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About Derek1987

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  1. Anybody had these tests done? To prepare for the VNG test, i had to clean out my right ear with debrox drops. I was at home and flushing my ear out. After about the 10th flush with hot water, i got really hot. I lost all of my balance. I was on the ground and couldn't get up and everything was spinning. My wife brought me my BP machine. it was around 170s/100. I layed there for 20 minutes or so and got up and i was fine. a few days later i went to take the VNG test. It was fine until they blew cold/hot air into my ears. The cold air i had no problems with. Then they blew hot air into my r
  2. I asked my PCP to fill out paperwork for me months ago and they said they dont do that yet they did it for my wife. They didnt believe i was sick as i said i was basically. I ended up leaving because the the whole clinic was not good. Never callling in prescriptions, rude staff etc and it was far away plus they didnt support me. I didnt bother asking my new PCP to fill it out because he has no clue what i go through really. The cardiologist who referred me to my dysautonomia specialist half way understood my condition. He filled out only half of the RFC form. So i asked my dysauton
  3. Private message me and we can talk further. Ever since ive been on the beta blocker called coreg, i no longer experience this 99 percent of the time. This problem has now been solved for me.
  4. My daily routine is wake up and use the restroom/brush teeth. Fix something to quick to eat in the microwave. Take medication. Eat in bed. Stay in bed. I take the trash out once a day. I dont watch much tv. Im usually just browsing on the phone. I get up for bathroom needs. I take the litter out once a week which is like taking a trash bag out. But its heavier and leaves me breathing as if a normal person just did 75 jumping jacks. I hate doing that task. But on a typical day i really do nothing. Sometimes i might play video games for about 45 mins. But thats not every single day.
  5. Shes only a NP but shes a specialist in dysautonomia. Apparently lots of schooling involved. She practices at a neurology clinic. What do you guys think? Im just nervous for the phone hearing. Trying to prep myself. I keep reading to keep your answers short but i want to say enough to where the judge understands my struggles. Like if he asks me a typical day, its going to be really boring. I havent been able to do much in over 2 years now. I dont want it to seem like i am faking or something. I am hoping this form holds weight. I know i made another thread 2 or 3 weeks ago. Sorry.
  6. Well she said my ear was 100 percent clogged and dug a lot out but she said theres still 50 percent left and that i needed to use drops to get the rest. Not sure if she was being lazy or what. It hurt though with how deep she was going in with the tool. Im going to call her in a bit.
  7. My water was hot. Im assuming the same thing would of happened either hot or cold. Gonna try again tonight sigh. I have to get the wax out. Now im really nervous about getting my tonsils out. Any little thing can cause problems.
  8. Dudes...in other words girls. I went to an ENT doc about vertigo issues. To see if i have it. I have to take some test. The problem is my right ear is clogged so they put me on ear drops first. The 2nd time i used them just a few mins ago, i was flushing my ear out. I got hot and dizzy and i couldnt stand. I was on on the floor and everything was spinning. My hands were tingling a bit so i thought i might be about to faint. I asked my wife to get my BP monitor. It was 177/99. The dizziness stopped after a bit lying on the bathroom floor. Eventually my BP became stableish. Just wondering if any
  9. After u and @Pistols comments, im scared now lol.
  10. Yeah please do. I cant screw this up with my nervousness.
  11. So im getting my tonsils removed next month. Im 33. The dr said shes gonna keep me overnight due to my condition. This is also my first surgery. Anything i should be worried about? Any prep? This was my first time seeing this dr. She was like yeah i want to do this in the hospital but keep you overnight for observation due to your condition. She actually knew what hyper pots was. I thought all tonsil surgeries went this way? I get bacterial infections on my tonsils once or twice a year. Ive been wanting to do this for years but since pots came in my life, anytime i start to get sic
  12. I do. We are gonna prepare later this month. But i wanna prepare as much as possible. If im not approved and the fact my long term disability runs out in march, thats homeless talk.
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