katejude Posted September 21, 2004 Report Share Posted September 21, 2004 HI-I am new. I have dysautonomia. I also have adrenal insufficiency. I truly believe had my adrenal insufficiency had been diagnosed and treated "sooner" I would not have ended up with the dysautonomia.My first adrenal crisis flared up my ANS. My hydrocortisone and florinef helps but still I stand and go from 60 bpm to 100-120 making a piece of toast. It doesnt come down either. MY blood pressure will stay around 90/60 then start dropping if I continue to stand. My legs turn bluish/purple and will get white patches.This part of the disease is terrible. I use to be an avid exerciser and work as a RN. I have had to stop working.Does it get better? It is better but not as far along as I thought it would be. My doctor has given me xanax for when my symptoms get out of control. I salt and drink abundantly.I was untreated with the AI for about three years. Could my ANS turn around?Thank you.....I really have found a lot of info on this board.Katejude Quote Link to comment Share on other sites More sharing options...
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