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About Stark

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  1. My startle reflex is terrible. I think I'm going to start meditating to see if I can get it more under control
  2. If you'd like to pm me I can send you a couple of Mast cell aware doctors in the Twin Cities area
  3. My understanding is that tryptase is typically not elevated in mcas, mkonly mastocytosis. There is quite a bit of disagreement within the medical community about how to correctly diagnose it FYI Mayo treats mastocytosis but not mcas, so be aware of that
  4. You could just give yourself a buzz cut with a pair of clippers if you don't care too much about your hair style at the moment
  5. Only every time I eat! It's especially bad if I eat a lot (especially a lot of carbs), which I believe is probably postprandial hypotension. I also get it sometimes just from just a small amount of food, which I think is probably MCAS related.
  6. I sort of fall into this camp. My resting heart rate is in the 40s (sometime upper 30s when lying down for extended periods). It rises to the 80s or 90s when I stand, which is more than enough for a POTS diagnosis, but isn't technically a considered tachycardia since it is usually sub 100 bpm
  7. I think it depends. I usually feel like my immune system is overactive. I have not had so much as a cold since this all started for me last year
  8. Yes, I get this all the time. It's part of my MCAS. See if antihistamines are of any help
  9. You could work on strengthening your parasympathetic nervous system to balance things out. My understanding is that this can be done through yoga, meditation, deep breathing. How did you eliminate your other symptoms?
  10. I have had this for some weeks now. My heart rate and blood pressure are pretty fine, but my arms and legs feel extremely heavy most of the time. Makes every thing extremely difficult : /
  11. I have heard problems with the vagal nerve can cause swallowing issues
  12. Sounds like MCAS. My POTS symptoms always get worse when I have an MCAS reaction
  13. No, I was extremely athletic (gym 6 times per week) before the onset of symptoms. My resting heart rate was around 60. I have now not done any exercise in months and my resting heart rate is now 15 points lower (although at the start of my condition it was much higher at first, probably around 70). Weird stuff
  14. I am not on anything. No change in eating habits either. I'm pretty sure it's just the progression of this condition
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