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Everything posted by Derek1987

  1. Well she said my ear was 100 percent clogged and dug a lot out but she said theres still 50 percent left and that i needed to use drops to get the rest. Not sure if she was being lazy or what. It hurt though with how deep she was going in with the tool. Im going to call her in a bit.
  2. My water was hot. Im assuming the same thing would of happened either hot or cold. Gonna try again tonight sigh. I have to get the wax out. Now im really nervous about getting my tonsils out. Any little thing can cause problems.
  3. Dudes...in other words girls. I went to an ENT doc about vertigo issues. To see if i have it. I have to take some test. The problem is my right ear is clogged so they put me on ear drops first. The 2nd time i used them just a few mins ago, i was flushing my ear out. I got hot and dizzy and i couldnt stand. I was on on the floor and everything was spinning. My hands were tingling a bit so i thought i might be about to faint. I asked my wife to get my BP monitor. It was 177/99. The dizziness stopped after a bit lying on the bathroom floor. Eventually my BP became stableish. Just wondering if any
  4. After u and @Pistols comments, im scared now lol.
  5. Yeah please do. I cant screw this up with my nervousness.
  6. So im getting my tonsils removed next month. Im 33. The dr said shes gonna keep me overnight due to my condition. This is also my first surgery. Anything i should be worried about? Any prep? This was my first time seeing this dr. She was like yeah i want to do this in the hospital but keep you overnight for observation due to your condition. She actually knew what hyper pots was. I thought all tonsil surgeries went this way? I get bacterial infections on my tonsils once or twice a year. Ive been wanting to do this for years but since pots came in my life, anytime i start to get sic
  7. I do. We are gonna prepare later this month. But i wanna prepare as much as possible. If im not approved and the fact my long term disability runs out in march, thats homeless talk.
  8. So i have a phone hearing coming up. I have been diagnosed with hyper pots and hypermobile eds. I take carvedilol 25mg twice a day Xanax 1mg 4x a day Florinef 0.1mg half a tablet once a day Midodrine 5mg if necessary The xanax is not prescribed by my autonomic dr. Everything else is. This illness has changed my past 2 plus years of life dramatically. What words of wisdom do any of you have who have been through a hearing for SSDI? Thanks all.
  9. Too tired right now to even read this whole thread. Only awake because my wifes awake. Struggling to stay up. Went out of the house today. Sadly thats all it has taken to feel like ive been awake 36 hours.
  10. My coreg was upped to 25mg twice a day and my autonomic dr. added Fludrocortisone 0.1mg once a day in the morning to take with my coreg. This was a decided route because i have low renin and low aldosterone which was was discovered by my endocrinologist. I just had the appointment and already forgot how this is supposed to help me with the hyperadrenergic problem. I was also just diagnosed with Heds. Not sure if this relates. Can someone shed some knowledge on every single way this medicine can help me? Thanks for the knowledge. My pharmacist said i cant take the Fludroc
  11. The endo doc just messaged me on the app saying. "Are you taking the coreg? That could lower the renin as well. Otherwise low renin and aldosterone can be a sign of very rare issues such as congenital adrenal hyperplasia, Cushings disease, many others. We can test for these though your symptoms don't fit well Question - have you ever taken fludrocortisone in the past ?" I responded with yes i take coreg twice a day and have never taken fludrocortisone. so...yeah.
  12. After getting blood work done twice from the endo doc, the results say i have low renin and low aldosterone. FYI i have been diagnosed with hyper pots. What could this mean? I dont know when ill hear from the doctor. I just got a notification from the doctor with brief commentary that doesnt explain too much on his app. He said it could be from midodrine but i seldom take it because my blood pressure is already too high. I take it occasionally when my BP dips too low. Its probably been a couple of months since ive taken any. I responded back and told him that. Thoughts?
  13. Ive gotten sick from smelling certain foods cooking. Its very seldom but i noticed it. I dont know what my vitals were but id get really sick. I dont know how to explain what that "sick" feels like. Hasnt happened in awhile.
  14. Drank a 7.5 oz coke and was sick all day and night and overloaded with anxiety. I used to down 200mgs of caffeine and get everything done. Now 23mg puts a hurt on me.
  15. I wonder why caffeine helps yall but is like poison to me. Definitely doesnt help me sleep.
  16. Ive had anxiety my whole life but never got treatment. After my first fainting incident in 2017, my anxiety increased big time. I still was able to work and i didnt have many symptoms other than bad anxiety. My HR was probably sky high and didnt even know it. Anyway i went to a psychiatrist. She treated me like crap. I had to change to a different one in the same clinic because of schedule conflicts. She too treated me bad as well. Later on it dawned on me they probably think i just wanted benzos. They judged me. Ive never even been drunk or smoked weed ever. After several ssris and the
  17. I take xanax. 1mg 4x a day. Or if im having a horrible spell i can take 2mg at once. After my 2 fainting spells in sept 2018, i was never the same including huge amounts of anxiety. It was so bad, i sought out a "crazy clinic". This was before i knew i had hyper pots. They referred me to a psychiatrist. When i saw him, he easily prescribed the meds to me. Hes the most caring doctor i have. He even showed my adrenaline test results to a neuro doc in his free time and learned about my condition. I say if you can live without it, do it. But i couldnt function without it. Not yet at least.
  18. Caffeine boosts my adrenaline and hurts me. I used to down 200mg with a 5 hour energy shot back in the day and nothing could stop me(in a good and i guess unhealthy way). I cant even tolerate a 12 oz coke with 34mgs anymore.
  19. I have a soundbar with a sub in my bedroom. I listened to some rock music. It was loud. I was enjoying it. After the 2nd song, my hands were extremely hot and sweaty like never before. Like my hands were wet. After the 3rd song, i felt like i was possibly going to faint. And i am in bed. Not sure but my body had a panic reaction if anything. A few mins later my hands turned from really hot to very cold. Hours later i am still feeling the adrenaline. Shaking and anxiety. Not like it was but im suffering. My last day of work towards the end of 2018, i fell out. I didnt black out but
  20. The only time this happened to me was recovering from a full faint at olive garden. This was before i knew i had this condition and my first faint issue. When i gained my hearing and vision back, i couldnt move or speak for a few minutes. When the paramedics arrived they were asking me questions for insurance purposes. Some time had passed and i could barely get words out. It was like trying to pick up a really really heavy weight in the strength it required to speak. They wouldnt even let my wife answer for some reason. Even when i was in the ambulance it was hard to speak but he
  21. I cant afford a payment plan at the moment. With both my wife and i disabled with 2 teenage girls, it is just not possible right now. I applied for assistance through the hospital and was denied because of "too much income". Lol.
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