rmlyonsfamily Posted July 26, 2011 Report Share Posted July 26, 2011 K is home SURGERY FREE! The last tweek of medication on Saturday has done the trick and we are so very grateful!!! Her daily meds now consist of:7.5mg Midodrine at 8am, 12pm, and 4pm0.3mg of Florinef at 8am1mg of Periactin at 8am and 2mg of Periactin at 8pm4mg of Zofran at 8am and 4pmand a Multivitamin at 8amShe is allowed to start exercising using the recumbant bike to start slowly and build herself up to her tolerance. We also have her on a very specific nutrition plan that has helped with her energy level. The nutrition plan includes a schedule for fluids of 8ounces with each meal, and 20 ounces between breakfast/lunch, lunch/dinner, and dinner/bed for a total of 84 ounces per day. We have to follow up with our family doctor tomorrow, and Dr. Kanter in a month. Quote Link to comment Share on other sites More sharing options...
lieze Posted July 26, 2011 Report Share Posted July 26, 2011 Praise God!He heard our prayers! Quote Link to comment Share on other sites More sharing options...
songcanary Posted July 26, 2011 Report Share Posted July 26, 2011 Wow, it must be a great relief to have a plan written down that you can actually follow. I hope K continues to feel better! Quote Link to comment Share on other sites More sharing options...
corina Posted July 26, 2011 Report Share Posted July 26, 2011 really glad you and kayleigh are back home! hope things will work out well for all of you,take care,corina Quote Link to comment Share on other sites More sharing options...
sue1234 Posted July 26, 2011 Report Share Posted July 26, 2011 That's wonderful news! Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted July 26, 2011 Report Share Posted July 26, 2011 I'm so happy for you both! You are a great mom. Quote Link to comment Share on other sites More sharing options...
Libby Posted July 26, 2011 Report Share Posted July 26, 2011 Oh, that's fantastic! I'm so, so happy for your family! Quote Link to comment Share on other sites More sharing options...
Rachel Posted July 26, 2011 Report Share Posted July 26, 2011 I'm so glad your daughter is home and that she has a good treatment plan in place.Rachel Quote Link to comment Share on other sites More sharing options...
Yolaclover Posted July 26, 2011 Report Share Posted July 26, 2011 What a great plan and what a happy ending, please keep us posted on K's progress as we have grown to love her without even knowing her thanks to her amazing mom Quote Link to comment Share on other sites More sharing options...
enko Posted July 26, 2011 Report Share Posted July 26, 2011 Excellent! Quote Link to comment Share on other sites More sharing options...
RockiesGirl Posted July 26, 2011 Report Share Posted July 26, 2011 YAY!!! So happy to hear it!! Take care, Michelle Quote Link to comment Share on other sites More sharing options...
mwise Posted July 27, 2011 Report Share Posted July 27, 2011 Thank God that is such good news for you all. Glad she is doing fine on her new regime. Will keep you all in my prayers. Quote Link to comment Share on other sites More sharing options...
Olive Posted July 27, 2011 Report Share Posted July 27, 2011 So glad that ya'll are moving forward. I think of her often and how hard it must be at her age and be sick. I pray that she keeps improving.Trudy Quote Link to comment Share on other sites More sharing options...
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