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About Derek1987

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  1. I have always tried to describe myself as if im floating in a boat sometimes. I can feel this way in any position. I've had muscle twitches all over my body for the past couple of months. Not sure if related. But i physically saw myself swaying back and forth in the mirror. I also feel like i am losing my balance sometimes. Starting to wonder if its parkinsons disease or something or is it just a pots thing. Someone on another group mentioned MdDS. Anybody deal with these symptoms?
  2. Coreg has helped a lot but hasnt completely taken them away.
  3. I too have been having muscle twitches all over my body for maybe 4-6 weeks straight now. I told my specialist about it and they took blood to check my electrolytes. I guess they must be okay because i havent heard anything back. So i am lost just as you are.
  4. Im depressed by my limitations and people close to me who dont understand. It hurts when people close to you look down on you as weak or something. It causes tension. Yeah this illness sucks.
  5. Yes. Sometimes both though. Its been going on my whole life though.
  6. I was blessed to have this cat house donated to me brand new. I put it together and of course i had to take a break and i am still suffering from doing it. Felt faint the first night. Pushed through so the cats can have somewhere to be warm this winter. Its around the 60s so isnt terribly cold at night yet. I did order a heating pad for the inside. I plan to insulate it and put a plastic flap on the front door. I hope they use the inside. The kitten took to the upper deck the first night. My grey cat named storm(not one of the strays) of course had to go inside while i was putting it together.
  7. So my camera did not pick up the colors very well but i will explain. Last night i got in the shower and i noticed after a couple mins my left arm and hand were blood red and my right arm was completely normal in color. Then after another couple of minutes both of my arms and hands were blood red. Then in less than 2 minutes my arms went back to their normal color except for some red blotchy spots on my hands. I took a picture of it. My hands look pretty red in this picture but the camera is just crap. My hands were pale(normal) and the red blotches were more noticeable than you can see in the pictures. I see a lot of people have pots and other conditions. So far all i have been diagnosed with is hyper pots. Perhaps this is just a nornal pots thing. I just wanted to know your input. Edit. Sorry i dont know why the first picture uploaded twice.
  8. I just ordered some for my wife for sleep and pain. She will test it out tonight. Im not allowed to post the website. But for people with a disability, low income, or a veteran, you get 60 percent off. I bought her a bottle of 50mg cbd capsules. 40 in the bottle. Regular price. $90. It only cost us $36 with the discount. Free shipping and no tax. You have to upload an award letter or a doctors note or some other document options. It says on the website what documents are acceptable. The brand is lazarus naturals. They sell tinctures, pills, creams and other stuff. Edit: please pm me if you would like to know where to order this from.
  9. Im probably the only other person on the board who knows what song that is.
  10. I take mestinon. The only thing it does for me is make me have to take it lol. My next appointment with my specialist im just gonna be like this isnt working peeps. Hmm. Ill just try and avoid taking any meds for headaches if possible.
  11. I see my neuro later this month. I will bring it up to him.
  12. Its been going on for months. Could be stress/tension headaches. I might try tylenol as ive gone through a bottle of 500 aspirin way too quickly. Sadly my body does not even tolerate caffeine anymore. A can coke will send me into extreme anxiety with sweaty hands and even feet at times. I used to live on 5 hour energy and energy drinks from my early 20s. But i suspect that was this disease with extreme fatigue but hadnt progressed to where it has me now.
  13. They are random. Sometimes i wake up with them. Or they just come from nowhere. My eyes and forehead and temples hurt. I woke up with one today. Its been there since i woke up. Have not taken any aspirin. If i did, it would go away.
  14. I did not know tylenol was any different than aspirin, advil etc. Are there long term side effects when taking that? And no i have not. What kind of doctor checks that? Never heard of this before.
  15. I have headaches 7 days a week now. Aspirin actually works 99 percent of the time. Is there an alternative that doesnt have internal bleeding as a side effect? I cant keep taking 1000mg of aspirin everyday.
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