Doctor Gave Up On Me

[puppylove]

My gastro doctor called today and said "there is nothing more that he can do". Two blood results have come back that there is an infection somewhere in my body and nausea/ other GI problems are still my worst symptoms. He thinks my other doctors should take care of it. I guess I might get a new one or just stick with my cardio/ endocrinologist for now. Just a little disheartening when they say stuff like that.

[arizona girl]

Oh puppy, I know how disheartening that is, it's happened to me before as well. Ya just wanna give up sometimes. I did that after a doctor said are you someone who looks things up on the internet and there is really nothing wrong with you. Several months later I had a small colon rupture and she missed the signs.

I tell you this because I didn't know I had an infection and with an infection on board you must be treated and can't let it be and hope it gets better. I too get infections and don't know where they are. I have a primary immune disease and I don't run fevers because my body can't mount a defense, even with a rupture I was only 100.2. I can only go by where the pain is, and it is usually my lower right pelvis hip and glut. I have a standing cbc order to check if I have an infection when in pain. If it is elevated my doctor gives me an antibotic shot of rocephine as oral antibotics don't work and are hard on a messed up gi system to begin with.

I've been following your posts and had not had much to add, other then thinking there seems to be something more going on then just dysautonomia, which many times can be the symptoms of some other illness. The test that diagnosed me is called a quantitative immunoglobulin test, along with a sub igg panel, igd and ige. If any of those are abnormal a vaccine challenge test is done. These tests are used to determine how well you immune system is working.

What did your current labs show exactly? Also other then autonomic testing what other conditions have they tested you for and ruled out?

Take care sweet girl, we'll all here to help you figure this out.

[Christy_D]

We can relate. Even though nausea is my son's worst symptom, we don't have a GI doctor. They ran out of ideas, so the neurologist and hematologist are working on it. Don't let it get you down, my son just figures it is one less appointment he has to go to.

[micheller]

I can relate, especially with my nausea and reflux. I've been turned away by two different drs. It really makes you want to give up. The people you expect to help you have no idea what to do. I went to my original gastro and told him he needs to contact my neuro and work together to figure this out. There's no way I can live much longer like this and I refuse to. Have you called one of your other drs and told them about the infection? Keep your head up!

[jpjd59]

Puppylove:

Oh you poor thing! I know how it feels when a doctor tells you that. My daughter has had more than one doctor tell her that there is nothing else they can do. Keep pushing. You will find that special doctor who wants to confront this challenge head on with you.

Stay strong . . .

[jkoconne]

I can relate too. I heard "there is nothing we can do" for 3 years from my GI's (3 docs). It was so discouraging and disheartening! Im so sorry you're going through this It sent me to a real low place when it happened to me. After about a year of giving up on myself I was referred to a new GI in town...She was a blessing and found what other doctors didnt test for.

Please dont give up..there are good doctors that will think outside the box and do EVERYTHING possible to help you get to the bottom. I hope this type of doctor comes into your life soon,

I know in times like this its hard to stay strong and positive. Ive found setting a time limit on how long i can be sad over it helps me get through it. I then push forward. I love looking up encouraging quotes.

My new favorite is: H.O.P.E (Hold On Pain Ends)

Stay strong! we're here for you and know the struggle you're going through

[HopeSprings]

Hmm, I'm with Arizona - what are those infections about? I hope they plan to look into that.

[Katybug]

Puppy-

I'm sorry about this (I was recently disowned by a Rheumatology group)....it is really frustrating.

As far as the infection, if you have lab work then you may want to consider an Infectious Disease specialist or an Immunologist. My guess is that your neuro and cardio may not want to treat for an infection as its not their speciality. Also have you consulted your Primary Care Physician regarding the infection?

[hippychic258]

This is very inspiring.

http://www.awmi.net/extra/healing/niki

[k&ajsmom]

so sorry to hear your having a hard time...=( my gi dismissed me as well...without anything but a colonoscopy and "theres nothing I can do for you".......sometimes I think when a doc does this its so we can find a better one who may hold the answer to something that may help. My pcp is taking better care of me than she did so Im kinda glad....hope you find closure to that and hope in a new doctor...hang in there!!!

[puppylove]

Thanks everyone. My new cardiologist is very nice and wants to help me find the cause, so I still have hope. Hippychic- thanks for showing that to me.

[Guest Alex]

Puppylove,

so sorry to hear about your experience. Good thing though that you have your cardio dr in your corner. Look at this as an opportunity to find a better gastro dr, one that will help you get to the bottom of this.

Don't give up hope.

Hugs,

Alex

[Leigh8]

So sorry to hear that. But remember, he is just one doctor, and there are plenty, plenty more out there to help you!

[misstraci]

Oh hippychic..... I just sat here and listened to that video while at work ( which I probably shouldn't have for multiple reasons) one of which is that I cried my eyes out. Thanks for posting, I likehearing things like this!