Ernie Posted October 22, 2005 Report Share Posted October 22, 2005 Hi,As you know I got my electric wheelchair in May and I enjoyed using it outside all summer.When I got it I asked the local health department to install a temporary ramp so that I could get in the house with my wheelchair. I have been waiting since then and 2 weeks ago I called to find out where there were with my file and they told me that that they had more urgent cases than mine so that is why I did not hear from anyone.So I have not been using my wheelchair for the past 3 weeks. I can't even bring it in the house because of the stairs.An ergotherapist came to visit me on Monday and when she saw that I was able to get up from the chair and take my meds in the cupboard she kind of decided that I was not sick. She also told me that the only way I will be permitted to have a temporary ramp is if I have someone with me that will put it in the stairs when I go in and out and the rest of the time the ramp has to be secured in the house.The most brilliant idea she had was to leave my wheelchair outside the house beside the door, at -20F in the winter!Tuesday her boss called me to have permission to talk to my PCP to find out how severe and permanently sick I am. I refused to give them permission because they had already decided that I would not get the ramp so why would they need to check my medical file. They already have a copy of my ER protocol which gives my diagnosis, my meds and a decription of my physical disorder.I have been making many phone calls all week and so far I am going nowhere. I have heard that some people get help for cooking, doing groceries, cleaning the house, getting the house transformed for the wheelchair, etc.. When I ask for medical care they often refuse me because I am "too sick" and when I ask for household help they refuse me because I am "not sick enough" (because I can still stand a couple of minutes).Do any of you have any suggestions as to how I can get help (ie ramp, cooking)?I am getting really frustrated and fed up with our social system.ThanksErnie Quote Link to comment Share on other sites More sharing options...
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