MightyMouse Posted October 24, 2005 Report Share Posted October 24, 2005 Hello everyone--I've been keeping up with reading the forum, but not able to post as much as I'd like. First off, welcome to the many new members who've joined in the past several weeks. I'm amazed sometimes at the number of new posts here daily.So, here's what's going on. My sinus infection has returned and layed me out for the weekend. I'm on antibiotics. Again.Last week I saw my gyn who still wants to take out my ovaries to help with my abdominal pain and migraines. I declined again. I also saw my neurologist who doesn't really have anything else he can do for me excepting migraine meds. I also saw an orthopedic surgeon familiar with EDS--he reviewed all my films and took some new ones, and reviewed my history. My fusion looks beautiful and is well integrated (meaning the bone healed well) into the surrounding bone. Also, the spinal canal looks open and no csf flow restriction. That's good news. However, he felt I could benefit from PT to help me build stamina and to help stabilize my loosey-goosey joints.So, that lead me the Ortho referring me to his partner who has 3 MD's--excercise physiology, internal medicine and anesthesia/pain management. Can you say overacheiver!?? I saw him on Friday--and he felt that in order to improve my quality of life I'll probably need physical therapy for the long haul. He wrote me a very specific prescription and I have my first PT appt today at 3pm (the script says "no traction", focus on seated & prone exercise and walking). He also told me that I have quite a bit of arthritis in my spine--not a surprise to me given the pain.Other stuff--grad school is very challenging this term. I have an exam in that class tomorrow night and I've been struggling with the brain fog and short attention span. I also had a midterm last week, which I think I got at least a B grade on. I'll find out on Weds.Work has been very stressful and taking a toll on my health--mostly emotional stress because I've had to sit in on meetings with staff who were being reprimanded. You all know how that goes with high emotions and the crash that then follows. I'm good at keeping a calm exterior but I hate having to do those tough meetings---they leave me so drained. I think that gave my sinuses the opportunity to creep back up to make me sick again.I caught up on shipping DINET bracelets last night Some good news too--the bracelets that are being sold by a Croatian shop online are now listed in their website. I, of course, had to send links to them to everyone in my family I needed that little boost. I'm hoping they don't sell TOO well b/c I don't have any energy right now to make more. Quote Link to comment Share on other sites More sharing options...
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