Derek1987 Posted October 7, 2019 Report Share Posted October 7, 2019 I have headaches 7 days a week now. Aspirin actually works 99 percent of the time. Is there an alternative that doesnt have internal bleeding as a side effect? I cant keep taking 1000mg of aspirin everyday. Quote Link to comment Share on other sites More sharing options...
Stark Posted October 7, 2019 Report Share Posted October 7, 2019 Tylenol? Have you had your intercranial pressure checked? Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted October 8, 2019 Author Report Share Posted October 8, 2019 1 hour ago, Stark said: Tylenol? Have you had your intercranial pressure checked? I did not know tylenol was any different than aspirin, advil etc. Are there long term side effects when taking that? And no i have not. What kind of doctor checks that? Never heard of this before. Quote Link to comment Share on other sites More sharing options...
Random-Symptom Man Posted October 8, 2019 Report Share Posted October 8, 2019 I prefer advil. It tends to help me with swelling too. Plus, while Asperin lowers my blood pressure, advil/ibuprofen raises my blood pressure, which is what helps me. But I read that continual use of advil/ibuprofen is bad for the heart and kidneys, so I try to limit its use. Do you know what type of headache you get? Where do they hurt? Everywhere? Temples? Base of spine? Behind the nose? There are a ton of possible causes of headaches. Are they continual, or do they happen at certain times of the day? Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted October 8, 2019 Author Report Share Posted October 8, 2019 21 minutes ago, Random-Symptom Man said: I prefer advil. It tends to help me with swelling too. Plus, while Asperin lowers my blood pressure, advil/ibuprofen raises my blood pressure, which is what helps me. But I read that continual use of advil/ibuprofen is bad for the heart and kidneys, so I try to limit its use. Do you know what type of headache you get? Where do they hurt? Everywhere? Temples? Base of spine? Behind the nose? There are a ton of possible causes of headaches. Are they continual, or do they happen at certain times of the day? They are random. Sometimes i wake up with them. Or they just come from nowhere. My eyes and forehead and temples hurt. I woke up with one today. Its been there since i woke up. Have not taken any aspirin. If i did, it would go away. Quote Link to comment Share on other sites More sharing options...
Pistol Posted October 8, 2019 Report Share Posted October 8, 2019 @Derek1987 my eyes and forehead hurt when I have a sinus headache from allergies. Could it be that? It is that season. ... You asked if Tylenol is different than aspirin - it also is a NSAID but is metabolized by the liver and does not have stomach side effects like aspirin and ibuprofen. My husband gets really bad cluster headaches and he takes Tylenol and caffeine for them, it helps him. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted October 8, 2019 Report Share Posted October 8, 2019 I have a CSF leak which causes splitting orthostatic headaches along with all the other goodies. I take co-codamol (combination of codeine and paracetamol) and also ibuprofen. Also use cooling gel pads on forehead. Only lying down really helps though. Aspirin at that dose is not advisable for daily use, although I can understand you being desperate for some relief. 16 hours ago, Stark said: Have you had your intercranial pressure checked? Due to my own experience, I would highly recommend this. It may be high, low or normal but is definitely worth looking at for anyone with severe headaches needing to take daily medication. I raised concerns about my own intracranial pressure from the start (granted I was concerned about raised rather than low ICP) but no-one listened. The person who would check this is a neurologist. An optician can also check your eyes for signs of raised, but not low, ICP. B xxx Quote Link to comment Share on other sites More sharing options...
Sushi Posted October 8, 2019 Report Share Posted October 8, 2019 All over the counter pain remedies have some dangers. You are aware of the concerns with aspirin but Tylenol (acetaminophen) is tough on the liver and all too many have died from liver failure after taking too much or mixing it with alcohol or other liver-heavy medications. I know this doesn’t help much and headaches can make life very difficult—I know this from my own king experience with them. One thing recently has given me surprising relief—Mestinon. Though I started it for help with PEM (the dreadful post exertional symptoms), it has also cleared up my headaches which is a great boon! Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted October 8, 2019 Author Report Share Posted October 8, 2019 10 hours ago, Pistol said: @Derek1987 my eyes and forehead hurt when I have a sinus headache from allergies. Could it be that? It is that season. ... You asked if Tylenol is different than aspirin - it also is a NSAID but is metabolized by the liver and does not have stomach side effects like aspirin and ibuprofen. My husband gets really bad cluster headaches and he takes Tylenol and caffeine for them, it helps him. Its been going on for months. Could be stress/tension headaches. I might try tylenol as ive gone through a bottle of 500 aspirin way too quickly. Sadly my body does not even tolerate caffeine anymore. A can coke will send me into extreme anxiety with sweaty hands and even feet at times. I used to live on 5 hour energy and energy drinks from my early 20s. But i suspect that was this disease with extreme fatigue but hadnt progressed to where it has me now. Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted October 8, 2019 Author Report Share Posted October 8, 2019 3 hours ago, bombsh3ll said: I have a CSF leak which causes splitting orthostatic headaches along with all the other goodies. I take co-codamol (combination of codeine and paracetamol) and also ibuprofen. Also use cooling gel pads on forehead. Only lying down really helps though. Aspirin at that dose is not advisable for daily use, although I can understand you being desperate for some relief. Due to my own experience, I would highly recommend this. It may be high, low or normal but is definitely worth looking at for anyone with severe headaches needing to take daily medication. I raised concerns about my own intracranial pressure from the start (granted I was concerned about raised rather than low ICP) but no-one listened. The person who would check this is a neurologist. An optician can also check your eyes for signs of raised, but not low, ICP. B xxx I see my neuro later this month. I will bring it up to him. Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted October 8, 2019 Author Report Share Posted October 8, 2019 29 minutes ago, Sushi said: All over the counter pain remedies have some dangers. You are aware of the concerns with aspirin but Tylenol (acetaminophen) is tough on the liver and all too many have died from liver failure after taking too much or mixing it with alcohol or other liver-heavy medications. I know this doesn’t help much and headaches can make life very difficult—I know this from my own king experience with them. One thing recently has given me surprising relief—Mestinon. Though I started it for help with PEM (the dreadful post exertional symptoms), it has also cleared up my headaches which is a great boon! I take mestinon. The only thing it does for me is make me have to take it lol. My next appointment with my specialist im just gonna be like this isnt working peeps. Hmm. Ill just try and avoid taking any meds for headaches if possible. Quote Link to comment Share on other sites More sharing options...
GinnyIckle Posted October 11, 2019 Report Share Posted October 11, 2019 The supplement curcumin (extract of the spice turmeric) has anti-inflammatory properties. In preliminary clinical testing, it does about as well against pain as ibuprofen, and soothes rather than irritating the stomach. But, like anything else, different people respond differently. Quote Link to comment Share on other sites More sharing options...
Pistol Posted October 12, 2019 Report Share Posted October 12, 2019 @GinnyIckle I take Turmeric for joint pains as needed and it works well for me. Quote Link to comment Share on other sites More sharing options...
POTSius Posted October 12, 2019 Report Share Posted October 12, 2019 I also had bad headaches in my temples Have you tried self massage? I made a post a few weeks ago describing what I do (linked below) I think that if you try lightly massaging that area, and can find any sore/tender spots then that would be a good sign that the massaging might help Headaches were one of my biggest problems for years so it was amazing when I figured this out Quote Link to comment Share on other sites More sharing options...
yogini Posted October 13, 2019 Report Share Posted October 13, 2019 From tracking my symptoms I know my own headaches are related to low blood pressure - when I drink a big cup of soup and a lot of water I feel much better. At other times I have had headaches from high blood pressure due the medication I was taking, which I had to discontinue. I am so attuned to these headaches now that I know what the cause is and how to treat it. The low blood pressure headache is more of a dull pain than the throbbing pain I get at certain times in the month. I would check with your doctor for a recommendation. Your headaches might not have to do with POTS at all - and the dr can best help figure it out. Quote Link to comment Share on other sites More sharing options...
Jwarrior77 Posted October 30, 2019 Report Share Posted October 30, 2019 White Willow Bark supplements have worked for me in the past. The compound is very similar to aspirin and is completely natural with less side effects. However taking a lot of it could be dangerous if I remember correctly so just research it first before you start taking alot. Quote Link to comment Share on other sites More sharing options...
sunflower15 Posted October 30, 2019 Report Share Posted October 30, 2019 When I get severe headaches, it usually means that my unstable blood pressure has either plummeted or skyrocketed. Then I take extra Magnesium Taurate, lots of water, and oral saline solution. Banana Bag is good. you can order this online. I also sometimes drink a cup of Tulsi tea, which is an adaptogenic. It is really scary when it takes hours to bring it down, but I am afraid to try new medications because I rarely can tolerate them for long. Sometimes a snack food can bring on severe headaches so I keep track of those, too. I hope you find relief! Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted November 28, 2019 Author Report Share Posted November 28, 2019 Now that the weather has cooled down, i am having way less headaches. I can somewhat function for longer periods of times as well. I was taking aspirin like candy 6 to 7 days a week. Now maybe 1-2 times a week. Crazy. Quote Link to comment Share on other sites More sharing options...
jeff_jefferson2 Posted March 6, 2020 Report Share Posted March 6, 2020 any update on your headaches? Quote Link to comment Share on other sites More sharing options...
Julyrose Posted March 8, 2020 Report Share Posted March 8, 2020 could you have been dehydrated? Were they positional (either for onset, or for relief?) Daily (like, as quickly as a week or two) use of pain relievers can cause rebound or medication overuse headaches. What did neuro say/do? Did you find relief? I have several compounding factors for headache, but it seems the biggest factor for change in characture or frequency for me, is my level of hydration, either oral or by IV. Quote Link to comment Share on other sites More sharing options...
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