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About Simmy

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  • Birthday 12/07/1963

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  1. While the logic of the theory may be sound, in actuality I would think the pain and discomfort suffered for hours and perhaps days thereafter due to low blood volume in someone that already suffers from blood pooling would far outweigh the potential benefits of smoother blood flow once volume returns to normal. Since our problem is with gravity, lessening the volume of the very liquid we lack would be counterproductive and likely exacerbate symptoms, which is why Florinef, Cymbalta, or DDAVP, which boost blood volume, are prescribed to many of us. Again, in the long run it might indeed be bene
  2. Me too. It starts on the top of my head and spreads to the two sides of the back of my neck. At its worst it also spreads to behind my eyes and pounding in my left ear. And yes, it does indeed feel like a tightening rubber band. An ice pack is the only thing I've found that seems to help.
  3. Thanks Reen, but although the deepest part of Howe Caverns is 200 feet deep, you begin descending from 1,100 feet above sea level, so that won't do either. I still maintain that higher pressure is better for us than low (especially if you also suffer from blood pooling), but that you are probably right too - a substantial 'change' in pressure in a short amount of time, whether up or down, worsens our symptoms, and a more consistent weather pattern is best. But if I could design my own weather, it would be cool, dry and high pressure, like we're having now. Yogini - It may have been the salt to
  4. OK. So who in the northeast is having an abnormally wonderful day today? Since this thread died I thought about not thinking about barometric pressure for awhile, but yesterday I felt good and today... wow! It's almost like being half human again I checked the barometer and... wow again! 30.59. I have never seen it go so high. Humidity is only 29% and it's a cool 56. And no one today told me to "have a nice day." I'm having one anyway. Harumph! I hope you are too.
  5. BellaMia - Thanks. Yes, it comes with a chest strap transmitter, but it's really not that uncomfortable for me. I imagine it wouldn't feel that much different than the bottom strap of a bra. I've even slept with it many times to record my sleeping heart rates (using a different device called a SmartSync Heart Rate Data Logger that receives the signal and records up to 30 hours of heart rates... Amazon - ten bucks!) Mine is a Polar heart rate monitor watch, which came with the chest strap and cost about $60 at modell's back in '08. It's always accurate, except when I twist my body in such a way
  6. Rav - Yes, your plumbing schematics are a bit more complicated than mine in that area. The most noticeable benefit I feel from the Midodrine is actually what it is advertised to do - boost blood pressure. Over the last few weeks I've come to recognize effects of what I believe are directly attributed to Midodrine, like those chills we're all familiar with by now, that they seem to get stronger when I stand or perform tasks requiring exertion, but I'm also now able to do those things for a little longer before the headaches and dizziness become too severe to continue. I'm sure this next benefit
  7. Since we're all adults here, I guess I can join too. Right after I started Midodrine I also felt the tingles, chills and hair standing up all over my body. I don't know if it's a 'male' thing but I never experienced painful nipples, although they do get very hard from the Midodrine and definitely uncomfortable. The good news is it subsided after about a month at the same dosage (10mg 3x a day), and now it's minor and almost unnoticeable, but the chills and tingles still occur, especially between 45 minutes and 2 hours after taking it. I've also heard many others reporting the side effects subs
  8. Julie - I've heard the comparison mentioned too, about us and altitude sickness, and I also drink over two liters of Gatorade a day and am dehydrated. There is definite oxygen deprivation occurring even at sea level, when pressure is low, although nowhere near as much as at high altitudes. When pressure drops, so does total oxygen inhaled with each breath. I'll explain below. And thanks for the link, that was cool. Chaos - You made a very common error in the 3-day barometric pressure readings for your area - those were the "reported numbers" as you may have heard on the news or the internet. T
  9. Valliali - First, sorry to hear about your dad's health, I wish him well. I should have asked this of you earlier, since there are so many forms of POTS, which are you? If you're like me - hypo with blood pooling, then I can't make sense of your body's reaction to lower pressure. On the other hand if you're hyper, it could have the exact opposite effect (like salt intake needs) and make sense after all. There is something to be said however about dry heat being much more easily tolerated than moist heat, I definitely agree with that. For me, ice packs on the back of my skull and neck helps my
  10. Valliali - You are a conundrum. Nothing about what you said makes sense, but I believe every word of it. Trying to figure out causes of our symptoms is certainly frustrating enough, but then you gotta go and throw a monkeywrench in the middle Maybe California's more temperate climate, as opposed to the ever-changing climate of the northeast, has benefits. 7,000 feet and you felt fine? - that's mind-boggling to me, but logically there must be a physical reason for this. As I mentioned earlier, most of us feel worse in higher humidity, so perhaps the very dry New Mexico air is so beneficial th
  11. Dakota ? I just looked up the Lackawanna coal mine in Pennsylvania, on Google Earth. The entrance to the mine is actually 992 feet above sea level, so that won?t do. Thanks for trying. I don?t know very much about mines or caves, but they all seem to be located well above sea level to begin with, which I guess is nature?s way of creating them in the first place. It looks like my only other alternative to get well below sea level is to jump into a volcano. I?ll let you know how that goes when I climb out (I don?t think I?ll have a good cell phone connection inside). McBlonde ? I know. Whe
  12. McBlonde - Those of us suffering from POTS with low blood pressure and pooling have all been advised to increase our salt intake to boost blood volume. We're constantly breathing in nitrogen, oxygen and other trace elements with every breath we take, but when in your part of the country it's quite obvious the air is saltier - you can smell it and taste it, so there's no reason to believe that the higher salt content in the air doesn't become absorbed with inhalation. Since higher humidity opens pores, it's also theoretically possible for the salty air to be absorbed through the skin. I have no
  13. Jan - To answer your question as to whether or not it's possible to change the barometric pressure in your home - technically yes, in reality no. You'd need to seal your entire home, top to bottom, to be completely air-tight, and then compress the air inside by use of a powerful fan forcing outside air inwards with no possible means of escape. Not very feasible. Dakota - Thanks. I'll look into the Lackawanna coal mine. It's 300 feet deep, but do you know how far below sea level that is? I'll try to check it on Google Earth when I have the energy to get to my computer. This is from my phone. No
  14. McBlonde - You're right of course, a coast is a coast, sea level is obviously the same and as you suggested, the only clear difference is the humidity. It could also be the smog or air quality differences between the two locations. Who knows, there are more possible causes of POTS symptoms than all the stars in the galaxy. I also agree that sudden barometric pressure changes affect us negatively too, in this case up or down. There's a relatively steep road I travel regularly that leads to my neighborhood that rises from 20 feet to 280 feet in less than a quarter of a mile (yes, besides the bar
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