OCsunshine Posted August 22, 2005 Report Share Posted August 22, 2005 Hello everyone,My name is Rachel and I'm so happy to have found this discussion group! I have been part of a CFS list-serv for years, and am thrilled to find discussions more focused on the Orthostatic Intolerance.A little background: I am 24 years old, living in Maryland, USA. I was diagnosed 11 years ago with CFIDS and NMH (Neurally Mediated Hypotension). My doctor is Dr Peter Rowe at Johns Hopkins, he did the tilt table test and I scored positive (ie, went unconscious) within 30 seconds of being upright (lucky me). I hope it's okay if I become a part of this discussion group, even though I don't have the POTS diagnosis. Everything I am reading just sounds so similar to NMH! Pretty much the same symptoms and the same treatment plans.My level of activity has gone from being totally bedridden for months and months at a time to being active and being able to work part-time. My health fluctuates throughout the year, depending on the seasons/weather and what viruses/illnesses are going around (I catch everything, and it takes months to recover). I am always interesting in learning more about these illnesses and it's so comforting to 'meet' people that are dealing with the same obstacles.Sincerely,Rachel (aka OCsunshine) Quote Link to comment Share on other sites More sharing options...
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