enko

Don't give up! Hitting the bottom is a chance for new beginning! Don't rely on others and what they are or aren't doing, your source of strength is in you. One can be totally paralyzed but mentally stronger that people that are perfectly healthy. Hang on!

I'm not sure I know what normal is.

Jen, I've told it to my neuro too, and she didn't think anything about it either, but dermo did. You should talk to your dermatologist.

For all with hives and itching: you should see a dermo and do it ASAP! I'm not kidding! It can be allergy or "just" urticaria (it can also be caused by heat or pressure or cold..) or mastocytosis/MCAD. Antihistamines can help, but you should consult your doctor.

Ever since I had my appendix removed 3 years ago due to chronic inflammation, my bowels are making really strange noises - like simmering, growling, howling and some other noises I can't really explain. They can be pretty loud. And I feel like there are bubbles inside, and can even feel moving under my hand. Weird I don't remember having that before Maybe that's normal and my bowels weren't working normal before? Maybe someone else with this "problems"?

I'll know more tomorrow, but to be on the "safe" side, I'll probably skip few doses.. I'm not really smart what to do..

Thank you Julie, you are all hearts *hugs* The doctors you recommended - can they cover masto too?

Well, considering that I'm in Croatia (Europe) that is far away.. But I'm thinking of writing an e-mail to one of the mast cell experts and ask for any opinion or advice, if nothing else.. So you would recommend Dr. Schwartz?

If I would stay on H-1 and go for testing and my results would be "normal" or "low", I would probably eat myself up with thinking that maybe the med had something to do with it. Soooo I'll probably take a pause and go for the test. If I'll see that I won't be able to make it, I'll start it again. I'll try to call the lab tomorrow, maybe they'll have more info. I'm guessing that Zoloft won't have any effect?

Thank you Mack's Mom for answering! To be honest, I didn't ask my GP. It didn't occur to me to ask. I will next time I'll see him (probably tomorrow or in the day after it). Although I'm not sure he'll know the answer. Actually I'm on my H-1 all the time for last 3.5 mo. But I did make the same mistake twice Once I went for a 4 days long trip and forgotten to take the pills. At the end of the day I've arrived I had itching (that's "normal" for me because it seems that the med wears off in the afternoon, at least for me). Next day I had itching and was feeling more tired. Day after I was very itchy and had a headache. On the next day I couldn't stop scratching, it was unbearable! Scratched spots became all red again (at least the med helps with the dermographism). When I've got home and took the med, I couldn't be more grateful for it. Next time I've done that stupid mistake was just recently. I've forgotten about the med because I was in a hurry in the morning before going out. When I've realized, it was too late. I was extremely tired, confused, itchy and had a headache. Plus the day was hot and it makes things even more worse for me. Swollen neck is a standard with or without the med And you want to know the best part? I was recently on a checkup at my dermo, who said: "Oh, wow, your dermographism is negative, that's great, you are getting off the med in a months time". What??? But in the end.. if I need to get off it for the test, I guess I'll have to go through it..

I'm about to have one, but since I'm on H1-blocker, should I make a break before the test? How long should it be?

Current state: I've went to sleep then and woke up two and a half hours later. My throat was feeling a bit better but I had a huge headache and my right eye was giving me terrible pain (behind the eye). I've took a painkiller and it did help. I couldn't sleep for next two hours (and I really couldn't find a good "spot" when my neck wouldn't hurt of feel pressured) so I've tried to take another Letizen. It didn't help and I was awake til 5 AM When I woke up around 9:30 AM my throat was better. Few days later things are not perfect, I still have painful tension in my neck.. in the meantime my neuro (yes, my neuro, not my dermo!), asked to test histamine in blood and urine (24h test) and tryptase. That would be fine, BUT none of hospitals here do the histamine tests! And I'm living in state's capital! I'll be able to do only the tryptase, but I'm not sure about one thing - I guess I should stop taking my H1-blocker, but for how long before the test? Four days, seven? I'm still stuck with the SSRI and I'm hoping that it will make things better.. Thank you all for answering, your support means a lot!

Mack's Mom thank you for answering! I've forgotten to state that swollen palms are not related to this. At the moment only my neck is the problem, and I'm already on 10 mg of Letizen (basically it's Zyrtec) on daily basis because of urticaria (and even with the med I still get itchy feelings, but less). I don't know can I take one more now since I've taken the last one almost 12 hours ago (max. daily dose is 10 mg). What SSRI was your son taking?

Hello everybody! I need an insight in two matters: 1) I've started Zoloft today, 25 mg. Until 05:30 PM I didn't feel any side effects, but now I feel like that my neck is reeeeally swollen and it hurts If I move my chin just a bit more to my chest it is very hard to swallow. I also had that problem but in lesser form before the med. Can it be that Zoloft is making things worse? I hope not, I was full of hope.. My dermo also asked for antithyroid antibodies and ANA test thinking that the thyroid may be the cause, but I'll have to wait for almost two more months to have that tests done. 2) Does anybody of you have problems with swollen and red palms? Do you maybe know what can cause it? Thank you!

My opto does it every 3 months, I don't have any problems (ofc, my vision is a bit blurry for the rest of the day)

I have swollen nodes on my neck for about 3 years now.. my doc says that it's nothing to worry about.. That leaves me a bit confused..

Lieze, I also have had fever like that and docs looked at me like that I'm crazy! Mine would be between 98.78 and 99.6 and was really unpleasant! It usually spontaneously withdraws. It's probably because nervous system controls your body temperature as well, and if he's not in balance body temperature isn't either. That's my opinion..

I didn't yet totally faint, but I had presyncope few times. No matter if it is in the morning or afternoon, I'm done for that day. I just want to sleep because basically my entire body is in pain of exhaustion.

I hear you.. Hold on and be strong!

Excellent!

hilbiligrl, 5-7 YEARS!?! Mines are coming every 21-24 days and last for about 8 days and they are very unsparing for first 3-4 days. Once it lasted for 14 and once for 21 days (I don't know how did I survive that).

Good luck, I hope that things will start moving

I've also have bad headaches that I couldn't help. Also had glaucoma problems. My left eye is pretty bad - was born too early and retina detached in early days of life (I have no vision on it). That eye is dying by years, getting smaller and sometimes giving me excruciating pain that can't be help and making me cry. Don't want that to anyone, really! My new ophthalmologist is absolutely gorgeous and every three months checks my eye diopter, pressure and background to see how are the things developing for the right eye. THAT kind of great doctor I want to everyone My nerve on the right eye is calm now, but I was warned that the nerve head is a bit of lifted and that there is some kind of growth leftover that is still clinging on the nerve and retina, and if it moves it can damage the retina and the eye would fill up with blood and would require surgery (I would notice if that happened, it would affect my vision). We're not touching that by now, but she did patch the part of retina that was showing signs of breach (unrelated to the nerve). Be very careful with your eyes! I have variable pressure on the left eye and it can give me big troubles! I can't loose my vision on it anymore but can suffer greatly from glaucoma effects. If you have a headache that radiates from your eye (from it, around it, behind it, from outside bottom corner), red and painful eye(s) and nausea (not necessary all of it but that are signs of glaucoma) you should check in with your doc or go to emergency eye care to check it out ASAP! Also you should go without a wait if you notice some vision changes and distortions. My mom had some problems and didn't react in time - now she has a huge gap in center of her left eye vision. They are trying to help with some injections but it's unfortunately not too helpful They guess it was because glaucoma although she didn't have any problems before (did have raised diopter though, I'm in minus). On your place I would talk with my doc and ask to see he/her often (e.g. every 3-6 months) to check is everything ok. Mine checks glaucoma every time I'm there (yours should too) and even it looks ok every time I still have short spikes from time to time that are awful. Eye drops help. I wish you all the luck and that things will get better! Are you in pain?

Wow! I'm surprised about this! You also have that? I'm 28 and 8 months back I have had laser operation for prevention of retina detachment. Also my optic nerve is a bit of lifted of the eye but still holding. Also I've heard "don't bend, don't lift" etc stuff.. Do you have any glaucoma or painful eye problems?

Woohoo! Congrats!