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I cannot explain why the body would stop or slow making hormones, there are so many reasons you could be one of any of them. I can say that i have been on a progesterone cream for almost 6 months. I also found out that I have addisons, probably brought on by the amount of cortizone meds i have been on since i was about 8. pleasse feel free to email me offlist if you would like to chat! I am not much older than you, I turned 36 last month. Joy

this is not a diagnosis! when this happened to me, i had allergy testing done and found i was allergic to sugar. when i stopped eating sugar the joint pain and swelling stopped. if i eat it by mistake( its in EVERYTHING) it happens again for sometimes up to a week. you could try having food allergy testing. i would never have been able to guess my allergy was sugar, nor can you really do a food removal diet test for it, it is in too many things. I did a blood allergy test to find out that allergy and some other strange foods i am allergic to.

brain fog is one of the indicators to me that i am doing too much at that time and that i need to rest with my feet up for a while. It happens most for me after a meal, and when im being stubborn and don't use my wheelchair.

I did get a script for both my wheelchairs. My insurance paid for both, but remember this. if you get the travel or manual first, the insurance will not pay for a scooter or power chair for at least one year possibly more depending on you r coverage. i am not sure what happens if you turn them both in at the same time though. i went to the local medical supply and left with my manual chair that day, but the power chair that i also have took a year to approve. that means if you have a down turn and need the power one sooner than you thought it could b a while before you get it. message me if im not clear enough on this im really tired today.

my naturopath told me i was vit D deficient as well. She gave me vit D by vital nutrients.

This also affects me. I found out last year that i am actually allergic to cane sugar. I have chemical intolerances where i need to leave the room when cleaners are used, and most perfumes bother me as well. that means any fragranced product gives me a reaction, even some makeups have caused reactions. i have many food intolerances, including gluten and caesin.

This is interesting. After I come to from passing out I am in conscious paralysis for several minutes. Once it was almost an hour before I was able to move and communicate. Joy

Lindajoy, I totally wish i was there to give you a hug, it sounds like you could use one. I know the feeling of wanting this over, yet not meaning suicide. i also feel the same. The allergy to foods, that is hard. i thought my elimination diet was hard. i am sorry about the formula. are you saying you are still reacting to that? wow thats rough. about you dear husband, yes isnt it great how they come through. I am happy for you that he is supportive. that sometimes is such an obsticle, that it is good you have the support of someone who cares. sending love and good well your way the other Joy

it has been a while since i posted so here is an update on me. The car accident was 2 years ago last week, and i am in my 3rd try at physical therapy. i have regained some upper body strength, and i am so glad. i wish i could exercise my lower body better, but standing still for longer than 30 seconds when i am non symptomatic makes me nauseous and my blood pools. i am sure it is because the 6th vertebra has a bulge in the disk(from being hit by a car), but i cannot get a Dr. to put it in writing. all of them say that is making me worse, yet none are willing to go on record or a paper trail saying so. My Quantum power wheelchair was delivered on Monday. I am happy and sad. I am so happy that i will now be able to participate more in activities, and yet sad i have gotten this bad. I am ok for a few minutes, and then i am back in bed. i cannot participate in PT and also go to the grocery store the same day for example. i still have several Grey outs a day even on the meds, but i have not lost consciousness since October of 07. anytime after 3 pm though and i am a mess. i was just approved for 27 hours of a personal attendant each week to help me with hygiene, like washing my hair, to drive me around, and for household help (cooking and laundry). I am so sorry to vent to you, but i know you listen so well, and don't judge like most do, or say the "but you look better"

I was in a car accident on 2/13/06 that has caused my NCS to go into overdrive. I am expecting my power wheelchair this month and have been in a manual wheelchair since July of 2006 because of it. i did get therapy and chiropratic care for 4 months, but i am getting increasingly worse instead of better. from the accident i have a bulging disk, and my SI joint is messed up making everything worse.

when midodrine (proamatine)and florinef no longer worked for me, my cardio( who was a resident with dr. grubb by the way and co-wrote papers with him) put me on ritalin LA. i have not been unconsious in 3 months on it. according to him, midodrine is a derivitive of ritalin. i have not found any confiramation on that, but that is what he said. it cant hurt to ask.

the medication itself is not usually any different. it is the inactive ingrediants that are different. some Name brands of a med have more exact amounts of the active ingrediant in them. i CANNOT take ProAmatine. i can however take the generics, and some of them work better than others. i have an allergic reaction to one of the inactive ingrediants in it.

I was diagnosed November 2002. The first time I fainted I was about a year old according to my mother. I am now 33. I have the genetic type, my aunt has it. I am terrified I passed it on to the kids, every time they have a seizure I freak that it is the beginning of their problems. The neuro just said to keep an eye on them, since there is no way to diagnose them unless there are symptoms. Seizures are bad enough!!

hi maxine, welcome. i believe we have emailed eachother. nice to see you again!!