mom4cem Posted June 29, 2006 Report Share Posted June 29, 2006 Hi,I'm sorry if this starts to sound like a pity party. I am just soooo tired of this. Yes, I certainly don't have dysautonomia as bad as others, but nonetheless I can't handle the symptoms that I have anymore. I'm starting to feel like I will never get better or at least reach some manageable level. That my kids, hubby and all are paying the price too. I can't make plans to go out, I just never know when the tachy is going to hit and I am miserable when it does until it levels out.I've been told over and over from the cardio to the er that it is sinus tachy. Nothing ominous about it but they don't know why it just goes up slowly and slowly goes down. What once occured once a month or so has now been happening almost every day. Not for long, but an hour is long enough. Every endocrine angle with blood work has been tested and that has been negative yet my doc feels there is some type of excess catecholamine syndrome...big fancy not a real syndrome, but the best he can come up with to describe it. I just seem to shoot out adrenaline at all different times. I do have hours where I am o.k, but these seem to get pushed away by the episodes. These events have been captured on monitors also.Just tired of waking up in the morning with a surge, and then waiting for the big surge to happen. Just stinks!!! B/p is all over, from low. to normal to high. Reflux kicking in big time too now. Appetite next to none. Yes, I've been to therapy for years now and this time I am going to try hypnosis to see if I can learn to better handle these events. I am also going to give lexapro another shot just to see if the nuerochemical imbalance thing could be it. I just hate the effects.. think I will bite of a tiny bit and work up from there.I wanted to go and get re-tested TTT wise and the center in Ala where I was diagnosed with dysautonmia years ago, I just don't think I can make the trip with the uncertainity of these attacks. Its a long trip. I don't even know if I would be a candidate to see Dr. Grubb, since I don't seem to fit into the POTS category exactly though I have most of the symptoms. And that too would be quite a trip at this time.It just seems hard to believe that your body can turn on you like this and there not be something seriously wrong.I just find myself lately crying over what normal was, and crying that I can't seem to be there for my kids like I once was and what the future will bring, will I see them grow up(I know getting depressing). Even doing simple walking yesterday pulled the life right out of me, something I had no problem doing a few months back. To look o.k, and have others tell you, oh you just need to go out and have fun...uh, yeah if I could I would,,that bugs me. I don't choose to feel like this. I've got to pull out of this funk. Someone send a rope down this hole! Thanks for letting me vent. You all are so good. Quote Link to comment Share on other sites More sharing options...
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