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racingheart77

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About racingheart77

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  1. Hello, I noticed whenever I do a stressful activity weather it is playing video games, taking a test, or something else, I get a pain in my neck right under my jaw and sometimes in the back of my head as well. It pulsate sometimes but goes away when I calm down. I assume this might be from blood pressure, but it could also be from tense muscles or stress hormones. Does anyone else experience this? It usually only happens when I'm stressed and not moving.
  2. If you guys don't know, we are in mercury retrograde. Which basically means weird and random accidents happen like your tire goes flat or something. But I noticed it really affects my symptoms for pots as well. I just feel like I dont want to be in my skin right now. Anyone else?
  3. Sleep apnea event? Do these happen to you? Why is it bad to sleep on your back?
  4. Once in a while I wake up abruptly in the middle of the night and it feels like I am going to die. I have a sense of impending doom, racing heartrate, chest tightness, and it sort feels like I cant move my body for a while. It only last a few seconds but it is sooo uncomfortable. Anyone else experience this? I am realizing it happens the most when I take naps instead getting a full night's rest but it can still happen whenever.
  5. Thanks for the response. Did the pinkie pain go along with it? Hope you are doing well
  6. A lot of my symptoms have improved thankfully but I still get these strange pains in my pinkies. I cant tell if I get it more on my left or right hand but I do get it on both hands. I even get it on both my feet as well. Sometimes if its really bad it will spread to my palm and other fingers. I just wanted to post this in case someone else experiences something similar and can relate. Stay positive.
  7. I get the same thing! I have had an mri too and they found nothing. I try to tell docs but I dont think they believe me. It might be related to a csf leak but who knows. Along with this the back side of my neck feels weird. Not painful but like something is clearly not right. Thanks for sharing!
  8. So I went to several respected cardiologists in the past few years. My most recent visit was less than a month ago. I took a stress test and everything came back fine. However for a while now I have been getting left arm pain. And I Also have been getting it when I breath in. Sometimes I dont get it but it is frequent enough that it bothers me. I'm just looking for comfort now and hoping other people have experienced this symptom. I also have a stiff neck and if I bend it a certain way sometimes it triggers the same pain in my left arm as it would when I breath deeply. It's weird. Maybe there
  9. Thank you for this post. I also have had a csf leak. I'm sure I had it as I remember the pain laying down. I Al's remember the feeling of what seemed to be cold liquid rush down my spine. Yet the mri came back negative and the doctor was very condescending with me saying it's just anxiety. I may take your advice and send my mri to the doctor you listed. Thank you.
  10. Nothing new here. Just looking for company. Something I noticed in the past year is that if some one scares me or if I get excited too quickly I get a sudden pain go down my whole left( sometimes right) arm. This pain is just like the normal pain I get occasionally but this pain only lasts a few seconds. I also get this pain sometimes if I'm just lying flat for a long time and quickly move my arm even just an inch. The pain goes away quickly after that. Another strange pain I've been getting is in my left chest and it feels like an expansion pain instead of constricting. It goes a little into
  11. Along with the normal chest tightness I experience almost everyday, I also sometimes get another weird distinct pressure in my chest that I get every once in a while. I feel it mostly on the right side of my chest by the sternum. I really dont know how to describe it but it comes on for a few seconds and then goes away. It comes back seemingly randomly and eventually just disappears for a few days, weeks, months. I dont know how else to describe it but does anyone else get this/ know what I'm talking about?
  12. Just measured my bp again. Laying down It was 130/82. But sitting it was like 150/97. I really need to see a doctor again
  13. Today they took my blood pressure and it was 150 /62 sitting down. 45 minutes of resting and it stayed the same. It's so weird. I wish this disease was better known.
  14. I just took some readings lying down and one was 150/90. The other was 137/87. If I really relax I can get it done to 131 / 82. There are moments when it goes to normal but a lot of the time it is pretty high. I'm going to a doctor soon but just wondering if anyone has similar events.
  15. Thanks I appreciate. I think I have the type of autonomia that is high blood pressure. I just checked my readings after I got out of the shower and it was like 147/97 then it went down to 118/75 and then it went back up again. My BP is also different on different arms. I'm otherwise healthy and I'm only 24.
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