to your neck and back by the suction that is created. HOWEVER The acpuncture has not helped my POTS or exercise intolerance. It has not helped my constipation. Everytime I am there she asks "Do you have constipation?" I am going to continue as she has recently changed the points where she is using the needles. After trying to explain POTS to her for a year, she finally came in one day with a Chinese-English medical dicitonary and said, show me what it is. I couldn't find most terms pertaining to POTS but I did find the word, "Dysautononia" and pointed it out. She read the Chinese definition and now has been puting needles right down the sides of my spine to work on "nerves." MY EXPERIENCE WITH NEUROMODULATION TECHNIQUE I have also been doing yet another alternative therapy this past winter called neuromodulation technique for allergy elimination. (To learn more search for neuromodulation technique and Dr. Leslie Feinberg.) I go to an alternative clinic and see a licensed RN. She uses muscle testing to ask my body questions, then runs this sort of vibrating thingy with two bumps on it down my spine three times while I breathe in, out, and then in and out quickly. HOW IT HAS BENEFITED ME I haven't been doing this one too long, so don't know yet, however the muscle testing indicates that my allergies and asthma, chemical sensitivities, and extreme reaction to the sun have all been fixed. I am still on my allergy meds and there is no sun right now. So don't know. I did, however, navigate the perfume aisle in a dept. store on a busy Saturday where they were spraying passers by and was not bothered, which is unusual. MY EXPERIENCE WITH EXERCISE I have been exercising regulary for at least 2 years. A year ago I started doing 2 cardio sessions a day for five days of the week. I managed to ride my bike in the mornings and walk at least a mile in the evenings and also go to the gym 3 times a week to work weight machines. HOW IT HAS BENEFITED ME I have muscles you can actually feel (and see) in my arms. I can walk a bit longer before the gawd-awful symptoms set in. HOWEVER it has not really improved my stamina or exercise intolerance or POTS. In fact, I am slowing the exercise program down a bit because the last year that I have stuck religiously to this schedule, I can't manage any other activity on the same day such as going to the grocery or fixing my dinner. I am just too **** symptomatic from doing all that exercise. And if I shop too long, I can still get severe symptoms that take 2 days in bed to recover. Please post your own experiences with these therapies. Michigan Jan

I am posting some links about studies done by Dr. Peckerman on CFS patients and controls that show that those with more severe chronic fatigue have lower cardiac output than normal after exercise. http://www.psychosomaticmedicine.org/cgi/c...stract/65/5/889 http://www.cfids-cab.org/MESA/Lerner.html http://www.immunesupport.com/Library/showa...tch-Summer-2003 http://healingwellcfs.subportal.com/health...gue/100120.html http://www.cfids.org/archives/2003rr/2003-...2-article01.asp http://yalenewhavenhealth.org/HealthNews/R...ry041520039.htm Michigan Jan