Ling

Dear Sellakitty I live in South Africa and have had the most horrible time with doctors. I have wasted thousands of rands on medication that does not work. I have the most wonderful doctor at the moment and she gives me aterax injections, which helps almost instantly. Hurts like **** but it works. Has your daughter seen a dietician yet? I use to have migraines every day or a solid one for a few days in a row. Since I have left sugar and changed my diet I don’t get migraines any more only head aches. The stomach pains could possibly be irritable bowl syndrome, which can also be helped with a diet change. If you would like to e-mail me direct you are welcome to stoltz@cri.co.za. I could possible give you all my doctors’ details. I have the most amazing team of doctors in my life at the moment. The sad part is that it took 9 years to find them. I hope your daughter feels better soon.

Dear Sellakitty I have allot of these attacks and they always start on the left side. It sounds to me as if your daughter is under allot of pressure. I know how overwhelming all these horrible physical changes can be. They frustrate you and depress you. I go to an amazing doctor and he confirmed to me that the left side of the body is connected to your emotional area of your brain. These attacks are the way your body is handling all these stresses. It is so horrible I can sake for hours on end and have to go for injections to get my body to stop. The Florinef just made my attacks worst and I am so glad I am off it. It was ****! The nausea and dizziness is just from the pots. The painful stomach is also from the pots. I have not been able to touch my stomach for years. It has taken me 9 years to find a excellent support group of doctors. Unfortunately it is a fact that 99 % of the doctors know anything about our problems and actual don’t CARE! Were I live most of them just want your money and don’t care a dam if you get healthy or not. As I said I have 9 years of experience and thousands of rands wasted.

Can anyone please tell me what to do about my feet. I suffer from Reactive hypoglycaemia, Barlow Syndrome and POTS. Life is not easy and I am use to feeling sick and weak with different symptoms every other day. A new one if my life is that my feet are so sore I don’t even want to wear shoes. Especially in the mornings … as if mornings can get worst. Please can someone give me advice. I am use to the dead feet and hands with pins and needles but this new pain is horrible.

Dear ethansmom I suffer from Pots, Barlow syndrome and Reactive Hypoglycaemia and fully understand all your complaints. I was recently put on to Florinef 0.1 mg and Concor 5mg. It was truly the worst time of my life. I have basically lost a whole month of my life. The side effects from these two drugs are horrible and I recommend you change as soon as possible. I was taken off the drugs and now use Inderal. The change is amazing. I must mention the weight you pick up from Florinef as well as the anxiety is overwhelming. Please go and get a second opinion .