Would very much appreciate input if this sounds typical.
I have had Dysautonomia symptoms for many years, though only got a diagnosis 9 years ago. I have gotten used to compression socks, abdominal binder, 3 liters of water, 2 tablespoons of salt spread out through the day, Liquid IV, small meals, monitored careful rowing, and Midodrine,all the regular stuff we are supposed to do.
My usual symptoms have always been dizziness, lightheadedness , pre syncope, sometimes syncope, lack of focus, weakness, nausea, etc. But just tried to manage with mornings being the worst.
In the last year I have had three sessions of loss of mobility where I can no longer stand and then bouts of vomiting. As I mentioned in a previous thread, at first I was so scared I was having a stroke I ended up in the ER. But after 2 trips and all tests coming back normal I started just trying to get through it.
Does this sound like just another cluster of symptoms experienced by people with Dysautonomia? My cardiologist keeps telling me Dysautonomia symptoms aren’t lethal, but it sure feels awful. And because the usual pattern has changed I wonder if something else is going on or is this another Dysautonomia symptomatic pattern?
Thank you in advance for sharing any input or your experiences.
akj