amanda Posted November 10, 2005 Report Share Posted November 10, 2005 My name is Amanda and I was diagnosed with pots disease this past summer, but the funny thing is is that i was missed diagnosed for 3 yrs with a particular disease called supervantricular sinus attackacardia, the electrical pathways of my heart were thought to be not working in a way the should to control a consistant heart rate, there for causing me to have pulpatations and lightheadeness. After my diagnoses of supervantricular sinus attackacardia, i was schedualed for surgery of April 2005. Waiting on the gerney preped for surgery, I waited for my doctor. After 3 hrs of waiting nervously, she called head of staff to tell them she couldn't make it for my surgery. I was mortified that she didn't show but it was kind of a blessing in disquise. The only test that surgon didn't do was the tilt table test, which proved to my new doctor now that i have pots. Im just hoping and praying that i could please talk to someone to help me comprehend better and cope with what im going through. No one has ever heard of pots and i feel alone. Quote Link to comment Share on other sites More sharing options...
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