Ling

It is part of pots and due to our veins not constricting. Pooling in pots also contributes to these problems.Hot weather worsens this for me, considerable. There is nothing we can do about it and it gets very irritating and painful sometimes. I am 27 weeks pregnant at the moment and this problem is a nightmare. The swelling of pregnancy will worsen this problem during pregnancy. Just part of our life?s I guess. I love sitting with my feet raised when its very bad. The aircon in my car helps for the feet when you driving. OPEN SHOES is a must for me.

These two are part of my medical collections of problems. I find that I just live with my endometriosis. It is part of my life everyday and there is nothing I can do about it. I use to use the pill for many year and it helped somewhat. I have been on so many types of pills my body eventually decided it does not want to be on the pill anymore. I personally feel better when I am off the pill as well. The pill suppresses endometriosis. I have been for one Laborascopy... (Spelling). It takes some of the pain away and I will go for it again when I have that extent of pain again. The operation was a nightmare with my pots. But we all know we are not the friendliest bodies to operate on. I use painkillers (Mypaid) as needed when I menstruate. Trying to stay away from medication. I am so young and have had so many tablets. I hate tablets already! When it comes to itemise use lubrications and avoid certain actions ... positions. Don?t talk to every woman with Endometriosis you meet. I have so much in my life and personally don?t find endometriosis to be an issue if you consider the rest of the problems pots gives. Women love to moan and can be so boring and negative about this topic. I live with and accept what I cant change. Just for the records. I am 27 weeks pregnant, so we can have children as well.

Remind me again why parts of our body die when we sleep. My leg arm has been very bad lately. It is so painful when you wake up and you have this dead "thing" hanging from your body. Just touching and moving it is an experience. My legs are doing it as well lately. They die from my waist down. I can?t lay them dead, whats going on?

I was born at 42 weeks. My mom had a wonderful pregnancy and easy birth. I believe I have had pots all my life. It just gets worst, as I get older. I personally think there is a connection with our personalities. Perfectionists, hard working.. To much pressure on our bodies. Something got to give. Have you ever noticed that most of us are educated go-getters. We can handle allot in life. Pots, need I say more?

I don?t want to even tell you what my working hours are like lately. Since last year June I am working 9 out of 10 weekends. That is 7 days a week up to 13 hours a day. I am running an important fruit fly trial that only I am responsible for. It is labour intensive and has me nearly moving into my work. What to do, nothing? This is my job and pregnancy is not a disease. The only problem is I am getting more and more exhausted. I have not been able to rest this whole pregnancy. I have wondered how important rest is during pregnancy. Well I am nearly done and will just have to see what happens closer to the time. I am seeing my Cardiologist next week. He always knows what to do. Thanks for the advice.

Please can you ladies give me any advice? I would just love to sleep all day. I don?t have any energy, my body is very heavy. I am battling to concentrate and feel horrible. My gyny says I can't take anything to help. I am on a good multivitamin, plus I can?t drink any of these energy drinks. Between my heart and sugar levels, its just water for me. HELP!!!!!!!!!!!!!!!!!!!!!!! My baby is taking all my energy.

Hi ladies I noticed that most of you had to have C. Sections, which is interesting. How many of you made the full 40 weeks? Did any of you go over your time or deliver weeks earlier? My body is working faster than what the pregnancy books say it should. I am now 23 weeks and have started with my secretions from my breasts as well as Brixton Hix... contractions. Everything is much earlier than what the books say I should be having them. I also started showing at 9 weeks already. Considering she had me on a strict anorexic diet I can?t believe I have managed to gain weight these last few months. I have no fear for delivering my baby girl. But I am petrified of what my body is going to get up to. Thank you. Cant wait to hold my baby girl. 17 Weeks feels like forever.

I hide allot from the world. Some days I only come out from my office at about 10:00. This is normally the time that I start feeling better. On bad days I do my admin and light office work. I try to avoid the sun and physical work when I have very bad days. Eating is very important and WATER. Especially when I have to work in the orchards. I very seldom go home but know I can if I wanted to. I have an amazing boss. I think the world of him. I only tell him when things are going very bad and hide the rest from him. Everyone at work knows by now that I am sick. I have been working here for 8 years and work with wonderful people. I am the baby and have to most medical problems. Nothing I can do about it. I have a couch that I can use in my lab when things are going very bad and I can't get away to go home. My Lab is great, when I close the door and blinds its sleep time for me. I just set my clock for when I have to wake up for the next round of tests at work. I am very honest with my boss about my health. I however do not abuse or over emphasis this, as I don?t want to be treated any different. The healthy people moan more to my boss about stupid things than I would ever.

I am an Entomologist working for an international research company in South Africa. I LOVE MY JOB. I am a qualified Horticulturist but just love insects and would rather work with insects all day than any other job. One thing that always fascinates me is our personalities. I am a work aholic and a perfectionist. I am not happy if I am not busy and it has not been done 100 % correctly. How I have managed to stay working is mind over matter. I fight this with all I have. Not easy! Plus I have an amazing husband that reminds me how strong I am when life?s just gets too much. The joys of pots never give us a dull moment in life. I very seldom let my health keep me down. Very few people would even notice I am sick if I did not say something or not land up in hospital. I hide this part of my life well. I must however say I have had days that I just pray through work. Not always easy!

Hi All I just wanted to let you all know that I am having a little girl. I can wait to become a mother and love every appointment as I get to see her moving around. She is apparently petite built. I am now 21 weeks pregnant and just counting the weeks down. I don?t like pregnancy at all. I have not had one good day and have been in hospital twice already. Once for bladder and vomiting, the last for a virus infection in the heart. At least I will have her in my arms soon and this will be over. I am just focusing on her and not what I feel like. Hope you all well. It wonderful to have you all in my life.

Congratulations. I love being married! Dont listen to anything you hear I highly recommend it. Its the best decision I have ever made and the most wonderful time of my life. Enjoy being engaged and all the arrangements for the wedding. I cant wait to see your wedding photo's. Promise to write soon. Love Ling

Hi Jess Happy Birthday. I hope you have a wonderful day. Thank you for all you support and advice over the years. You have played a special part in my life.This is the only way I know how to get hold of you, I hope you dont mind. Love Ling

I did Pilates and I have Fibro. Everything makes you tired if you think about it. I enjoyed Pilates and loved the way your body physically improved over time. Movement wise.

This road is so hard. I dont know how I am going to make it through this. I am going for extrays tomorrow of my bladder and kidneys. I just feel like dying. I wish it was over already. Sorry I am such a wet blanket lately.

I just wanted to update you on my latest adventure in my life. I spent nearly 4 days in the hospital last week due to inflammation of the kidneys and vomiting. I have had bladder problems for months now. Now that I am pregnant it refuses to heal. Plus I have all this lovely vomiting all day. I am 12 weeks now and doing much better than last week. Don?t like hospitals. I am so scared they will do something stupid with me. The longer I have all these problems the less I trust my body. Baby is doing okay and I should know the sex within a few weeks time. I so hope its a little boy. I am just concentrating on the end result. I don?t like pregnancy and have had a hard time. At least I am 1/3 of the way now. I must tell you ladies that am growing fast. I am 12 weeks and can?t believe how fast I am showing. If I carry on growing like this my stomach is going to be massive. Can?t wait not to see my feet.

Sorry to hear you feeling so bad. I hope you eating enough. When I feel terrible I know how important it is for me to eat while I am sleeping. If I sleep the whole day I wake up to eat. Even over weekends I wake up early to eat so that my body does not take the dip to "no return" I find oversleeping and not eating to be a killer. At nighttime I go to bed with two full glasses of water. This is what I drink while I am sleeping at night. My cardiologist has emphasised the importance of us staying hydrated. Just another angle. Hope you feeling better soon.

I know what it feels like to be so desperate to have medication that you would do anything. I had the exact some problems on the medication. I lost a month of my life in bed due to it. If I can give you some good advice that I wish I had learnt earlier on. If the medication does not work, LEAVE IT! Our bodies are so sensitive. Our lives are so challenging and difficult as it is don?t make your life harder than what it need be. I don?t even know how many tremors I have had. You can break a bed when you start shaking the way our bodies do. What worked for me was adding a Beta Blocker to my life. My tremors almost disappeared. Watch your stress as I get more tremors when I am upset. The headaches for me are related to sugar. Have you had a glucose intolerance test? I eat 6 small meals a day with low fat and no sugar. Works great! I understand the pressure you are under at the moment with your studies. I have been studding for years and still wish to study for a few more years. Our health is just a challenging for assignments and exams. I have gone through horrible times with my studies. However I have always passed and managed to finish what I was doing. You can do, don?t worry. Allot of us cant take the medication you are on at the moment.

Thank you for all the advice. I just need to fight this with the strength that we fight our pots. You are all right and I need to concentrate on the end result. I promise to keep this in mind and work harder on trying to get through this. Hope my sense of humour returns soon, I miss laughing at life. Thank you, I cant imagine my life without this forum!

Hi Moms I hoping you can give me some inspiration. I am 9 weeks at the moment and not enjoying this at all. I did so much research about pregnancy especially due to our health problems. Honestly I was not prepared for the changes I am going through. I still have the pain (bad period) that comes and goes now. I am exhausted and can?t wait to get home and sleep at nighttime. I am irritated like you can?t believe. Don?t know myself or like myself to be honest. Then the vomiting. I get sick the whole day mornings, afternoons and evenings. It never goes away. Evenings are the worst for me. This week it has got worst. I don?t know what I expect you moms to say but help I feel terrible and miserable. Plus no one told me about all this wind. I feel like a beer drinker. Sounds terrible and so un lady like. My gyny gave me medication for the nausea. I had very bad heart cramps behind the wheel I must add. My Cardiologist said I must stop medication immediately. As usual this potsy body can?t get medication to help. I am so use to being sick but now everything just seems worst. Not enjoying this at all. Lets just hope baby feels okay where he is lying. I saw baby on Monday he is 1.4 cm and has a heartbeat of 170. My due date at this stage is 30 May 2006. Goodness knows how they going to get baby out of me. Is it my imagination or is my heart working more at this stage? Feels like it is beating faster. Thank you!!!!!!!!!!!!!

My chest pains are from Barlow Syndrome. I am glad you are having this checked out so that you can understand the pain better next time you get it. I have taken Inderal 160 ml and it worked great for my chest pain. Made the world of difference for me. I take two Magnesium tablets at nighttime. It helps with the heart cramps as well as our sleeping problems. My Cardiologist is fantastic and understands pots. He explains why my body does everything it does. The cramps are part of pots. Having two heart conditions just makes it worst for me. Plus the part of my brain that controls pain is way oversensitive. That is why my body always makes my pain worst than what a normal person would experience it. I am presently off my beta-blocker to have a family. I would NEVER do this in my life again. Try and find out about beat blockers if they are suited to your condition. It makes life allot easier.

Hi All I just wanted to share the wonderful news with all of you. I am pregnant. I should be about 7 weeks at the moment. I never dreamt it would feel this wonderful to know that your baby is growing inside of you. I am doing great. I have all the usual pregnancy problems. Which I must add I am find a breeze. Nausea, fatigue, frequent urination ... etc. I think I am not battling because I am use to all these things. Any pots person would not even find these things funny in their lives. One thing that has been funny it that my body almost told me immediately that I was pregnant in the funniest way. I had such pain that I could not even touch myself. First they diagnosed it as Thrush. Then eventually after many painful days I got diagnosed with Oestrogen deficiency. The pain was unbearable. I eventually finished all the medication and found that the constant period like pain would just not go away. I eventually did a pregnancy blood test and found out I was pregnant. Trust our bodies to find a unique way to do everything. I am loving being pregnant. Morning sickness is wonderful because I know I have a baby that I have waited and worked so hard for. I know it is early days but I am so happy and find it not half as bad as what I expected it to be. Just never expected this amount of pain when I fell pregnant. No one told me its painful. Gny not worried he says my body is just very sensitive. I am seeing him at the end of the month. I am next in line for twins and so hope there are two heartbeats. Will let you know as I find out all these wonderful things. Smiles from the happiest Pots member in the world!

Living in our bodies is a daily fight. I don?t like to let my body get the best of me. I must be honest I cant believe that one body can produce so many problems. I personally watch my body in amazement and wonder what it?s going to get up to next. One thing is for sure that it gets bored quickly and moves on to something new. I often have many small problems and then one big problem for a good few months. At the moment I have chronic bladder infections. Its like my body does not want to get over it. The only comfort is that it will get bored and start something new sooner or later. I have battled with my health for > 10 years. The best two things I have done for myself is to educate myself and find peace. Spend more time talking to us. We all go through the same problems. Read and read and read. On all our problems. This knowledge gives me power when my body gets up to all its tricks. The other part, which I have, is peace. I have made peace with my health and accept it as it comes. I try to laugh allot as I just cant believe all my problems. I don?t know what you believe but what ever works for you hold on to that. I have spent allot of time talking to my priest and he has help me find peace with all of these things in my life. Maybe you can find someone to talk to you, what ever your believes are. I worry about the fear you express. These things are not in our hands. With pots bodies we are going to have many years of horrible experiences to overcome. Trust me it even gets scarier when you deal with un educated doctors.

I have reactive hypoglycaemia. The burning sensation that you talking about are more applicable to my Firbrom..... Sometimes I can’t comb my hair or touch my skin, showering even hurts. I can’t stand on my feet someday due to the burning. Remember all of these things are connected to pots.

I am always thirsty. I even drink water while I am sleeping at night. I have Reactive hypoglycaemia and have been told it is due to that. My Cardiologist says I must always drink allot of water due to the heart problems. Part of pots I guess. In summer my mouth can become bone dry. I just drink and drink.

I am a neat freak and a perfectionist. I hate dirt and clutter. I clean every day of my life. No matter how bad I feel. My washing machine works everyday. Even the dogs bedding gets washed once a week. I can’t sweep floor or use a vacuum cleaner any more. I can’t use my arms as much as I get tired very quickly. It is irritating when I am baking. I have improved over the years. Due to my health or my beautiful dogs. But I have learnt to live a little. My doctor taught me about healthy meals that you just pop in the oven or microwave. They work great on BAD days. They expensive but my health is worth it. My floor is the worst and I can’t do anything about it. I black out from trying to clean one room. Just not worth it. No one mentioned a dishwasher. It is my dream and I can’t wait to have one. Can you imagine how much time it would save you at night, after a day’s hard work?