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samuel0404

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About samuel0404

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  1. Scout thanks for your response. I actually have not had it diagnosed yet, but just learned yesterday there was a connection between the two ( as in dysautonomia and mitral valve prolapse). Previously I thought the issue was only coronary artery spasms, but I think it is more. Have you ever had clot like symptoms? I have twice, think there may be a connection there. What have you done to deal with the problem, any medications or treatments that have helped you? -Sam
  2. Hello there, anyone out there have mitral valve prolapse, and if so what are you symptoms? I have symptoms like bubbling sensations over the heart at times, gurgling over the heart, and other more clear cardiac symptoms. Was wondering if you have had another symptoms that are not typically described like the ones I mentioned I have above. Thanks -Sam
  3. Hello there, I was wondering if anyone out there has used "syntonic phototherapy", a form of colored lense treatment ( typically for head injures and visual issues) and if so did it bring up new and worsened symptoms of your dysautonomia? I had low grade dysautonomia prior to using this treatment, which I did to help with my odd vision issues ( eye contact in particular has been really challenging). The issue is that this syntonic therapy affects your autonomic system ( had no idea originally), and for me it sent my body into haywire and I developed much more pronounced dysautonomia ( with extreme coronary artery spasms among other symptoms). Just curious if anyone else here has used this treatment or knows much about it, for me it has made my life very distressing. Look forward to hearing others who have some thoughts on this topic. Thanks much -Sam
  4. Good to hear from you Pistol! Sorry for the delayed response, It takes me a while to get back. I am happy to hear you have found some relief and options to at least manage the symptoms on a day to day basis. It amazes me the many ways someone can develop dysautonomia, and the many symptoms that can develop. I believe I simply had low grad dysautonomia since I was 17 ( 32 now), and I didn't know it ( 17 had a bad virus like meningitis/encephalitis/west nile, and mold may have exaggerated it). My dysautonomia thought took off to a much more intense level after I used syntonics (phototherapy) to try and help with my eye contact issues ( related to dysautonomia, but didn't know at the time). Since using this treatment, I have had coronary artery spams for over a year, and no one believed my heart was having any issues for the majority of that time, though I knew an issue was present. Thankfully I have a few options now to decrease and help my arteries dilate better; calcium channel blockers, Hawthorne, dark chocolate, magnesium, camomile tea, Argentine and citraline, cayenne pepper. I imagine you have have been through a lot over the years, have learned a lot as well. At what hospital if I may ask did they find out you had print metal angina, and did they know you had it because of the test showed it, or because the test showed you didn't have the other issues of the heart that more commonly cause angina? Nice to meet you
  5. Hello again I was wondering if we could get a a list going of what has helped others out there in balancing their autonomic system out, or what practices you have found to be very helpful in your bodies overall functioning related to dysautonomia. ( if there is a previous thread about this let me know, I can always look back). Note: For example, I have read that improving your Heart Rate Variability (HRV) is a direct link to how well your autonomic system woks, which can be improved by meditation, yoga, chanting.... I know many of you out there have more severe dysautonomia, so these type of options may be less helpful than for others. Thanks!!!!
  6. Hello there, I am quite new to understanding my dysautonomia, and was wondering if anyone has had coronary aftery spasms ( angina), or unexplained chest pain. If so what have you done to improve it, anything help? I personally have had it for a year, and have found a few helpful solutions up to this point: Calcium channel blockers ( have provided most long lasting support), also heat has helped ( steam room, sauna, heating pads on neck/chest/stomach, chocolate, chamomile tea, Hawthorne, magnesium, garlic at times, cayenne pepper). Also do any of you live in cold climates, and does this make your heart pain/chest pain worse over the cold months? Also have any of you found good research and evidence that shows a connection between coronary artery spasms or unexplained angina/chest pain with dysautonomia? Look forward to hearing from you!!! -Sam
  7. Hello noticed you said some studies show link between autonomic dysfunction and coronary artery spasms, where did you see this?  Look forward to hearing from you!

     

    -Sam

  8. Hello my name is Sam, and I am contacting you because I really liked a few items you spoke on in a discussion thread or two, and was wondering if you could share a few thoughts on your journey.  I have been having chest pain off and on for a year, daily, and just found out recently what it is ( vasospasms).  I started calcium channel blockers, has helped.  One thing I wanted to ask you about, is how has your journey been going with the vasospasms/chest pain, any better?  Have you found any way to reverse the trend?  Look forward to hearing back from you, and hope you have found some relief.

     

    -Sam

     

  9. Hello my name is Sam, and I am contacting you because I really liked a few items you spoke on in a discussion thread or two, and was wondering if you could share a few thoughts on your journey.  I have been having chest pain off and on for a year, daily, and just found out recently what it is ( vasospasms).  I started calcium channel blockers, has helped.  One thing I wanted to ask you about, is how has your journey been going with the vasospasms/chest pain, any better?  Have you found any way to reverse the trend?  Look forward to hearing back from you, and hope you have found some relief.

     

    -Sam

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