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Stark

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  1. I have had this for some weeks now. My heart rate and blood pressure are pretty fine, but my arms and legs feel extremely heavy most of the time. Makes every thing extremely difficult : /
  2. I have heard problems with the vagal nerve can cause swallowing issues
  3. Sounds like MCAS. My POTS symptoms always get worse when I have an MCAS reaction
  4. No, I was extremely athletic (gym 6 times per week) before the onset of symptoms. My resting heart rate was around 60. I have now not done any exercise in months and my resting heart rate is now 15 points lower (although at the start of my condition it was much higher at first, probably around 70). Weird stuff
  5. I am not on anything. No change in eating habits either. I'm pretty sure it's just the progression of this condition
  6. Interestingly, this wikipedia article also references that both high intercranial pressure and systematically administered norepinephrine can cause reflex bradycardia. I know many of us have high intercranial pressure and some types of POTS can have high norepinephrine levels. I wonder if there could be a connection there https://en.wikipedia.org/wiki/Reflex_bradycardia
  7. Does anyone have any theories for why bradycardia occurs in POTS? When I came down with POTS last fall, my resting heart rate was consistently in the 70s (and of course increasing when I stood up). However, it has slowly decreased over the past 7 months until it is now in the mid 40s. Meanwhile, I have only been getting MORE deconditioned, so it's not a case of me getting into better shape. I'll note that I don't experience any symptoms from a low heart rate. I've seen others have this issue as well, does anyone have any theories? I'm thinking it might have something to do with acetylcholine or the receptors?
  8. Has anyone tried a supplement to support the vagus nerve? I have seen one formulated by Dr. Driscoll that has decent reviews, but am skeptical. Is there evidence to support vagus nerve involvement in our condition?
  9. I've been getting chills on and off throughout the day for a few weeks now. It is different from my normal temp intolerance - I will feel a distinct, sudden chill and then my arms will be covered in goosebumps. The feeling can last quite a while and trying to warm up isn't very effective. It often seems to be triggered by eating. Does this happen to anyone else? Could it be MCAS related?
  10. @JoshMW @Pistol I also get a runny nose while eating and I feel like it could be MCAS. We're either of you ever tested?
  11. That is quite literally exactly what I experience at times. I may have to try this form of zinc
  12. Interesting. Could you actually describe the breathing issue you were having? I'm curious about if it's similar to what I sometime experience
  13. I have been having pain and cracking sounds in every joint since coming down with POTS last year. My GP says it might be joint hypermobility syndrome, but I just find it too coincidental that my joint issues only started shortly after my autonomic system started to dysfunction. Has anyone else experienced this?
  14. Do you have EDS? Your numerous spine issues could point towards this. It is often comorbid with POTS
  15. What was recommended to you for your tracheomalacia?
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