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Bigskyfam

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Everything posted by Bigskyfam

  1. Interesting. Just looking at mine over the past few weeks. It does fluctuate better under control recently but sleeping 50-60 then boom up to 100s. Nothing like the 150s of old. But it seems slight movements make it jump high but it doesn't stay high like it used to. I wonder the same thing as I have aortic root dilation. New cardio in March. Pm me if you'd like to be Fitbit friends.
  2. Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. marieanne75 auraleighn RussianAnchor mwjc_uk Ajax Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
  3. When you find a med or meds that work for you... Do you ever feel like you did pre-pots? Does it just improve symptoms, alleviate some symptoms or complete 180? Hope this makes sense...
  4. Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. Skydersaur Advaita MedCJ86 Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
  5. I've had my vision checked and no concerns. I get blurry vision, pulsing with heart beat, dry eyes. Yay for finding a local doc concerned and aware of dysautonomia. That's a true Christmas gift
  6. First came pots then svt on 30 day monitor 2 years later, EP thinks is it's unrelated, said he doesn't know much about pots. Offered an EP study. I didn't do this because I'm losing my insurance
  7. I tried ocp- nausea and headaches I tried mirena- dislodged, embedded I've had a tubal ligation but trying to manage mennorhagia Your post is encouraging for progesterone only
  8. I've heard anything over 3 months needs to be checked out by gyn. Sorry to hear of your hospitalization. I hope they get it all figured out for an amazing 2016 for you. I know I always think yay... Another piece to the puzzle. Seems my puzzle is bigger than I thought
  9. Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. sper167 Snookum96 princesslizlady Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
  10. Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. lakegirl43 Jim W LisaAndJethro bikerljd julian7879 potsie-turvy Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
  11. We moved to a new place 2012.I had my first pots crash fall 2013, we found mold downstairs in our basement summer 2014 and moved into a newer rental with ac. Is it the cause? Prob not, but I think it's a puzzle piece to my health
  12. Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. Saralu POTSN FinallyaDx suz sharkdiver1948 pheonia sunflower15 Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
  13. Searching as well. I had a chest strap hr wrist monitor. Chest strap was just too tight for my liking. I'm just now trying to get adjusted to wearing a bra again. Lol.I have a wrist cuff for hr and BP. Doc prefers upper arm cuff for accuracy. With being at work Id like to be more discreet and track activity as well per my doc. Keep us posted on your pic and thanks to all for suggestions!!!
  14. Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. SES64 oldguy Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
  15. Stretchy pants on. Salty snacks and lounging Happy thanksgiving
  16. Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. Couleemom SES64 Kpsos Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
  17. I'm dancing for Tyler!!!! Well slow upright movements with no coordination that mimic dancing followed by sitting down and drinking water. Great news and as always... Thanks for updating us.
  18. Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. Faye Melissa02 Familygirl maddiepie2004 Nicola Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
  19. I think the hr apps are fairly accurate
  20. My specialist said stick with upper arm cuff I have a wrist cuff. Will buy one around holidays
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