Jump to content


  • Content Count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About GinnyIckle

  • Rank

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. I used to read by the light of a nightlight across the room. Or, dictate to my phone. Or, listen to music and TED talks.
  2. The supplement curcumin (extract of the spice turmeric) has anti-inflammatory properties. In preliminary clinical testing, it does about as well against pain as ibuprofen, and soothes rather than irritating the stomach. But, like anything else, different people respond differently.
  3. Pulse pressure matters. It's what makes our blood actually circulate. Pulse pressure is the difference between the pumping (systolic) blood pressure and the resting (diastolic) blood pressure. sBP-dBP=PP For 97/79, that's 97-79=18 Normal resting pulse pressure is about 30 to 50. Under 30 is considered narrow*, and under 25, extremely narrow. A PP of 18 is extremely narrow even for a PoTSie. I'm supposed to get a lift to hospital if mine stays below 20 despite electrolytes, water, lying down in a cool room. Usually, that will do it for me. Because I get r
  4. There's a name for it, but I have PoTS for brains today, so I'm drawing a blank. It's definitely not just you! Something to do with the body overreacting to an influx to the core of that blood draining out of the arms.
  5. Thanks, Firewatcher! I just got a copy of my "results normal; continue as before" blood tests and was shocked to see that the results included an eGFR of 84, "consistent with CKD stage 2." If hypovolemia can drag down eGFR, then there may be no kidney issues after all. Certainly, distributional hypovolemia has been an issue lately, with my dBP hovering in the 40s. I've been limp as an overcooked GF noodle, despite boosting salt and water intake. The high-normal hematocrit and hemoglobin concentration do hint at low circulating blood volume. And the low-normal sodium also
  6. Speaking of pulse pressure ... An screenshot of a few readings from a recent bad day. And another from today, which hasn't been terrific. When the pulse pressure gets really narrow, I get numbness and tingling in my face and hands, and start getting tunnel vision. At that point, a high BP is a relief! (PP narrower than 20 is not a good thing, especially when combined with low BP. Blood must flow! Normal pulse pressure is more like 40 mm Hg ) I'm taking a lot of readings now because I want to be able to show my doctors what's been going on. It would be even better if I
  7. Hi, I'm 58, diagnosed (finally) at 49. If I had any menopausal symptoms, they got lost in the noise from Sjögren's and hyper POTS, both of which got bad after a bout of mono in my mid-40s, then worse after I had shingles. Sometimes with hypovolemia, especially if the BP has gone really low or the PP really narrow, the dysautonomic body will overreact and drive up BP and HR. I've been having a bad spell with BP going low enough the Braun cuff can't read it (I think it just errors below 40). Then, about the time I'm feeling light-headed and pre-syncopal, the adrenaline kicks in, and t
  8. Is there anything out there, free or cheap, that will make pretty charts of raw vitals readings? I'm hoping for something that will calculate and highlight pulse pressure -- the difference between the systolic (top number) and diastolic (bottom number) BP; the pressure that makes the blood flow -- as that is harder to see in raw numbers. PP is one of the biggest problems for me, but it's also something that doctors aren't used to considering except in accident victims. I don't want to have to design a spreadsheet again (old PC died) and so many of us need this, there should be somet
  9. Hope the new cuff is working out for you! I have a new wrist cuff -- Braun iCheck 7 -- with Bluetooth so it captures readings automatically. But I'm afraid I must give it a mixed review: The bad: * The company's HealthyHeart app does not allow me to add notes: I can't say whether I had been resting or active; was recumbent, sitting, standing; experiencing any symptoms. * The cuff is slow to start up. I don't need to watch the company name, the tumbling graphics, and my name scrolling across the screen before it lets me take a reading. I'd rather be able to just get
  • Create New...