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How high is your tachy with or without meds?


mom4cem
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I take toprol xl and my resting rate on a good day is in the 80's but lately it is in the 90's and getting up 120 and moving shoots it up into the 130's/140's.

What about thirst? Anyone notice an increase in thirst during a bad time? I keep drinking and I am still thirsty, what is with that. From all the adrenaline?

How can one exercise with that! Last week I could exercise this week forget about it

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I'm always thirsty.. and I drink a lot. Darn beta-blockers! :unsure:

With meds, my average resting heartrate is about 50 (45-55) and when I get 'tachy' I'll jump up to 120 or so. (I know- I'm really weird (so they say)... they think it's just because I USED to work out so much, but whatever).

Without meds, my resting HR is still low- when I'm weaning OFF meds, it's about 65-70, and then it settles down at 55-60 later. Then I don't know exactly how high up I go, but it's been measured at 175. Not in the 200s or anything, but it's still a jump of 120 bpm.

Before I was diagnosed and could still exercise, going at a RPE of 8 or 8.5 meant I might have a HR of 132, but sometimes it was 170-180, and I never understood why, and this was when I was already on beta-blockers because my "heart beat too fast sometimes." Then a cardiologist told me that most patients on beta-blockers couldn't get their HR above 100.. I knew 132 wasn't unhealthy, but I was a bit confused.

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well with and without a BB my HR is out of sight.. ranging anywhere from 120-240..

now that I am on a higher BB dose my HR average is between 110-120 all day.. and shoots up there some to about 144..

I honestly wouldnt want to try and not be on my BB's. for fear of how much higher my HR will get.. :unsure: tha is a scary thought for me!!

Oh and thirst.. well I am always thisty.. but I am more thisty in the midle of the night. i keep a couple of botle of water and gatorade on the night stand to drink..

there are bad potsy days though were no matter how much i drink.. i can never get enough.. never quench tht thirst...

Edited by dizzygirl
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I dont mean to side track a thread ... i was just wondering if i should worry about my heart rate being varied or not. From reading all your info it seems mine is much lower than most of you so maybe i should not stress about it.

I always thought mine was fine but mine was measured on friday and i forget exactly but i think it was ranging from 90-110 while sitting down... but was supposed to be really irratic.

My normal bp use to be 70/52

in the mornings i use to just faint when i got it measured so the only measurement i have where i had not fainted yet was 60/40.

I think my bp is stronger now... It didnt drop on standing when i went to my specialist last time .. quite exciting.

Sorry im unsure about how bp and heart rate are all linked so just put in all my info.

Im only on florinef ... i dont think that effects heart rate.. only bp?

Edited by Evie
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If I stop taking Propranalol, mine sits on about 120 resting all day, of course it shoots up higher if I stand or walk. Actually I've been banned from a couple of gyms here, as they don't want the risk. You know when you join a new gym and have to have the fitness test so that they can do up a programme for you - they see my heart rate go over 200 bpm, and won't let me join - one gym did let me join, but banned me after I fainted a couple of times - which is a shame, as I used to love doing weight training.

The propranalol controls it most of the time now, although if I am a bit stressed or exert myself too much, it starts to play up.

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I dont mean to side track a thread ... i was just wondering if i should worry about my heart rate being varied or not. From reading all your info it seems mine is much lower than most of you so maybe i should not stress about it.

I always thought mine was fine but mine was measured on friday and i forget exactly but i think it was ranging from 90-110 while sitting down... but was supposed to be really irratic.

My normal bp use to be 70/52

in the mornings i use to just faint when i got it measured so the only measurement i have where i had not fainted yet was 60/40.

I think my bp is stronger now... It didnt drop on standing when i went to my specialist last time .. quite exciting.

Sorry im unsure about how bp and heart rate are all linked so just put in all my info.

Im only on florinef ... i dont think that effects heart rate.. only bp?

Evie- what meds do for you depends on what's going on in your body. If you have POTS that is secondary to another problem, for example, if it's due to hypovolemia, then your HR might increase because your body is working so hard to pump what little blood there is around your body. Florinef helps to build up blood volume, which therefore *should* increase the blood pressure, which *should* in turn lower your heart rate.

We're all extremely different- some of us have low BP, some have high, some have low resting HR, some have high. Some us our HRs go up 40 bpm, some go up more than 100 bpm, and I think most of us vary along these lines, so that the truth of "there is no normal POTS case" really bears out in practice. So there's definitely correlation between HR and BP, but it's so different for everyone, I don't think they've figured it out yet exactly. And also why POTS diagnosis doesn't reflect BP. My "normal" BP when sitting and lying down OFF meds is about 75/49-95/65, and on Midodrine is more likely to be in the 90/60s range. When I stand up, BP goes to 110/70- 130/85 unless I've been moving about or stressed (physically), and it might be as high as 160/100. Thus why I get really annoyed going to unfamiliar doctors who comment on why my BP is high when they've taken it once. I even had a doctor who just doubled my Toprol after taking it once. (Before diagnosis). Isn't POTS fun??

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Without atenolol my tachy is about 180. With meds, my resting heartrate, even when lying down is 80-90. My doc wants me to reduce the atenolol to deal with occasional bouts of breathlessness I get. I can halve the meds for a couple of days but I guess when the reduced meds kick in I get awful episodes like I did the night before last when I wake up in the middle of the night, heart racing and feeling as though it is going to beat right out of my chest, nauseaus, shaking, and even more s.o.b.! In other words, right back to where I was before any meds were prescibed. Despite being used to these episodes, they still scare me because I sometimes feel like my heart is never going to slow down. But back on the meds, and the episodes decrease signficantly.

India

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over the years my HR have ranged from 32 (hospital time :P ) up to 180....generally of meds i'm between 50 and 130, but i honestly don't monitor myself on a super-regular basis...

:) melissa

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On my meds and sitting, I run in the 60s to 90s. When standing, I can be in the 110s to 120. If I go off my meds, I get a lower heart rate when sitting (50s) and higher when standing (140s).

Amy

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Docs have not put me on anything for Tachy. It has gone up as high as in the 150's but still not meds, because I also have Brady, some times it is as low as in the 40's. I stay thirsty all of the time, does not matter if I am having a good day or bad day. I am drinking something all of the time. If water does not do it then I keep trying until my thirst is satisfied. Sometimes it works sometimes it does not. I can not exercise at all. I do good just to walk across the room. Love my spider cane, has kept me from falling on many occasions. Used to walk mornings and evenings everyday. At least 2.5 miles each time. Can't do that anymore. Vanessa

I take toprol xl and my resting rate on a good day is in the 80's but lately it is in the 90's and getting up 120 and moving shoots it up into the 130's/140's.

What about thirst? Anyone notice an increase in thirst during a bad time? I keep drinking and I am still thirsty, what is with that. From all the adrenaline?

How can one exercise with that! Last week I could exercise this week forget about it

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