Ernie

I like the James Bond movies as well as Indiana Jones. Ernie

Hi When I get O2 right after fainting I don't loose my short term memory. nad I recuperate faster. Glad you test went OK Julia. Ernie

Congradulation for finally getting your diagnosis. Ernie

Hi Morgan, I am glad you have a diagnosis for your symtoms and I am sorry there is no treatment. You have an honest doctor to tell you how he feels and I hope that it did not make you feel bad (worst failure and stroke). I don't know how I would react to be told that but I think it is hard to take. Your a courageous lady. Good luck with the needle. I'll be thinking about you. Ernie

BuddyLeesWife; Thanks for sharing these documents. I just finished reading them and it makes me appreciate Dr Grubb even more. He is such a humble man. Steph, I agree with you "I wish such an unselfish person didn't have so much hardship". It just seems that he is having so many health issues. I can't wait for him to get well again. Ernie

Hi Kristen, Thanks for taking the time to call and to post for us and Dr Grubb. I really appreciate to hear from him. Ernie

Hi Ben, Welcome to our little world. I enjoyed reading your story. Ernie

Hi Nina, I am glad you had a nice vacation and that you are now home. Ernie

Hi everyone, I hope that Dr Grubb does not have cancer and that he will get back to is usual self. Thanks for keeping us posted. Ernie

Hi Linq, Could you give the list of the homeopathic remedies that were in the compound that you took? I crashed 4 years ago because of a homeopathic medication. I took it at 10:00 p.m. and then I started to faint every time I stood up. I never thought that this would happen to me because I was also told that homeopathic medication are safe. I don't know why we are sensitive to meds and other things. My hypothesis is that I am always in overdrive so maybe my system thinks it is attackec and defend itself from false alarms. Ernie

I have just heard that Dr Grubb will have his kidney surgery next Thursday. The doctors found out about the kidney problem during a routine review for his last neck surgery. So hopefully if it is cancer it will be removed fast enough for him to get better again. I am so concerned and worried. Ernie

Hi, I am sorry that your endocrinologist appointment did not go well. I think you should continue to find a doctor that will at least try to find what you have. I never had pulmonary test but it's worth looking into it. Ernie

Hi, I agree that to go out in a wheelchair is better than being a prisoner. Do you have friends that could take you out? I think with time your parents will get used to the idea. Ernie

Thanks Kristen for taking the time to post and getting the news on Dr Grubb. I hope so much that he will pull through his sickness. He is such a nice man and knowledgeable doctor. This is so unfair. He is still young. I am worried about him. Please keep us posted. Ernie

Hi, I am really proud of you for getting your way to Dr Mathias. I am sure everything will go more smoothly from now on. Keep us posted. Ernie

Thanks for the information BuddyLeeswife, I thought about that but I decided to stick with the lab for 3 main reasons: when I slept at the lab I disconnected the wires on 3 occasions, if I do it at home it's 500$ out of pocket, I might have another sleep disorder that would not get diagnosed with the at-home kit. I know someone who will be doing it at home in 2 weeks and I will ask her about it. She told me that this test is like a screening and then if they don't find sleep apnea they will do the lab test on her. I'll keep you posted. Ernie

I would go ahead with a nutritionist also because we have so many things to consider when we change our diet. Ernie

Hi, I am glad to hear from you. I don't know your new med but wanted to say hi. Ernie

Have a nice trip Nina, We'll be waiting for your return. Ernie

Hi Ginger, Thank your so much for the explanation (your case). You help me understand what the doctor told me. I agree with you that 17 seconds is like eternity when you are not getting any air especially that it's not only once in a while but very often per night. I have 30 arousals per hour when I sleep. Yes, here we have national healthcare. But the system is worst than your Medicare. We have to wait from 6 months to 24 months to see a specialist. It takes about 2 weeks to see a GP. Then you have to wait about 6 months to have the tests and another 2-3 months to get the result. Then you wait again for the next test. There are not enough doctors and some people don't have any GP so when they are sick the only way to get treatment is to go to the ER. Many doctors don't take any new patients. I am lucky to have my own GP. The problem is that the government only trains a certain amount of doctors. They decide years ahead how many doctors they will need. They made the wrong forecasts for different reasons, ie the new generation of doctors don't want to work 80 hours per week (they like 9:00 to 5:00 or 2 days a week), etc., so that's why we don't have enough man-power doctors. We also have the cutback in the health system but that's only policital. More and more the government want private insurance to take over the health system so that's why we have to wait. They know that some of us have private insurance who will pay for the testing so if they make us wait long enough we will go privately. There are some tests that you cannot do privately, ie TTT because it has to be done in a hospital setting. I had to wait almost 1 year to get my first TTT and 18 months for another one. Thanks for sharing the sleeping tips and the chin strap tips. I am new to sleeping disorders and I want to learn as much as possible to be able to help myself improve my quality of life. I am glad that the CCAP machine is helping you. I can't wait to be given a chance to try one. In the meantime I will do all my best to improve my sleep. I find that I sleep better when I have 3 pillows and I am on my side. I can't fall asleep on my back. Sue "So if you do not have REM sleep they can not tell if you have sleep Apnea?" I don't know the answer Sue I just know that this is what the doctor told me. The specialist said that I slept so poorly that the study raised more questions than it gave them answers. That's why I need a repeat study. I know Ginger had some hypoapnea in the non-REM sleep but I don't know why the doctor told me that. I need to learn more about sleeping disorders. Ernie

Hi Ginger, Congradulation for getting in at Mayo. I know (more I've heard) how difficult it is to get in so I figured that it was like a full time job to succeed. I am sorry you are having more physical issues to deal with. I hope Mayo can help you find solutions. You made me laught when you mentionned that you were so full of air that you were floating around in the room. I could just imagine you floating around in zero gravity. I know some people can sleep just about everywhere. I think we have more problems sleeping there because we already have difficulty sleeping at home so being elsewhere hooked to machines amplifies the problem. I hope nobody got injured in your van accident (beside the deer!). Ernie

Hi, When I have nightmares I discuss them with my therapist and we get to the internal conflicts. Then I try to make changes in my life and the nightmares stop. Ernie

Hi, I hypersalivate, oversweat, my nose drips every day and I have to kind of cought often during an hour to dislogde secretion. I thought there were related to allergies but it might be dysautonomia. Ernie

Congradulation on finding a competent psychiatrist. I hope your visit goes well with the endocrinologist. Ernie

Mine is genetic but they don't know what is the mutation. I hope that when they find the mutation they will be able to correct it with medication. Ernie