Rachel Posted November 26, 2007 Report Share Posted November 26, 2007 I've recently learned a couple of new helpful tips from DINET members, tips that make life with dysautonomia just a little easier. I have recently learned...from Sophia: Wear earplugs during travel (or any noisy place) to cut down on sensory overload. from jhjd: Wear fingerless gloves while typing in the winter to keep your hands from freezing and cramping up. from Morgan and Jennifer: Follow your glass of prep with lifesavers.When reading these I thought, "Wow. What great ideas! Why didn't I think of that?!"Now I'm wondering what other simple tips might be out there. Perhaps we could compile a list of simple helps for the dysautonomia patient. We all know about compression, fluids, salt, wheelchairs, walkers, and meds for making life a little easier with dysautonomia. But what else do you find helps you?Here are a few simple helps of my own: - When you need to have your hair look nice for going out, just brush it and put on a fabric or ribbon covered headband. It is easy to do, looks nice, and works for short or long hair. My cousin made one of these for me and I love it! - When you need to drink Gatorade in the winter, but you are cold and want a hot drink, make Spiced Tea (Russian Tea) from orange Gatorade instead of Tang. You then have a hot drink with electrolytes! (Of course, if you can't drink tea then this wouldn't work). - Keep a list in a Word document of all your symtoms, and another list of all the meds you have tried, dates, side effects, dosage, etc. Update the lists as necessary and have an updated list for every doctors appointment. It saves having to remember all of your symptoms, med trials, current meds, etc. - Keep a journal of every doctors appointment, even if it isn't related to dysautonomia. My mom started one of these for me when I was born. We never thought we'd need it, but it has since proven to be an invaluable resource.If you have any simple helps ideas to share, please do! I'm looking forward to reading what little things make your life easier. Rachel Quote Link to comment Share on other sites More sharing options...
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