minimay Posted September 8, 2006 Report Share Posted September 8, 2006 I always wanted to know what is the longest someone has had POTS? Quote Link to comment Share on other sites More sharing options...
Guest dionna Posted September 8, 2006 Report Share Posted September 8, 2006 i haven't had it long... 2 years, 1 month, and 6days... atleast that is the first time i fainted.dionna Quote Link to comment Share on other sites More sharing options...
MNsue Posted September 8, 2006 Report Share Posted September 8, 2006 16 years... It started with Mono and I was just diagnosed in Feb. I have had good and bad stretches over the years. I have worked most of the time, however just part time. Good Luck Quote Link to comment Share on other sites More sharing options...
Tanzanite Posted September 8, 2006 Report Share Posted September 8, 2006 My whole life. I'm 29 in 3 weeks. Quote Link to comment Share on other sites More sharing options...
Ernie Posted September 8, 2006 Report Share Posted September 8, 2006 Hi,My whole life, mine is genetic. Quote Link to comment Share on other sites More sharing options...
cardiactec Posted September 8, 2006 Report Share Posted September 8, 2006 it's been six years for me. started getting symptoms at age 19, i am now 24. Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted September 8, 2006 Report Share Posted September 8, 2006 ive had pots for 24 years.. going on 25.. i wsa diagnosed 4 years ago.. Quote Link to comment Share on other sites More sharing options...
Beccapooh Posted September 8, 2006 Report Share Posted September 8, 2006 The first time I fainted was 18 years, 6 months and 1 week ago (it was my 16th birthday, so it's easy to remember!!). Things have pretty much been up and down since then. I have good stretches (for months even) when I don't even think that I'm sick, but it always come back to remind me that something isn't quite right in my body.Good question, though. I've been curious, too.Bec Quote Link to comment Share on other sites More sharing options...
ode_to_fantasy Posted September 8, 2006 Report Share Posted September 8, 2006 I've had it for almost 10 years, and I'm 23. Quote Link to comment Share on other sites More sharing options...
Jacquie802 Posted September 8, 2006 Report Share Posted September 8, 2006 Hi,I had my first real problem with POTS on Aug. 1, 2003. I turned 19 the next day, what a B-day present!! I wonder if I had POTS longer though, because I always missed alot of school due to fatigue and just not feeling good...Jacquie Quote Link to comment Share on other sites More sharing options...
BEE Posted September 8, 2006 Report Share Posted September 8, 2006 Mine is interesting I had an ablation in 2000 and then was fine for about 3 yrs...started getting symptoms back two years ago..So who knows when I got it or it started with me. Quote Link to comment Share on other sites More sharing options...
labas_2u@shaw.ca Posted September 8, 2006 Report Share Posted September 8, 2006 About 22 years Maggs Quote Link to comment Share on other sites More sharing options...
Tammy Posted September 9, 2006 Report Share Posted September 9, 2006 Six years and four months.... Thanks for starting this topic, I've kind of wondered it myself. I always think I'll die from this stuff and how long can it go on before it kills me, but sounds like it doesn't really decrease life span only quality of life.Tammy Quote Link to comment Share on other sites More sharing options...
willows Posted September 10, 2006 Report Share Posted September 10, 2006 I've had mine for 35 years and 8 months now , but my doctor thinks I first had it at about age of 5 which makes it 45 years 8 months + but which ever way you look at it a long, long time.Blimey .............. only real harden criminals get that long a sentence ...........roll on parole.Willows. Quote Link to comment Share on other sites More sharing options...
persephone Posted September 10, 2006 Report Share Posted September 10, 2006 12 years, 9 months since I first fainted. diagnosed Jan 05 Quote Link to comment Share on other sites More sharing options...
Jan Posted September 10, 2006 Report Share Posted September 10, 2006 8 years and counting. I have improved but still have many limitations. Quote Link to comment Share on other sites More sharing options...
Brwneyedchica Posted September 10, 2006 Report Share Posted September 10, 2006 I woke up sick on the first day of 10th grade...I was 15. I've had POTS for 8 years now. Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted September 10, 2006 Report Share Posted September 10, 2006 I've had a diagnosis for about 1.5 years. (I've had autonomic symptoms off and on for about 8 years but was able to function pretty well up until my diagnosis.) Quote Link to comment Share on other sites More sharing options...
jdqm Posted September 10, 2006 Report Share Posted September 10, 2006 I was diagnosed November 2002. The first time I fainted I was about a year old according to my mother. I am now 33. I have the genetic type, my aunt has it. I am terrified I passed it on to the kids, every time they have a seizure I freak that it is the beginning of their problems. The neuro just said to keep an eye on them, since there is no way to diagnose them unless there are symptoms. Seizures are bad enough!! Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted September 10, 2006 Report Share Posted September 10, 2006 I've had symptoms for as long as I can remember. I was diagnosed though two summers ago because in 2004 is when the symptoms got too out of hand. Quote Link to comment Share on other sites More sharing options...
Hoobaid Posted September 11, 2006 Report Share Posted September 11, 2006 I was diagnosed Oct 2005...Wow one year anniversary coming up.I had gone to the ER for dehydration and the ER doctor did a orthostatic test and fould I had it. I then followed up with my PD and then to the Cardio.It took a while to figure it out because I had so many other health issues going on. Looking back I know I've had it at least 3 years.Lori Quote Link to comment Share on other sites More sharing options...
morgan617 Posted September 12, 2006 Report Share Posted September 12, 2006 Let's see, I was born in 1754, so for about 251 years.....I was born with problems... Quote Link to comment Share on other sites More sharing options...
jenwclark Posted September 12, 2006 Report Share Posted September 12, 2006 I thought I had been symptomatic for 20 years, but it turns out my mother knew there was something wrong as early as kindergarten, which would be 26 years.I don't actually faint, I'm just tired all the time and see stars at the drop of a hat, and since neither of those is visible from the outside, it took me a while to figure out it wasn't normal. Quote Link to comment Share on other sites More sharing options...
ellepee Posted September 12, 2006 Report Share Posted September 12, 2006 I became sick suddenly one day mid-morning late November 2004 and was diagnosed with POTS in August of 2005. I'm 26 now and am almost to my 2 year mark. Quote Link to comment Share on other sites More sharing options...
shannon Posted September 13, 2006 Report Share Posted September 13, 2006 My symptoms are tough to trace back (as far as the start of them....it was so gradual). I know I've had it for at least 5 years. My mom thinks I was born with it, though. Quote Link to comment Share on other sites More sharing options...
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